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Biomarker for Diffuse Scleroderma skin has been discovered!


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Someone believes me


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10 replies to this topic

#1 gina

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Posted 19 September 2008 - 10:51 AM

:) I finally went to see a new G.P and he listened to every little complaint. I did a lot of the same tests again and even though my ANA came back negative he gave me a referral to see my old Gastroenterologist. He also wants me to see a Rheumatologist. I am so glad I fond this forum, I don't think I would have put myself through all this again if it was not for all of your warmth and kind words. I cannot wait to see the gastro doctor, eating and drinking hurts. I have to wait 4 weeks to see him, but I am a lot happier that I'm not NUTS and wants to help. Thank you everyone.

GINA : :)

#2 janey

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Posted 19 September 2008 - 12:19 PM

Gina,
Congratulations on your persistence winning out! Thanks for sharing your good news. It always make you feel better when someone actually listens.

Please let us know how your GI and rheumatology appointments go.

Big Hugs,
Janey Willis
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#3 canon

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Posted 19 September 2008 - 05:42 PM

Congrats gina,

Hope everything works out for you and it sounds like it will with the referral lined up and your new doctor.

Keep in touch,

Judy
A happy heart is good medicine.

#4 Amanda Thorpe

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Posted 19 September 2008 - 05:44 PM

Hello Gina

I glad you now feel so enthusiastic about your treatment and care. There's nothing worse than knowing you have a problem medically and being ignored/dismissed out of hand.

About 20 years ago I went to see a neurologist, supposed expert in his field that I waited months to see for chronic headaches. He told me to keep taking over the counter headache pills and try yoga. I laughed and walked out.

Let us know how you get on.

Take care.

Amanda
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#5 Sweet

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Posted 19 September 2008 - 06:06 PM

Gina, oh yippee!
Isn't it so nice to be taken seriously! Stick with this doctor! The best to you.
Warm and gentle hugs,

Pamela
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#6 smurfette

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Posted 19 September 2008 - 06:47 PM

Be persistent and make sure that you take someone with you to take notes so that you stay on point and completely describe all your symptoms and get all the answers you need. The person who comes with you can note the answers and help keep you focused. Sometimes we get so caught up in all the information we forget some of it the moment we walk out of the office It is too hard to write and listen at the same time. Good luck and feel better!
Smurfette

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#7 Peggy

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Posted 20 September 2008 - 06:53 AM

Congratulations for haning in there and finally being heard! All it takes is to get in front of the right doctor who finally listens and takes you seriously. Granted you have to wait a little to get in but it's a start and you now have the appointment. I agree with Smurfette in that you should take another set of ears with you. They throw so much information at you and if sometimes you only hear half of it. Also write down any questions you have between now and then and take that with you so you get all of your concerns addressed. Make sure you ask each and every one and get each and every one of them taken care of. Good luck and let us know how it goes.

Warm hugs,

Peggy

#8 Snowbird

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Posted 20 September 2008 - 09:10 AM

Hey Gina

I'm very happy for you too! Stick with it girl!!
Sending good wishes your way!

#9 Nina

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Posted 20 September 2008 - 10:42 AM

Gina ~ Congratulations, I hope you have a positive experience with your GI doctor. I agree with you that this forum may just be the best thing to happen in my life. Just to know that others either are going through or have gone through the very same things...there are just no words to describe the relief. I willkeep you in my thoughts. Please let us know how you make out.
Much love,
Nina (DE)

#10 luvbnmom3

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Posted 21 September 2008 - 04:45 AM

YESSSSS!!!! I can totally relate to your elation.....lol. I'm glad you're being listened to & checked out properly so that you can get proper care! Hang in there & keep us posted on how it goes with the rheumatologist & Gastro doctors!

#11 debonair susie

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Posted 23 September 2008 - 11:10 AM

Hi gina,

I'm really glad that your new general practitioner had the wherewithall to set you up with the rheumatologist and gastro doctors! :rolleyes:

Your experience sounds close to how I got on the road to finallybeing diagnosed...in 1995. My internist listened closely to me also, as I told her of my symptoms. She then said, "this is waaaay over MY head, so I'm sending you to ------, who is one of the best gastros in town"! I found that to be absolutely true, as he was able to diagnose me at that appointment!

Having no idea what Scleroderma and the "other" diseases he spoke of were, I was in shock. However, it was such a relief to know that the symptoms really WERE tied to something! After all...for four years, I felt I might be a hypochondriac...with having been seen by rheumies, endocrinologists, other gastros and having numerous diagnostic tests, to the tune of $30,000! Yet, it was my husband and my mother who KNEW I wasn't well...after all, who better would know?...the two people in my life who knew me best!

Anyway, again, I want to say how happy I am that you were fortunate to be seen by a general practitioner on top of things!
Please keep us posted on how things go/are going?

Hugs,
Susie
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Susie Kraft
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