Jump to content


Congrats to Margaret, Platinum Member with 1,000 posts and 10 Years of Forums Membership!


Photo

Scleroderma


  • Please log in to reply
11 replies to this topic

#1 Juanis

Juanis

    Newbie

  • Members
  • Pip
  • 1 posts
  • Location:California LB.

Posted 20 September 2008 - 10:22 AM

Hello I'm 31 and my rheumatologist has a high suspicion that I have scleroderma. I was also diagnosed with GERD, and autoimmune hepatis, but liver enzymes at this time are normal. ANA positive. I have 3 kids and I'm scared. I just joined because I have been reading other people's stories and the reply are awesome and kind. Well I will post all of your soon with the beginning of how all of this started.

Juanis :D

#2 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,276 posts
  • Location:Minnesota

Posted 20 September 2008 - 12:27 PM

Dear Juanis,

I'm sorry they suspect scleroderma. It sounds like you already have enough to deal with, just with the hepatitis. Please keep in mind that scleroderma is often quite manageable. Some forms are on the "mild" side (considering). It's a pleasure to have you join us!
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 Nina

Nina

    Silver Member

  • Members
  • PipPipPipPip
  • 125 posts
  • Location:Claymnont, DE

Posted 20 September 2008 - 01:49 PM

Welcome Juanis ,
I am so very happy that you found this wonderful forum, I know you will be happy here. I am sorry that you are having such terrible problems. Please feel your way around and read some of the informative articles that you can find here. Educate yourself and don't worry yourself too much at this point. Focus on managing your hepiatitis, I'm sure that is very complicated.
Please feel free to ask any questions you may have, there will definitely be someone here that can help you out.
Much love,
Nina (DE)

#4 barefut

barefut

    Platinum Member

  • Bloggers
  • PipPipPipPipPipPipPipPipPipPip
  • 1,159 posts
  • Location:NW Washington

Posted 20 September 2008 - 02:57 PM

Welcome Juanis ~

I am glad you have found us. This is the best place to be - the greatest people and the most accurate and up-to-date information you will find.

I am sorry you have your hands full with health problems - as if being a mom to 3 isn't enough to worry about...

Sounds like you have a good rheumatologist. Stay on top of things and keep us posted.

Wishing you peace of mind,

#5 canon

canon

    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 312 posts

Posted 20 September 2008 - 05:35 PM

Welcome Juanis,

Sorry to hear you have so many things happening to you. I hope you have people close by that can help you out and the forum here does give great support.

Glad to hear that your liver enzymes are normal again. That is one good thing.

Keep us posted and keep in touch.

Wishing you well,

Judy
A happy heart is good medicine.

#6 razz

razz

    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 344 posts

Posted 21 September 2008 - 04:25 AM

Hi Juanis,

Welcome to our forum! Everyone here is so supportive and fantastic and I'm sure you'll find comfort within our ISN family. Please try not to worry and stress about the possibility of having scleroderma. The symptoms vary from person to person. Presently there have been advancements in research and treatments than ten years ago when I was first diagnosed.

There are links on our forum for managing stress and fatigue which would be helpful especially since you have a family who needs you. Feel free to ask questions at any time. I hope you feel better and please do keep us posted! :)


Hugs,
Razz
Live well, Laugh often, Love much

#7 jefa

jefa

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,325 posts
  • Location:Scotland

Posted 21 September 2008 - 04:33 AM

Welcome, Juanis.

Here is our link on Emotional Adjustment and Scleroderma which Razz referred to. This page has much information for those just coming to grips with Scleroderma and also for those for whom it is a long time acquaintance. I look forward to getting to know you better.
Warm wishes,
Jefa

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#8 Snowbird

Snowbird

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,008 posts
  • Location:Canada

Posted 21 September 2008 - 06:37 AM

Hi Juanis

I just wanted to welcome you too.....sorry to hear you have so many things going on but glad that you are seeing a rheumatologist. This is a great site to ask all your questions and to get good factual support.
Sending good wishes your way!

#9 Peggy

Peggy

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 635 posts
  • Location:Minnesota

Posted 21 September 2008 - 06:45 AM

I wanted to send you a big welcome! You've come to the right place for support, advice, and if you need to a place to vent. The wealth of information is wonderful. I've had so many questions answered and fears dampened. I hope your appointment goes well. Please let us know how you are doing.

Warm hugs,

Peggy

#10 Sweet

Sweet

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,892 posts

Posted 23 September 2008 - 09:28 AM

Hi Juanis,

Welcome to the Sclero Forums! I am so glad you've joined us, but really sorry it's due to the symptoms you are having. I look forward to knowing you better!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#11 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,927 posts
  • Location:U.K.

Posted 23 September 2008 - 01:11 PM

Hello Juanis

Welcome and I look forward to hearing more from you when you are ready.

Clearly you have alot to contend with and all on this forum will do all they can to help and support you.

Take care.

Amanda
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#12 janey

janey

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 2,118 posts
  • Location:New Mexico

Posted 23 September 2008 - 02:55 PM

Juanis,
I'd like to join the others in welcoming you to the ISN forum You obviously know already that it's a great place for support and information. I'm sorry to read that you are suspected of having scleroderma and are already dealing with GERD and AH. The good news in your posting is that you have 3 darling children to keep you focused on life and fun things. You can't have a much better motivator than that. So work close with your doctors, stay on top of any and all symptoms, but in the meantime - have fun with your lovely children.

I look forward to learning more about you.

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)