Jump to content


Biomarker for Diffuse Scleroderma skin has been discovered!


Photo

What do you do to control joint pain?


  • Please log in to reply
10 replies to this topic

#1 RememberingToSmile

RememberingToSmile

    Silver Member

  • Members
  • PipPipPipPip
  • 104 posts

Posted 22 September 2008 - 02:50 AM

What do you do to control joint pain?

I recently went through a difficult period of joint pain. For me, my hips, right shoulder and right fingers are the worst. Unfortunately, my stomach won’t tolerate ibuprofen or naproxen, only acetaminophen.


So, I’ve been talking to as many people I can find with RA or OA to find tricks to deal with it. Here are several strategies that help me everyday.

==========================
* I have the acetaminophen sitting by me bedside with water and take it an hour before I plan to get out of bed. (I can’t believe I never thought of that before; I’ve always done it with my Cellcept)

* I use a strong muscle/joint rub on one joint before going to bed. It honestly distracts me from the other discomfort.

* I bought a good mattress cover and I strategically place a pillow so I have leverage on my hip before I roll over.

* Heat Heat Heat and some Icing when bursitis is bad. I am careful with the icing, though, because of our friend Raynaud's. I usually sit on the heating pad when icing a joint.

* And because my problem is inflammatory arthritis, not osteo, I keep moving, even when it seems impossible.

* Also, when my hip bursitis is bad, I put my good sneakers on right when I get out of bed in the morning. It makes it so much easier to walk the stairs.

==========================

Anyone have any other advice? I am finding the smallest hint can make such a difference.

-RTS

#2 Sam

Sam

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 640 posts
  • Location:Delta, Ohio

Posted 22 September 2008 - 08:01 AM

RTS, thanks that will help me in some areas too. I do soak in a detox bath once a week. Sam
Sam

#3 KarenL

KarenL

    Silver Member

  • Members
  • PipPipPipPip
  • 213 posts

Posted 22 September 2008 - 08:35 AM

I have gone to physical therapy, and was surprised to learn that STRETCHING is the BEST exercise there is for people with limited mobility. I have fibromyalgia in addition to sclero and osteo and when I don't stretch I suffer. I bought a stretch out strap like the one at the PT office and it comes with a booklet. excellent. I can't say enough about it. also the book by Anderson, called Stretching was recommended by my cardiologist. Do it! it works!
Karen

#4 canon

canon

    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 312 posts

Posted 22 September 2008 - 04:39 PM

Hi RTS,

Hope you don't mind if I use some of the suggestions? When my hands, wrists and elbows hurt I use a parrifin wax bath. You can buy the electric tubs at pharmacies for $30.00. They also help with raynaud's and skin issues as long as you don't have any open areas on your skin. I have been contemplating placing my feet in the little tub too. Kind of tricky and haven't done it yet but working up to it. Afraid I'll dump the tub.

There are exercises for the bursitis and some are pretty simple. I found the simple ones on line. The ones the rheumatologist handed me are difficult to do on a bad day. It worked for awhile but had to get a shot anyway.

Tylenol is it for me too for anything over the methotrexate injections and plaquenil they have me taking. They both help with the skin and pain issues.

Take care and hope you find more relief.

Judy
A happy heart is good medicine.

#5 PrincessB

PrincessB

    Senior Bronze Member

  • Members
  • PipPipPip
  • 78 posts
  • Location:Strasbourg, France

Posted 22 September 2008 - 08:32 PM

Hi there,

Have you tried taking a 1000mg of cod liver oil (fish oil) capsule every day? I have take a pain medication. I was just reading up about it and it also has antidepressant properties, particularly in those with chronic pain. I don't take it every day though, it was prescribed when I had an ulcer that hurt so much I couldn't sleep.

B x
Diagnosed diffuse systemic scleroderma December 2005 (on my 30th birthday, as if turning 30 wasn't enough?!)

#6 RememberingToSmile

RememberingToSmile

    Silver Member

  • Topic Starter
  • Members
  • PipPipPipPip
  • 104 posts

Posted 24 September 2008 - 12:47 PM

Sam, Karen, Judy, and B

Thanks for taking the time to add to the list. I don't know anyone with sclero who doesn't have some joint issues!

- I'll remember to relax in a bath - I've tried one detox formula, but it didn't have any bubbles :-( I'll have to look for another.

- I am also a great believer in stretching. I'll look for the book you recommended and maybe visit my physical therapist again to review stretching around my specific problem joints. I did just search online and found one for hip bursitis that I have never done before.

- I had used a parrifin bath back in 2006 when I visited a hand therapist during the early diffuse stages; but it irritated my swollen fingers at the time. Now that it is more an arthirtis issue, I'll try it again. Because the hand therapist used it, I should have thought to try it again (thanks)

- I keep meaning to ask my doctor about fish oil. It seems everyone I meet with autoimmune and/or cardiac problems takes it. I eat fish 2-4 times a week - so I'll find out how much he recommends. [Seems maybe our parents were right when they gave us that teaspoon of cod liver oil for whatever complaint we had - do they still do that?]

Thanks again for posting!
RTS

#7 PrincessB

PrincessB

    Senior Bronze Member

  • Members
  • PipPipPip
  • 78 posts
  • Location:Strasbourg, France

Posted 24 September 2008 - 08:36 PM

I forgot to say yoga too, I started last year and it's great if only because otherwise I know full well I wouldn't consciously stretch once in a week!
Diagnosed diffuse systemic scleroderma December 2005 (on my 30th birthday, as if turning 30 wasn't enough?!)

#8 barefut

barefut

    Platinum Member

  • Bloggers
  • PipPipPipPipPipPipPipPipPipPip
  • 1,159 posts
  • Location:NW Washington

Posted 24 September 2008 - 11:24 PM

Thanks for the ideas and reminders everyone! Good topic. :D

#9 ozzy69

ozzy69

    Silver Member

  • Members
  • PipPipPipPip
  • 169 posts
  • Location:Taylorsville, KY

Posted 25 September 2008 - 01:58 AM

Hi,

I too do yoga, and I also attend a dance class that involves cardiovascular and aerobic routines set to Latin music. It is a lot of fun and you can do it at your own pace. We have about 20 in our class, all ages. I have been doing it for about a year now. It helps a lot with joint pain and the mental part of having a Sclero. When I don't do it I get more stiff and hurt. I also do the detox baths after and it helps.

Hope you find something,
Nina Lynn

#10 jefa

jefa

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,325 posts
  • Location:Scotland

Posted 25 September 2008 - 03:48 AM

Nina is onto the right track when she suggests that exercise with music can be a good way to help the pain. Apart from the actual benefit from the exercise, the music can be uplift your spirit and improve mood, both of which go a long way towards fighting fatigue according to this article found on our Emotional Adjustment and Scleroderma page under the Management and Pain section:

Listening To Music Can Reduce Chronic Pain And Depression By Up To A Quarter. Listening to music can reduce chronic pain by up to 21 per cent and depression by up to 25 per cent, according to a paper in the latest UK-based Journal of Advanced Nursing. It can also make people feel more in control of their pain and less disabled by their condition. Medical News Today. 05/25/06.

It is important to remember to check with your doctor before starting any new exercise program and to remember to do warmup and cooldown routines before and after each session.
Warm wishes,
Jefa

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#11 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,638 posts
  • Location:(United States)

Posted 25 September 2008 - 06:16 AM

Hi Everyone!

So many great, GREAT suggestions!

It's really true...When I'm still...for any length of time...I really have the stiffness, pain, soreness you all spoke of.

RTS....Not that I've done this yet, but I'm going to get started with water aerobics in the very near future. I too, have fibromyalgia and it compounds the Sclero pain so many of us deal with on a daily basis :( .

With colder temperatures fast approaching, I dread the discomfort it also brings. That's why I felt I woud give this a try! My sister-in-law has Sarcoidosis, Ankylosing Spondylitis and Fibromyalgia and she really feels the water aerobics help her alot!

Hope all of you are doing okay!

Hugs,
Susie
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)