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Raynaud's


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#1 Snowbird

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Posted 27 September 2008 - 02:06 PM

Hi all

Do your hands and/or feet have to turn blue to be diagnosed with Raynaud's? I thought awhile back that someone here (sorry, can't remember who) was diagnosed with Ray's visits but that your hands didn't change colours at all? Wondering how you were diagnosed without having colour changes? Thanks.
Sending good wishes your way!

#2 LisaBulman

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Posted 28 September 2008 - 03:30 AM

Hi Snowbird,
I have Raynaud's and I definitely turn blue but others might turn white. Here is some info on Raynaud's for you to look at if you are interested. Hopefully who ever it was will respond to your post!

Good luck,
Lisa
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#3 Buttons

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Posted 28 September 2008 - 04:23 AM

I have Raynaud's and my hands turn white & then dark blue/ black before eventually going bright red and with it get lots of pain. I also find that I can't hold things properly until the attack has worn off. I also have the odd capillaries at the base of of finger nails. My general practitioner has also witnessed me having numerous attacks & even suggested I tried some snowboarding gloves for the winter (he does snowboarding), in fact they look really good but are very expensive! They are down filled.

Jensue

#4 smac0719

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Posted 28 September 2008 - 07:44 AM

Snowbird,

I have been diagnosed with Raynaud's and I do not have fingers or toes that turn blue. They do turn white and somewhat red upon warming. My fingers and toes get numb when they are cold and often times hurt. My office at work is very cold and I keep fingerless gloves (so I can type) and socks at my desk. When it gets bad I keep a cup of hot water at my desk so I can wrap my hands around it to warm up. Sometimes I just have to go outside to warm up (can do that in Florida). I keep layers on my body by always wearing a camisole along with my support cami's (my under armour :lol: ) to keep my core warm.
I may have Scleroderma, but Scleroderma doesn't have me!

#5 Snowbird

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Posted 28 September 2008 - 09:33 AM

Thanks Lisa and Jensue

I appreciate your help.

My feet have been odd a couple of times lately....and I'm wondering if it's Ray visiting me...mostly my right foot, it turned what I call yellow (they might call it white, I really don't know??)...they went numb and tingled/pained, got my attention anyway.....it was like I could draw a line on my foot on top for the colour difference and then the entire bottom of my foot was the very same yellow/white all but one little pink toe (the only toe that was not tingling/numb)...?

Jensue, down filled anything is sooo warm....I know they're expensive but if you can get them off-season, you might be lucky enough to get them at a reasonable price....I sure hope you find some!! :)
Sending good wishes your way!

#6 canon

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Posted 28 September 2008 - 05:52 PM

Hi snowbird,

The first symptoms of Raynaud's with me was numbness in some fingers which turned white in the cold. It has progressed over the years and now when I am cold they turn white, blue, sometimes almost black then red. It is not every finger and now my toes are doing the same thing. I think in the beginning we don't pay much attention to it, at least I didn't.

Keep warm.

Judy
A happy heart is good medicine.

#7 Amanda Thorpe

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Posted 29 September 2008 - 11:59 AM

Hello Snowbird

I have Raynaud's and only knew because I was told at diagnosis and this was confirmed with the nailfold capillary test and hand warming test. My hands have never gone blue, my feet have started to but not too bad and I don't get a great deal of pain.

As always anything to do with sclero, here secondary Raynaud's, can vary greatly from person to person. Presumably tests would confirm the diagnosis for you.

Hope this helps.

Amanda
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#8 Snowbird

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Posted 29 September 2008 - 01:02 PM

Hi everybody and thanks too for all your responses!

I go to see my family doctor late October....I plan on asking him about my latest/newest 'thing' that's been happening...and I will be interested to see what he says about it....or if he thinks we should do those nail capillary/warming tests.
Sending good wishes your way!

#9 ozzy69

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Posted 29 September 2008 - 01:17 PM

I have had Raynaud's for 7 years now. They turn white, purple, black, blue. It happens in all my toes and hands. They also go numb and hurt really bad when I hold something cold. I love to make meatballs, but I can't because it kills my hands. My husband and boys make them for me.

Nina Lynn

#10 Piper

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Posted 29 September 2008 - 02:15 PM

Hi, I've had Raynaud's for a few years but not very severe as I've never had any sores.It seems to come on when my whole body is cold and not just touching something cold for instance. Lately the faty part of my palm below the thumb goes blue and sometimes when I'm in the shower and I look down my lower legs and feet are completely blue. Could that be Raynaud's? Anyone else have anything like this? I can't remember where I read that you only need a two colour change to be diagnosed with Raynaud's and it could just be white and red.

Piper

#11 Buttons

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Posted 01 October 2008 - 03:23 AM

Piper my lower legs and feet often go white and blue while in the shower and are quite painful. Although my Raynaud's is really bad I've been lucky in not having any ulcers etc. I do try to keep them warm at all times. I find holding anything from the fridge/ freezer painful so have a pair of gloves nearby to wear.

Snowbird I've done some searches for these gloves but they all seem to be for men so they tend to be far too big. Also they are on American sites so not sure how I would be of ordering here (paying tax etc when imported), perhaps someone can tell me what happens if you order online.

#12 razz

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Posted 01 October 2008 - 04:23 AM

Hi Snowbird,

It's interesting how everyone's Raynaud's symptoms vary. My first experience with Raynaud's (at the time I didn't know that's what I had) was a few of my fingers would turn whitish in the cold. When they warmed up I would get the reddish color and then back to pink. As my systemic scleroderma progressed I noticed the Raynaud's would change to purple and blue. Even the bottoms of my feet would turn purplish blue. Once my sister even asked me what's wrong with your feet. When I see those color changes I know I need to get my hands warmed up right away. Piper, the fatty part of my palm also turns a slight bluish color and when I shower, because the metal tub is freezing cold when I first get in, my feet go Raynaud's crazy. Nina, whenever I handle frozen chicken, by the time I'm done my fingers are frozen too.

Take care and keep warm.
Razz
Live well, Laugh often, Love much

#13 Sam

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Posted 01 October 2008 - 01:09 PM

Mine automatically turn white and I mean white. Then when I warm them up they are red pink. The only time they turn purple or blue is when I am really cold and I can't get them to warm up. Which only happens once in awhile. But I always had them turn white first. I have been experiencing a lot of Raynaud's attacks in the past two days. It is cooler here in Ohio not a happy camper.... Sam
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#14 Nina

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Posted 01 October 2008 - 02:53 PM

Mine sound a lot like yours Sam ~ really white, from my knuckle down to the tips ~ Funny I noticed it this morning after my shower. My feet are really bad, but I think that more never damage than Raynauds, but I don't know that for sure.
We are all so different, aren't we? "Unique" that's what we are "Unique"...
Much love,
Nina (DE)

#15 Margaret

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Posted 01 October 2008 - 03:40 PM

Hi Snowbird ,

Gareth's rheumatologist told me in May that he was "showing signs of Raynaud's and to watch for finger ulcers." I haven't seen anything that looks like the pictures here in the medical section. His may turn slightly paler, but I have yet to see the red, white, or blue that so many people talk about. He will come to me and tell me the tip of his finger 'is sunburn' but I have yet to figure out what that sensation means to him. It's interesting to read all the different responses.

Take care, Everyone.
Margaret

#16 Buttons

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Posted 02 October 2008 - 02:35 AM

Hi everyone

My whole hands now turn that deathly white colour, at first it was just part of one or two fingers, so my husband now calls it 'chicken fingers'!!! :lol:

Jensue

#17 Snowbird

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Posted 03 October 2008 - 11:28 AM

Wow...it sure is different for everyone....mine didn't go what I'de call white....I called it yellow, oh well....I don't even know if it means anything....it's the numbness and tingling that got me thinking it wasn't quite right....thanks so much for all your help.

Jensue....I order things from the States now and again (I'm in Canada)...and I have to pay duty/customs on it....but it might depend on what items you order though through the UK? PM me for sure....if I know what size/colour, etc, you're looking for...I'll take a look when I get to the mall next time for you (I live a minimum of 2.5 hours drive away from a good mall so I don't get there frequently but I do definitely go). We have lots of winter stuff here, because we need them :o ! I had to get my sweaters out already, our temperatures have been lingering between 4-10 degrees this week with lots of rain, cold and damp too, sooo lucky. It would be nice if it waited till the end of October at least but it didn't ;) ...they even had 1 inch of snow about 45 minutes drive from where I live a couple of days ago :o
Sending good wishes your way!

#18 Buttons

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Posted 04 October 2008 - 10:07 AM

Snowbird I got up early today to take mum& my youngest daughter to the airport & it was just 3 degrees at 9.00 am and only rose to 11 degrees so we also having some cold, wet & very windy weather.

Thank you for the offer and will have another look to see if I can find any on the net first.

#19 Snowbird

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Posted 04 October 2008 - 01:57 PM

Hey Jensue

I didn't realize your weather was like ours at this time of year....never been to the UK but do know a couple of people that were born there and now living here. One day perhaps....I'm not a great 'flyer' and it's about an 8 hour flight...so that in itself keeps deterring me somewhat...although there are so many places in Europe that sound so interesting to travel to.

You're welcome...I'm sure you'll find them somewhere eventually. My husband teases me and says that net is not a good place for me (it makes that shopping online too easy....and I like it too!) :)
Sending good wishes your way!

#20 JohnJ

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Posted 05 October 2008 - 05:09 PM

My fingers turn white, then red and I have lost one index finger to amputation and my middle finger has an ulcerated tip and it is probably going under the knife soon also. I just hope they can save as much of it as possible. I'll be down to having only my thumb, ring and pinky fingers if not. :rolleyes: Good luck to you.