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Laugh or cry


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#1 Margaret

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Posted 30 September 2008 - 03:57 AM

Hi Everyone,

Well, it has been almost two years since Gareth was first diagnosed. Last night, I was checking an 'itchy' mole on my stomach and found I have a whole belly full of little red spots..........from pin head size to larger. Some raised and some flat......Telangiectasia?!?!? I can't find any picture that shows it on ones stomach.

I have had long silver, white hair since I was 40 years old. This summer it started falling out in clumps and I had to have it cut real short. My doctor did blood work for thyroid problems and it was normal. He told me it was "stress related".

My reflux has been getting worse over the past few years.....something I always contributed to age. I have to see my doctor again next week.....will keep you all posted.

Take care, Everyone.
Margaret

#2 Shelley Ensz

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Posted 30 September 2008 - 05:47 AM

Hi Margaret,

I'm sorry to hear you're have some health issues. As you know, I have no medical training at all. I think it would be a great idea for you to see a board-certified dermatologist -- particularly about the itchy mole (they aren't supposed to itch) and to find out what the red spots are. If they are telangiectasia, then you'll be thrilled to know that telangiectasia on the body/trunk/arms/legs are perfectly normal and very common. It's only when they are on the hands and face and combined with a bunch of other symptoms that they become worrisome for scleroderma (whew, eh?!).

Hair loss and reflux are things that can also be "normal" or worsen with age. But falling out in clumps doesn't sound so good. We have a section on Alopecia (Hair Loss). An interesting tidbit there is that sometimes it is caused by gluten sensitivity; and we also have a section on Gluten Sensitivity since it is a known cause of scleroderma and many other autoimmune diseases; and that can also cause heartburn, too.

The dermatologist should also be a good resource for questions about your hair loss. Please keep us posted on how things go...particularly with that pesky mole (as an itchy mole can sometimes be a sign of malignant melanoma.).
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 KarenL

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Posted 30 September 2008 - 05:50 AM

Hi Margaret,

That sounds like a strange bunch of symptoms, and as you know from all your research on Gareth, may or may not be related. An itchy mole is suspect so it's good you are going to your doctor. Usually they can remove it right there in the office and send it to be tested. I know you must be scared, but keep the faith and strength you have shown for Gareth and you'll do just fine. I'll be thinking of you...
Peace,
Karen

#4 Margaret

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Posted 30 September 2008 - 09:00 AM

Hi Shelley & Karen ,

I have an appt with the derma. There is only one in town and it is for March!!! I have to go to my primary care physician next week and will see if she can push up the date. That is good that the red spots on the trucnk are normal. Now I am laughing at over reacting!!!

Take care, Everyone.
Margaret

#5 Peggy

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Posted 30 September 2008 - 09:57 AM

You are always so generous with compassion and support of others here so I just wanted you to know that I'm here for you. I'm sure you are a little scared and concern. I'm glad you're having it check out. Just know that we are here for you.

Warm hugs,

Peggy

#6 smac0719

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Posted 30 September 2008 - 01:03 PM

Margaret,

My thoughts are with you and I am hoping for the best.
I may have Scleroderma, but Scleroderma doesn't have me!

#7 barefut

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Posted 30 September 2008 - 03:14 PM

Hello Dear Margaret ~

I am glad that you are laughing and not crying. March is a long time to wait. Hopefully you can get in sooner.

Wishing you peace of mind!

#8 canon

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Posted 30 September 2008 - 05:20 PM

Hi Margaret,

Sorry about the big scare. Hope it is just some kind of treatable skin condition. Take care of yourself and keep us posted.

Wishing speedy treatment and healing for you,

Judy
A happy heart is good medicine.

#9 Buttons

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Posted 01 October 2008 - 02:55 AM

Hi Margaret I had a mole on my stomach a number of years ago which was itchy & getting bigger, it became sore because it was just on the waistband of skirts & trousers so saw my general practitioner sent me to the dermatologist to get it checked, they removed it there & then. After testing it they said it was OK. I was relieved!
Hope you soon get sorted.

Jensue

#10 razz

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Posted 01 October 2008 - 04:50 AM

Margaret,

I hope you get to see your dermatologist sooner than March.

You are a great mom to your son Gareth and we enjoy hearing how he's doing. Do keep us posted on your appointment results.

Hugs,
Razz
Live well, Laugh often, Love much

#11 debonair susie

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Posted 01 October 2008 - 07:46 AM

Hi Margaret,

You are on the right track and in view of the wait to see the dermy is so far out, maybwe your primary care physician might be able to fast-forward by getting the mole biopsied him/herself. If not, let's hope an earlier date withyour dermy is possible, as you and others have said.

In the meantime, Hope you get answers and can relax soon!

Hugs,
Susie
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#12 Sweet

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Posted 03 October 2008 - 05:16 AM

Hi Margaret,

Oh I am so sorry you are not feeling well and are having these crazy symptoms. I do hope it's just stress related vs anything more serious.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#13 summer

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Posted 03 October 2008 - 01:34 PM

Hi Margaret,
Try not to worry, I know easier said than done, sometimes the body can act a bit strange if we are stressed. I know for me even if I am a little stressed I can get multiple migraines and break out in horrible eczema.

Just know that we are all thinking of you, you are always on this forum offering kind words and support. Feel free to air out any of your concerns and worries and we will try to comfort you as best as we can. I hope that you can get an earlier appointment, waiting is the worst part.

Take care
Celia

#14 LisaBulman

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Posted 04 October 2008 - 02:12 AM

Hi Margaret,
I am so glad that you are laughing now and not crying. You spend so much of your time taking care of Gareth and giving support to others here, the last thing you need is to have to worry about symptoms of your own. March is way too long to wait! Hopwfully you'll get in to see the dr sooner. When I am really stressed I often loose my hair as well. It seems to happen after the stress through. My sister unexpectedly passed away in April and in June my hair was falling out like crazy! I was freaked because it was like I was going through chemo again. It stopped quickly-thank goodness.

Please keep us posted.

Hugs,
Lisa
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#15 Snowbird

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Posted 04 October 2008 - 01:17 PM

Hi Margaret

I'm glad you're laughing and not crying too! I hope your doctor's appointment next week will help to determine something for you.
Sending good wishes your way!

#16 Margaret

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Posted 08 October 2008 - 06:21 AM

Hi Everyone,

Well, the doctor wasn't too impressed with my red spots. She said they weren't Telangiectasia, but cherry hemangiomas and that they were hereditary. I told her I could thank my Mom for them!!!

She still wants me to keep the appointment with the dermatologist (couldn't get me in any earlier) but to start prenatal vitamins in the meantime. She doesn't think it's alopecia.....no circles (yet!!!)....just real thinning hair. She is doing more specific thyroid testing, though, just to make sure it isn't the thyroid. She also said to up the Pepsid to twice a day and she would set up an endoscopy whenever I was ready to go through with that. I told her I would wait a while......coward, here!!!

Sooooooooooooo, I'm fine........and snickering at myself for over reacting!!!

Take care, Everyone.
Margaret

#17 Shelley Ensz

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Posted 08 October 2008 - 08:55 AM

Hi Margaret,

I think you should definitely thank your mom for the cherry hemangiomas. I have a dandy collection of them myself. They are quite decorative, aren't they?

It sounds like she's thinking you have iron deficiency causing the hair loss? There are several different varieties of alopecia, including the general thinning and the cicatricial (circular patch) type.

I also think you made perfectly reasonable assumptions, with the information you had available at the time, so I wouldn't call it over-reacting. I'd call it being a bit startled, which all of us might be, and in need of more information to help sort it all out.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#18 smac0719

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Posted 08 October 2008 - 10:39 AM

Hi Margaret! I'm glad it wasn't thought to be anything of a serious nature. Don't be too afraid of the endoscopy. If they give you the right meds you won't remember a thing. ;)
I may have Scleroderma, but Scleroderma doesn't have me!

#19 canon

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Posted 08 October 2008 - 05:54 PM

Yeh Margaret,

Don't ever feel silly for watching out for your self. You are your best advocate and am proud you took the initiative to have it checked out. Hopefully your thyroid will be ok too.

Thanks for all your support on the forum here.

Judy
A happy heart is good medicine.