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Lymph nodes in chest


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#1 the only Y

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Posted 08 October 2008 - 05:58 PM

Hello! I am new to the forum, this is actually my first post.....I was wondering if anyone else has ever had enlarged lymph nodes in their chest related to scleroderma. I have had two chest CT's and they have not changed but they are everywhere. I am been sent to a Thoracic/Chest surgeon to have a biopsy to make sure that it is an inflammatory process. It would be a comfort to know that others have had this. Thanks :rolleyes:
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#2 canon

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Posted 08 October 2008 - 06:56 PM

Welcome the only Y,

Sorry you are having problems.

Can't help you much with the enlarged lymph nodes in your chest and am sorry you have them. I have nodules in my lungs which are thought to be of an inflamatory process. My lymph nodes in the lungs are seen but not enlarged. They can become enlarged with certain infections too, like TB so scleroderma is not always related to everything. I am not saying you have an infection or TB but those are some things they look at with I'm sure many other things.

When is your biopsy surgery? Will keep you in my thoughts and wish you speedy results and recovery.

Judy
A happy heart is good medicine.

#3 barefut

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Posted 08 October 2008 - 07:09 PM

Hello and welcome, the only Y ~

I have not had nor heard of enlarged lymph nodes in the chest relating to scleroderma but I am not an expert or a doctor either. I am glad you are having it looked into. Keep us posted as to how things turn out with your biopsy.

Do you have a scleroderma diagnosis? Looking forward to hearing more from you!

#4 jefa

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Posted 08 October 2008 - 10:29 PM

Welcome to the ISN Sclero Forums. I am sorry to hear about your difficulties, but you are on the right track working with the doctors to find the cause. As Judy mentioned, not everything that hits us is scleroderma related. It is sometimes comforting or encouraging to find out that what you may experience is shared by others, but there is always a danger that you will ignore something because it seems to be shared with others in the same boat and miss getting it taken care of.
Warm wishes,
Jefa

Carrie Maddoux
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(Retired)ISN Sclero Forums UK Chat Host

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#5 the only Y

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Posted 09 October 2008 - 05:38 PM

Hi! Thanks for the info. I don't have my biopsy scheduled yet, I go to the surgeon on Monday. There is some question about possible Valley Fever which I have read can cause enlarged mediastinal lymph nodes, so maybe that's what's going on. I was hoping just for inflammatory process because if it is Valley Fever than it will put of my treatment for Scleroderma until it's gone and that could be 1-2 years. Just continuing to do all the running around to specialists to get a hold of my health. I'll keep you posted.

Y
Searching for HOPE.......

#6 the only Y

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Posted 09 October 2008 - 05:44 PM

Thanks for your input and good wishes. I was diagnosed withScleroderma, CREST in May 08 and have not had treatment yet due to these enlarged mediastinal lymph nodes. They treated me for several months with antifungals because they thought maybe I had Valley Fever. However I changed Pulmonologists because the one I had wasn't doing his job, I'm sure you can identify with that, anyhow, the new Pulm MD thinks that maybe I didn't have Valley Fever but was only exposed. He did some testing and discovered that my O2 desats to 83% w/exertion, so now I'm on O2. He is thinking that there may be some underlying Pulm Hypertension. So, that is where I stand, sometimes a little more then I think I can handle but hanging in there. I'll keep you posted.

Y :blink:
Searching for HOPE.......

#7 canon

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Posted 10 October 2008 - 05:58 PM

the only y,

It makes me feel bad that you are going through this and am terribly sorry. I'm glad you dumped the other doctor and am horrified he has postponed your treatment for sclero by being inadequate. Keep posting and jump in with us and stay connected with this group of wonderful people. These situations can cause other problems but it sounds like the new doctor is taking right over and making up for some lost time. Hang in.

As always keeping you in my thoughts.

Judy
A happy heart is good medicine.

#8 Sweet

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Posted 11 October 2008 - 07:48 AM

Hello Y and welcome!

I do not have any experience with the nodes you are describing. I will be very interested to hear what you find out from your doctors, so do please keep us posted.

Again, welcome to our family!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#9 the only Y

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Posted 13 October 2008 - 04:36 PM

Hi! Thanks to all for your responses and warm welcomes. I saw the surgeon today and am planning on having the biopsies in mid November. They don't believe that it is cancer, possibly Valley Fever or Sarcoidosis. Anyway, I will keep you all posted.

Smiles - Yvonne
Searching for HOPE.......

#10 betty32506

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Posted 14 October 2008 - 09:13 AM

About 4 years ago multiple calcified nodules were were found in both my lungs. The biopsy was not a bad process. What this has meant is just having to follow up with this. At first 3 month intervals, then 6 months scans, 6 month without a scan and next 6 months scan. I guess the bottom line is that they are just there as status quo.

The reason they were found was I was coughing to the point of loosing my breath. Years ago I was exposed to asbestos and 3 of my siblings died because of it.

That was treated and after a few months it was just something to followup on. May yours go as well.

#11 smac0719

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Posted 14 October 2008 - 12:28 PM

The only Y,

Welcome to the forums. I don't have anything to add as I have not experienced your situation. Keep us posted and don't hesitate to ask away when you have questions.
I may have Scleroderma, but Scleroderma doesn't have me!