Posted 09 October 2008 - 08:53 AM
Posted 09 October 2008 - 12:14 PM
Take care, Everyone.
Posted 09 October 2008 - 12:33 PM
You'll get lots of suggestions I've no doubt as fatigue is common to us all.
For myself I sleep when I have to and fit things in around that. I can't make the fatigue go away so I have to recognise it's there and try to work with it because if I don't it will get me in the end and I'll be in bed for days. It's a question of doing it when I can and sleeping when I can't.
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Posted 09 October 2008 - 04:15 PM
Fatigue is a big problem. Many of us have modified our lifestyle in some ways to eliminate some of the symptoms as best we can. When modification isn't working there are medications. Plaquenil has helped so much with my fatigue. It would be so horrible at times because I would feel so weak I almost could not move. I would have to fight to stay awake driving to work and that was scary. Thought I wasn't sleeping enough. But 8-9 hours of sleep should have been enough. The fatigue had been long standing and it is basically gone, scale 1-10, it used to be a 10 and now it is 2-5. It also helps with rashes, itching and some joint pain.
Hope this helps alittle.
Posted 09 October 2008 - 06:13 PM
Welcome to the Forums. I am sorry you are having such a hard time with fatigue. It is one of the most complained about of all sclero symptoms.
I'm just going to give you a laundry list of things I have been advised to try:
get plenty of sleep
take a multi vitamin
get your iron checked
get help - with whatever
In addition, make sure you're not depressed. Though depression can bring on fatigue and fatigue can bring on depression to make a vicious cycle, then it is hard to know what came first. I discovered that one can be depressed and not even really realize it.
I would talk with your doctor about your fatigue if I were you. Hang in there and keep us posted.
Posted 10 October 2008 - 07:05 PM
Posted 11 October 2008 - 07:44 AM
And welcome!! I'm so glad you've joined us, but sorry it's because of your diagnosis.
Are you on Plaqeunil? It can really help with fatigue. Also my doctor just started me on Provigil and it really helps too. Almost too much, I can't take it everyday or I'm zinging of the walls and can't sleep.
Looking forward to knowing you better!
Posted 11 October 2008 - 09:09 AM
So glad you found the Sclero Forums ~ so sorry you are feeling so tired.
Unfortunately, I've grown use to being fatigued. I think you've gotten great advice thus far, do listen to your body and rest when you need rest. You'll get good at it after a while.
Welcome and please stick around, it helps just to know others understand.
Posted 11 October 2008 - 04:52 PM
I've come to know fatigue very well for the last going on 11 years. The best way for me to handle fatigue is to pace myself. I make sure I eat throughout the day to keep my metabolism up. Also I try to limit sweets and caffeine since this gives an immediate boost but then brings me down quickly too. I found eating fruits or juicing gives me an added burst of energy. Using the spoon theory, I figure how much energy an activity will consumme and limit a certain amount of time for that activity. Once the time allowed runs out I know it's time for me to stop, eat and rest. If I don't stop and rest, I'll either get cranky or feel completely run down the next day. Nothing is worth pushing myself to exhaustion.
I'm glad you found us. Keep posting and venting whenever you feel the need!
Posted 12 October 2008 - 02:44 AM
One thing that wasn't mentioned and helps me a lot is B12 injections. I'm also on iron. Because of sclero my stomach doesn't digest foods well, and when my blood was tested they found the iron and B12 low. They treated me for that and I began feeling better after a bit. I still get tired and have to pace myself, often taking one weekend day to total rest as much as I can. I also will buy prepared foods for dinner once in a while so I can take an evening collapse, too. Naps help alot too.
Posted 12 October 2008 - 03:29 AM
I forgot to mention when I say I rest throughout the day, I mean actually lay down, put my feet up. Usually for an hour or more. Sometimes I fall asleep for a while. That's when I know I really needed a break. I just listen to my body. Taking vitamins should also help!
Posted 12 October 2008 - 03:50 AM
For your reading pleasure between naps, I propose having a look at our page on Scleroderma Fatigue.
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Posted 12 October 2008 - 10:11 AM