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Systemic scleroderma

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#1 Lucy


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Posted 14 October 2008 - 11:05 AM

I have been confussed about something and hope maybe someone can clarify for me.
My diagnosis was said to me as Diffused Scleroderma, but I often see the word systemic in the posting I have read and information. Is this a different kind of SD other than Diffused Scleroderma or just the accurate description of the Scleroderma disease regardless of type? Just not sure what Systemic means. Thanks
Diffused Scleroderma
Diagnosed Dec/06
First Sympton Nov/05

#2 janey


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Posted 14 October 2008 - 11:47 AM

You are not alone! Even the doctors use different terminology for the same form of scleroderma. To answer your question - diffuse scleroderma is a subtype of systemic scleroderma. Here is a link to a brief summary of the Types of Scleroderma. There are two main types (Localized and Systemic) but each of them have their own subtypes. You can click on the links provided on the page to learn more about the subtypes.

Hope this helps.

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Janey Willis
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#3 Amanda Thorpe

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Posted 17 October 2008 - 08:10 AM

Hello Lucy

What's that song...you are not alone....

Not long after diagnosis I read a copy of my rheumatologists letter to my general practitioner and it said I had diffuse cutaneous systemic sclerosis and I remember thinking...but I thought I had scleroderma :huh: ... Took me ages to realise it's the same as diffuse scleroderma systemic sclerosis. Took me even longer to work out CREST and limited scleroderma were the same thing. :rolleyes:

Take care.

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#4 debonair susie

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Posted 18 October 2008 - 07:40 AM

Thanks for posting this thread, Lucy!

...and thanks for posting the link to answer, Janey!

You ladies rock!


Special Hugs,

Susie Kraft
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