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Morphea (en coup de sabre)


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#1 faith 3

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Posted 16 October 2008 - 06:54 AM

Is there anyone out there with morphea (en coup de sabre), I've had it since 2000, It is healing!!!!

#2 Amanda Thorpe

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Posted 16 October 2008 - 12:23 PM

Hello Faith3

Welcome to the ISN forum where you will get excellent advice and wonderful support.

I have SSc so can't comment but am pleased nevertheless that you are healing.

No doubt a member with en coup will join in and be better placed to share your experience.

Take care.

Amanda
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#3 Margaret

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Posted 16 October 2008 - 02:09 PM

Hi Faith 3 ,

I don't have morphea but wanted to say "hello and welcome to the forum." I am on because of my 20 year old son.....he was diagnosed with sine Sclero initially and switched to UCTD. It's been two years ago this October.

Take care, Everyone.
Margaret

#4 canon

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Posted 16 October 2008 - 04:21 PM

Hi faith 3,

That is wonderful news!! I do not have what you have but it is a relief to hear that someone is healing. May you continue and completely heal. I think most of us have healed in some way. This forum is great for that and the people here are awesome. Welcome.

Congrats,

Judy
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#5 Shelley Ensz

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Posted 23 December 2008 - 07:38 AM

Dear Faith,

Welcome to Sclero Forums! I'm glad to hear your en coup de sabre is healing. As it happens, it is the natural course of scleroderma to wax and wane (get worse, then get better). Sometimes that is a continuing cycle, and sometimes, it remits either partially or completely and then stays that way.

Usually the localized forms of scleroderma, and particularly morphea, begin to clear up on their own within 3 to 5 years, even without any treatment at all. However, many people do need treatment, particularly if they have severe or rapidly progressing involvement...and there are fairly good outcomes with various treatments for localized scleroderma, too.

Even when things are improving or settling down, it is still important to maintain regular follow-ups with your scleroderma expert, on whatever schedule they determine. That way if things do happen to reactivate, they can be caught in time and perhaps treated (if necessary).
Warm Hugs,

Shelley Ensz
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#6 smac0719

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Posted 23 December 2008 - 11:52 AM

Welcome to the foums. I have quite a bit or morphea, but have not experienced a "healing" stage as of yet. I hope yours continues.
I may have Scleroderma, but Scleroderma doesn't have me!

#7 LisaBulman

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Posted 23 December 2008 - 03:52 PM

Faith,
Welcome to the forums! Great news that your morphea is beginning to heal. Please keep us posted on the progress.

Hugs,
Lisa
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#8 Nae

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Posted 23 December 2008 - 11:43 PM

Hello,

i'm glad for you. I have (had ?) a morphea too, on the cheek, it is almost invisible now and have spotted to spread for a while now, I just have (had ...) a hollow since the fat have disappeared. But, Monday, I got a lipofilling.
Take a look of my topic : http://www.sclero.or...?showtopic=6655

I'll try to send some pictures.