Jump to content


Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!


Photo

Help - Any advice for bad reflux?


  • Please log in to reply
6 replies to this topic

#1 Annie N

Annie N

    Senior Bronze Member

  • Members
  • PipPipPip
  • 79 posts
  • Location:Connecticut

Posted 20 October 2008 - 11:08 AM

Hi
I need some advice on what I can do for bad reflux. I'm already on prevacid twice a day, only on decaf and sometimes don't even drink that because it can upset my stomach, don't usually treat myself to chocolate, have my bed on an incline, eat soft foods, don't usually eat late at night, don't drink alcolhol or soda except for three times a year or so, and can't think of what else I can do to help myself.
Last night I woke up with bad reflux and acid in my throat and mouth. I coughed and coughed and drank water and tried to go back to sleep. In the morning, when I coughed there was some bright red blood in the - sorry for being gross!- in the phlegm. Scary. My throat hurts a lot and I don't feel comfortable eating. I took a dose of Pepto Bismol to coat my throat, but couldn't think of anything else to except for some cough drops also to soothe my throat.
Help - - any advice???
Annie N.

#2 Sheryl

Sheryl

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,029 posts
  • Location:Brooklyn, Michigan

Posted 20 October 2008 - 01:33 PM

Annie, it may be time to get another endoscopy to see what is going on. You might need something to help heal your esophagus along with the reflux medicines. You need to rule out Barret's Esophagus. When I am having major problems I can take up to 4 Nexium (40mg) each day. I also take Reglan. I have had Carafate and other things to help heal the esophagus. It might be time to try something different. Stay away from spicy foods for a couple weeks. Anything that causes gas or burping. Things like broccoli and cucumbers. They sometimes cause back flow of acid to come up in your throat. When I happened to cough up blood it was because of gastritus and having a hiatial hernia that I was unaware of. Let us know what you find out. Sorry, I can't help more. I eat things like cream of wheat, baby food and soups when my throat causes problems. Let us know what is going on when you find out.
Strength and Warmth,
Sheryl

Sheryl Doom
ISN Support Specialist
(Retired) ISN Chat Moderator
International Scleroderma Network (ISN)

#3 Nina

Nina

    Silver Member

  • Members
  • PipPipPipPip
  • 125 posts
  • Location:Claymnont, DE

Posted 20 October 2008 - 01:53 PM

Hi Annie, sounds like you are having some real problems. The first thing I would try is change your medicine for refulx. I also use Nexium, nothing else worked for me, nothing. I was taking it two times a day before my operation (I had part of my stomach removed). I now take it once a day, but I am heading back for yet another endoscopy (blood clots coming up).
Don't let it go, you really do need to see someone about it. But try the Nexium if you can ~ sometimes insurance won't cover it.
Please do let us know how you make out.
Much love,
Nina (DE)

#4 janey

janey

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 2,118 posts
  • Location:New Mexico

Posted 21 October 2008 - 05:12 AM

Annie,
I agree with Sheryl that you need to get this checked out. In my opinion, any time you see "red", you call the doctor.

That nighttime reflux is the worst!!! We do have a section on Reflux Prevention and Treatments. Under Lifestyles changes you'll see some articles on prevention of nighttime heartburn. It sounds like you are doing a lot the prevent it, but how are you sleeping? For me, the most critical part of preventing night time reflux is sleeping on my left side. There's some information on that in the link I provided.

Also, when you do get the nighttime reflux, eating a few bites of a banana helps to stop the burning. It does for me anyway. Hope it helps you.

Hugs to you Darlin',


Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#5 Annie N

Annie N

    Senior Bronze Member

  • Topic Starter
  • Members
  • PipPipPip
  • 79 posts
  • Location:Connecticut

Posted 21 October 2008 - 10:59 AM

Dear Sheryl, Janey and Nina
Thank you so much for your replies and advice.
I got a prescription for liquid carafate filled and am beginning on it and believe me, I'll be keeping a banana on my nightstand from now on!!
I have an appointment with my GI doctor on Nov 13th but tomorrow I plan to stop my the pharmacy and see when to take what between the cellcept, the propulsid, and all the other stuff I take.
It's my throat that still feels swollen and raw, so I hope the carafate helps. I guess I have to be even more careful about what I eat - sigh.
Annie N.

#6 KarenL

KarenL

    Silver Member

  • Members
  • PipPipPipPip
  • 213 posts

Posted 21 October 2008 - 10:59 AM

Hi Annie,

As everyone else said, you need to be re-checked. I just learned that I too have a hiatal hernia. That along with slow motility, makes even early evening eating out of the question. I can't take nexium, luckily prevacid is working, but I eat my last meal at 4:00 PM, and then nothing else before bed. I try to eat my big meal of the day at lunch and a little dinner. It's helped. It is a huge life-style change, but I had to for my sleep. Nothing worse than waking up with that YUCK in your throat and sinuses! Good luck,
Karen

#7 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,638 posts
  • Location:(United States)

Posted 22 October 2008 - 11:10 AM

Hi Annie,

It looks like you are doing many of the best things...to help control your reflux.

I wonder if the blood in your phlegm may have been a broken blood vessel from when you were coughing?

I'll send you a Private Message you to let you know what my doctor wants me to do.

Hugs,
Susie
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)