Jump to content


Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!


Photo

GERD w/ no symptoms? pH test?


  • Please log in to reply
3 replies to this topic

#1 Maddy07

Maddy07

    Senior Bronze Member

  • Members
  • PipPipPip
  • 38 posts
  • Location:Sumter, SC

Posted 02 November 2008 - 09:00 PM

I lurk regularly but have a question and figured I'd check with the "experts." :)

I was diagnosed with Raynauds in '96 with a postiive ANA in the centromere pattern. Back then they still called it CREST and I was told it m ight or might not develop one day.

I went on my merry way and have had very, very slow progression. My hands are puffy, especially in the morning. I have a some telangiestasia (sp? lol) but very minimal. And then last year I was diagnosed with Pulmonary Hypertension. It seems Scleroderma had indeed been working away on my lungs and I was oblivious.

I'm being treated for the PH and I'm doing quite well. My dear husband is in the Air Force so we moved this past summer and I'm with a new PH specialist who is a pulmonologist AND a rheumatologist. I researched her and her office and when I met her I was so happy. I am so happy to have found her.

During our appointment she asked about GERD. I have no symptoms of it. I have no heartburn. I eat what I want, when I want and without problem. To cover all the bases she has me seeing a Gastro doctor next month. She wants (from what she described) to have him do the test where they put a pH probe in your esophogus??

Sounds lovely.

Anyway, I read up on this a little more tonight here on SCLERO and I am just wondering if it's possible to have GERD and have no symptoms? Not everyone with scleroderma has it correct? I understand a large number of people do, but are there some here who don't? Is there anyone here who had no symptoms but was diagnosed with it anyway? If it's caught early and you take meds, can you prevent damage that it can cause? I saw and read about some of the complications but is that only if it's untreated?

My head is sort of spinning and then I jerk m yself back to reality and remind myself not to borrow trouble. I am just curious about your experiences.

Oh, last question...those who've had the pH test...was it as icky as I imagine it to be??

Thanks in advance for answering my many questions. I appreciate it and Happy Monday all!

Maddy
Maddy
38 yr old mommy to 2 boys
Raynaud's, CREST diagnosed '96
Pulmonary Hypertension diagnosed Oct '07
GERD, Inefficient Esophageal Motility diagnosed Jan '09

#2 Margaret

Margaret

    Senior Gold Member

  • Members
  • PipPipPipPipPipPipPipPip
  • 996 posts
  • Location:Pennsylvania

Posted 03 November 2008 - 03:03 AM

Hi Maddy ,

My son had a probe placed in his esophagus during the endoscopy. The probe detaches itself after a couple of days and goes through your system. You don't have to retrieve it, either!!! I think he wore a monitor on his belt. You won't feel it in there. There is also a device that they put in your esophagus to measure the pressure for forcing your food down if you have swallowing issues.....I don't know about that procedure.

Take care, Everyone.
Margaret

#3 Sharonvandee

Sharonvandee

    Silver Member

  • Members
  • PipPipPipPip
  • 118 posts
  • Location:Albury Australia

Posted 03 November 2008 - 05:42 PM

Hi Maddy

I suffer severe Gerd. I have lots of symptoms and complication from it not being treated.

To answer you question about the PH test. I had a 24 hr probe. Because of errosion and having a little bub I found it awkward and uncomfortable, but not too unpleasant once it was in place.

Good luck with it.
Kindest Regards

Sharon

Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive

a little bent and broken and almost beyond repair!

#4 Kamlesh

Kamlesh

    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 315 posts
  • Location:Dublin, CA

Posted 05 November 2008 - 06:16 PM

Hi Maddy,

I had severe reflux, but never felt it due to damage to my esophagus by scleroderma.
According to scleroderma specialist at UCSF, Kerry Connolly, it is not uncommon to have severe acid reflux without even feeling it. My Demister score was at the extreme at 85.
I have been doing much better after a surgery to reshape my LES valve.
Feel free to send me an email and I will be glad to discuss with you.
Kind regards,

Kamlesh