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Vitamin D -

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#1 Looking4answers


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Posted 03 November 2008 - 04:36 AM

Good Morning All~

I have two questions - First does anyone have a low blood count of vitamin D? Retested blood and it is showing low vitamin D. Also my Anti Scler-70 antibody went from 270 to 220. Is it common for that number to flucuate?

Any advise, as always, is greatly appreciated.

Have a wonderful day!

#2 Susannah


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Posted 03 November 2008 - 08:43 AM


I only just discovered that I have a dangerously low vitamin D count. It showed to be 14 instead of being within the 50-100 range, so have been put on tablets (add another one to the pile hehe) once per day for 1 month, then 1 per month for 2 months. Ive no idea what happens after that. I have 3 weekly blood tests via port-a-cath, so it will be re tested each time to see how its going. I haven't read a whole lot about vitamin D deficiency but gather it is the cause of a lot of issues. I wouldn't have had any clue that I have this kind of deficiency as there was nothing really obvious to show it. The reason my physician called for a test was due to not being able to be out in the sun too much and being pretty well covered with clothing because I'm always cold, so its definitely something for us with this condition to be aware of.
Hope that helps! : )

Susannah x

#3 janey


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Posted 03 November 2008 - 11:16 AM

L4A -
I think there are many of us that have tested low in vitamin D from time to time - myself included. Here is a link you might be interesting in:

Causes of Scleroderma: Vitamin D Deficiency.

Apparently, many studies have found vitamin D deficiency to attribute to many autoimmune diseases. So a little more sunshine will only help.

As far as number fluctuating - I'm no doctor nor do I have any medical training - but I have seen my own numbers fluctuate for several tests. I can't speak for Anti-scl-70 specifically because mine has only been tested once. I have seen ANA (another anitbody test for autoimmune) fluctuate. Maybe other have experienced it.

Hope this helps.

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#4 canon


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Posted 11 November 2008 - 06:19 PM

Hi lookingforanswers,

Hope you found the answers you were looking for. I have a low vit d too. My rheumatologist didn't say much about it in the last visit. It must be one of those things they don't talk much about or one thing they're not to worried about. I know I stay out of the sun or use sunscreen so that will interfer with absorption.

There are alot of fluctuations in ANA's which is another area not well unnderstood.

With gentle thoughts.

A happy heart is good medicine.

#5 Kim T

Kim T

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Posted 11 November 2008 - 07:55 PM


Low Vit. D is a huge problem. You may not find it changes any of your symptoms, though, but it may slow things down. The government is now finally bumping up the recommended Vit. D amounts for children. There are so many diseases that show up with increasing frequency, the farther away from the equator you get. (Interestingly, the women who cover themselves from head to foot for religious reasons, have the same problems.)

The thing I want to stress is to make sure your children, your grandchildren and any child you have contact with, gets enough Vit. D. That is where you can make a real difference. Wish I had know this when I was younger.