Karenlee, Tangelo, &Tru
Posted 04 November 2008 - 03:09 PM
Hey.......I haven't seen you posting lately. Are you gals OK?
Take care, Everyone.
Posted 05 November 2008 - 02:18 AM
Tru is doing well. I speak to her regularly.
Wishing you all happiness and pain free days.
Posted 05 November 2008 - 04:08 AM
Trying to manage scleroderma as the weather changes has been difficult, too. Think I may do the dangerous and get an electric blanket. Getting into a chilly bed at night triggers Raynaud's. Does this happen to anyone else? I don't know though, I worry about fires.
Thank you for asking about us!!! You all are my family. I still care and I still read a lot but everyone else is so good about giving great advice that there's usually nothing else to add.
Posted 05 November 2008 - 07:22 AM
Hi Tangelo & Karenlee ,
Glad you guys are OK. That AVN doesn't sound like too much fun, though. I get this *noseyness* every so often and need to check up on people!!!
We got Gareth an electric blanket last year. He actually asked for it.....he wanted a 'blanket that got hot' !!! These days, though, they barely get warm (even on the highest setting) and most turn off after 2 hours. I use a long, electric heating pad to warm my bed. Actually, I have two. One at my feet because the old cat sleeps on it, too, and one under my back area. They turn off after 2 hrs, too.
Take care, Everyone.
Posted 05 November 2008 - 08:55 AM
I had an old heating pad from a back injury that I use for my hands when I get into bed. When I bought it for the injury I never imagined it would get so much use Lol I think a heating blanket is a great idea.
How is Gareth doing? The Plaquenil is helping? I so hope he is responding well to it. It's one of those meds that require a lot of patience.
I feel a difference from when I first started (last April) but still not limber enough to paint my own toes yet I tried last week and the best I could do were racing stripes down the sides lol
Posted 05 November 2008 - 10:51 AM
Hi Karenlee ,
Gareth is doing pretty good. He just saw the rheumatologist for his six month appt and she wants a mess of blood work done next month. He had a flu shot and a pneumo shot last week and she wants to see if his immune system is working properly, so I have to wait 4-5 weeks to let it 'kick in'. She is also testing his Vit D levels......something that has been on here lately. She is testing for Lyme disease......I thought that a bit strange, but I guess you don't know till you test for it. She's concerned about his immune system since he has had pneumonia, a perforated ear drum due to infection, cellullitis, and an open wound since July.....all in less than one year. She said a 'normal' 20 years old should not be so sickly.
Do take care and keep in touch. Glad to hear that the Plaquenil is working.
Posted 05 November 2008 - 10:52 AM
Tangelo, I actually have a bed warmer sheet. It goes under the sheet and toasts the bed up nicely....I put it on about an hour or so before I go to bed on high when I want the bed really hot/toasty.....I've been using one for years and would never dream of going without it....never had a problem. They have duel controls for Queen/King size....just in case hubby doesn't want it on. Sometimes I even turn it on medium/low in the middle of the night for a little while (if I wake up because I feel a little chilly) and it puts me right back to sleep. I think everyone should have at least 5 of these!!
Posted 05 November 2008 - 04:26 PM
Posted 05 November 2008 - 07:16 PM
I too get bad Raynaud's from a cold bed the electric blanket is my best friend. I put it on the bed in autumn and it stay there till early summer. Wouldnt survive with out it. I also have an electric throw rug which gets me through the colder days when I need a quick de frost.
Diagnosis Scleroderma-crest, Scolliosis, Asthma, ILD, Plueral Fibrosis, GERD, Hiatus hernia, Anticardiolipin positive, ANA positive
a little bent and broken and almost beyond repair!