Dr. Appointment Season
Posted 06 November 2008 - 09:26 AM
This is my month for making doctor office visits. Yesterday I went to my rheumatologist . My CPK level is up again so I'm back on 1cc of methotrexate and 15 mg of prednisone. If that's what it takes to help me live a normal life (for who knows how long) then that's what I will do. I know the side effects of both medications and I'll take the risk. It's the polymyositis that is acting up.
Today I had a bone density test and it shows that I have osteoporosis in my left hip and bone thinning in my left arm. Funny, it's my right hip that I have trouble with.
On the bright side, my PFT results look better than last year's.
Next week I have a mammogram and a CT scan and possibly a nerve test on my right leg. I'm waiting to get a call from the neurologist's office.
Well, that's my news for the moment. It's a gorgeous day here. We're suppose to have rain later tonight. There go all of the leaves .
Everybody take care,
Posted 06 November 2008 - 12:26 PM
Good luck with all your doctor visits this month. It sounds like quite a hefty batch!
It doesn't always work out, but I try to spread out my doctor visits and tests. I have a theory that more than one office visit a month is just too many for me. So I'm awful when it comes time for annual check-ups...I go for PFT one month, mammogram the next, etc. My first question is usually, how long can I wait before having this test? And generally I get things squared away just in time for it to start all over again.
So just think, you're getting a year ahead of schedule!
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Posted 06 November 2008 - 01:26 PM
Congratulations in the improvement in your pfts! That's marvelous news.
Sorry to hear about your PM acting up. That CK is such a good indicator. Glad to have something that's so easy to check. Hope the MTX kicks in quickly and you can get it back down.
Good luck on the other tests. Please let us know the results.
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Posted 07 November 2008 - 08:19 PM
So glad you got some good news on your PFTs!! Sorry the other things have to act up on you now. Keep us posted.
With gentle thoughts.
Posted 08 November 2008 - 07:05 AM
I wish this disease would settle down and take a break, maybe go on vacation. My rheumatologist appointment is this Tuesday and I'm not looking forward to going.
I hope the rest of your appointments go smoothly! Great news on your PFT's. That's fantastic!
Posted 08 November 2008 - 07:32 AM
Have a blessed day.
Posted 08 November 2008 - 04:00 PM
Posted 10 November 2008 - 07:11 AM
Peggy - from my personal experience I can't say enough good things about methotrexate. It has helped my polymyositis tremendously and is also the treatment for arthritis and scleroderma. I've been on it for almost a year. When I first started I had mild nausea and was tired, but that eventually went away and now I don't have any side effects at all. I don't recall ever having any pain from polyM, just extreme weakness in my shoulders, arms, and thigh muscles.
Razz - let us know how your appointment goes tomorrow!
Lots of good wishes to all,
Posted 10 November 2008 - 10:05 AM
GOOD NEWS ON THE PFT'S. So glad for you. I have MCTD also and have done pretty well with it. I have more neuropathy than I would like and am going for a nerve biopsy and muscle biopsy to see what treatment for all of this would be recommended. I am sorry you have neuropathy also. It does hurt.
Like Peggy, I have alot of muscle pain in legs. It hurts so much sometimes. I am glad to hear of your success with methotextrate. It may be one of the ones they consider for me. Right now I am on Plaquenil and 5mg of prednisone a day. Good luck with all of your doctors. I have mine clumped together also. Susie54
Posted 10 November 2008 - 01:20 PM
I am so glad to hear how happy you have been with the methotrexate. Have you lost your hair in addition to the other side effects?
Posted 11 November 2008 - 03:21 AM