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#1 JG07

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Posted 09 November 2008 - 10:26 AM

I have noticed in the past several days that I am getting what I can only describe as mosquito bites - on my legs ,- They start out as a faint spot then within a few days look like a pimple and then a bite mark - and I am so itchy - all over - anyone know what it is called - I have systemic sclerosis -

#2 Sheryl

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Posted 09 November 2008 - 10:35 AM

JG07, have you ruled out a possible case of fleas? Do you have pets? Have you been out walking in tall grass' or weeds? This doesn't really sound like anything that I have heard about with Sestemic Sclerosis. But, I do learn new things sometimes daily, so I am also all ears. I hope you recover quickly from what ever is hurting you.
Strength and Warmth,
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#3 JG07

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Posted 09 November 2008 - 11:02 AM

I have always had a dog -never had a problem - anything is possible -

#4 Amanda Thorpe

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Posted 09 November 2008 - 12:10 PM

Hello JG07

I have systemic sclerosis also. A few months back I was getting red spots, started out as faint red dots that they ended up looking like bite marks. I had it on my forearms and they lasted for weeks.

I came to the assumption it must have been insect bites (no cat then so no fleas) as the weather was warmer and they eventually went away.

It was weird though and it must have been a determined bug to munch through the abnormally thick layers of skin. I wonder if it then went off and mutated on account of the cellcept... you know like the 3 eyed fish in The Simpsons?

I fully appreciate the need to attribute everything to the sclero, I intend to get my money's worth out of this disease. :)

Amanda
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#5 Wohali

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Posted 09 November 2008 - 01:41 PM

I'm certainly no expert but I have the same kind of red pimples that eventually look like bug bites. I attribute it to either the Raynauds or Calcinosis part of CREST. I do not think it is bug bites because I live in the cold northern climate at a very high altitude (7200 ft) and fleas cannot live at this altitude I was told upon moving here. I have a cat with a furry white belly so I can see she does not have fleas and I have never seen a flea on any other animal in this town. In fact vets do not even discuss fleas when you take an animal in for checkup. Also the only bugs I ever see inside my home are spiders. I have had spider bites when I lived back East and their bites do not look like these red bumps. There are no other bugs here no flies nor bed bugs nor anything else because the climate is so harsh for the buggers to live. In fact its snowing outside as I type this, yet I have new red bumps on my arms.

Seriously, I think this has something to do with CREST.

#6 acksd

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Posted 09 November 2008 - 01:47 PM

What meds are you on - anything new?

#7 JG07

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Posted 09 November 2008 - 04:02 PM

Thanks everyone - I have been on 3000mg of Cellcept a day -

#8 omaeva

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Posted 09 November 2008 - 06:51 PM

Where do you have them?? I get stuff like that from humidity and sweating all over my arms, chest, back, stomach. It takes a while to go away.. I think it's just extreme sensitivity.

#9 aka79

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Posted 10 November 2008 - 03:13 AM

I get the same thing; I tried to convince myself that it had nothing to do with sclero. They definitely look like mosquito bites but they take a long long time to go away. I get them on my hands and forearms. I am not on any medication yet.

Ana