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Itchiness and Sclero

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11 replies to this topic

#1 Wohali


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Posted 16 November 2008 - 07:06 AM

Is it just coincidence? I notice that I get a intense itching the day before a sclero flare. Maybe flare isn't even the right word but I get itchy then the next thing I know usually that skin becomes tight and hardens some. With the exception by eyes also have been super itchy lately.

#2 canon


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Posted 16 November 2008 - 06:34 PM


So sorry you are having such a hard time. My skin itches sometimes too especially after an area has been swollen like my hands or feet. Will keep you in my thoughts and take care Wohali.

With gentle thoughts,

A happy heart is good medicine.

#3 shennen0820


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Posted 17 November 2008 - 04:52 AM

itchness is all part of this disease..it has something to do with the skin being so dried out...I notice that I am really itchy at night when in bed (I actually have a small scar on my arm from scratching so hard in my sleep)...also if I have a sweater on against my arms I am itchy...I try to lube up with vaseline before bed and it does seem to help...I have tried taking Benadryl and it does not really seem to help much. Check out the John Hopkins website they have some really good information and suggestions on which lotions and soaps are the best to use to not dry your skin out more

#4 janey


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Posted 17 November 2008 - 05:42 AM

Yes - from my own personal experience and those that I have read on this forum, dry and itchy skin does seem to the part of this disease. I have found an oatmeal based lotion to be the best for me. We do have a page on dry skin that has several ideas. Just click on the link below.

Xerosis (Dry Skin).

I hope you find something that helps.

Big Hugs,
Janey Willis
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#5 Karenlee


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Posted 17 November 2008 - 07:53 AM


I notice my arms get very itchy after a shower. All most like pins and needles type itch. I slather on some lotion and that seems to simmer things down.

Also, my back between my shoulder blades itch like mad. I do have a hyper-pigmentation spot back there, but don't know if the two are related. Since I don't have a back scratcher, I find the best tool in the house is my spaghetti grabber thing that has the teeth on it that picks up spaghetti. Oooooh what a releif. Or I do the ol' rub my back up against the corner of a wall.

Oatmeal baths are great too. Just process some oatmeal in a food processor and mix it in a warm bath.

Hope you find releif soon.

#6 truman


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Posted 17 November 2008 - 08:41 AM


Same here. I get itchiness if I haven't had a water pill in a while. Also when my skin begins to soften as is happening during this remission.

I also had a severe itchiness which landed me in the hospital in June in which supposedly I was not to last for another day. Turned out it was an allergic reaction to Levaquin and toxic shock syndrome. Don't be frightened, this was extreme case with involved severe itching involving the entire body in which my skin shed three times; once at home and twice in the hospital.

It is what it is...........

#7 MaryFanPhilly


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Posted 18 November 2008 - 01:19 AM

Hi Folks,
My rheumatologist always asks me about itching... seems he uses it as a marker for inflammation.The more itching, the more inflammation. Interestingly he also checks inside my elbows where I seem to get very red and warm during times of high disease activity.
As with the rest of us, showering, dry skin and being in the sun make me itch a lot more, and I cannot wear long sleeves at all, difficult in this cold climate! I do feel that the disease has calmed down a lot in me and the itching is much less, so perhaps my rheumatologist is on to something.
You have some good suggestions here from the gang. Try a bit cooler shower or using a humidifier in the house, and wearing very soft clothing. I have some silk shells that I got from a ski store online that really help.
Our poor skin suffers enough. My rheumatologist also suggested using lotions that contain shea butter. It's all trial and error, and go with whatever works for you... good luck!
Mary in Philly
Diffuse sclero; diabetes; hypertension; GERD with Barrett's

#8 shennen0820


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Posted 19 November 2008 - 03:58 AM

Just found on a site to try bag balm...it is something that farmers use on cow's utters...a vet who has sclero tried it and it seemed to help according to her story...last night I think I scratched all night long! I am going to try to find this stuff and give it a try

#9 Danielle's Mom

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Posted 20 November 2008 - 05:30 PM

If I had a nickle for every bottle of lotion and every prescription that failed for my itching. I am now on 2 or 3 pills for itching. The doctor gave me a steroid lotion to apply to the inside of my elbow. I also have used an over the counter product for 3-1/2 years. I try something new but always go back to the OTC product. You can PM me if you'd like the specific product.

#10 Wohali


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Posted 21 November 2008 - 01:43 PM

Hi gang! Thanks for all the tips on dealing with itchiness. Sorry I've not been on the site all week. I think I will discuss the itchiness accompanying skin inflammation and changes with my doctor. Maybe its something he needs to know is going on.

#11 Amanda Thorpe

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Posted 21 November 2008 - 02:24 PM

Hello All

Itching is part of this disease and my rheumatologist said it stops when the disease becomes inactive. Great something to look forward to...in 3-5!! ;)

I use creams, sterioc ointments, antihistimine and a reflux med as its side effect counters itching. All help but it never goes away.

I might try the oatmeal bath, I wonder how much to put in?

Amanda Thorpe
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#12 Buttons


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Posted 23 November 2008 - 07:50 AM

Karenlee I also get the bad itching between my shoulder blades but I get my hubby to be the back scratcher for me! I use an oatmeal based cream & most of the time it eases it but sometimes I get patches on the backs of my hands & then I cannot stop scratching (I know I shouldn't) so end up with awful sore patches on my skin.