RE: hand pain
Posted 18 November 2008 - 04:02 AM
Posted 18 November 2008 - 09:23 AM
I thought that Vitamin B6 supplements helped, though I am not a doctor. However, a doctor recommended B6 to me for neuropathy.
Posted 18 November 2008 - 02:06 PM
My hands hurt all of the time. Just recently they started falling asleep when I sleep at night. I wake up and it's a weird sensation. One night I woke up and both arms were asleep up to my elbow. I am glad you brought this up because I go to Hopkins next week and I think I will ask about it. I don't know any answers. I think you should check with your doctor when you go.
Posted 18 November 2008 - 03:42 PM
Mine seem to be making a habit of going to sleep a couple of times per month and have for many months now...seems the norm has been about 2-3 nights in a row....then it goes away until next time...it is a weird tingling sensation/hands definitely feel asleep (almost always it's both hands at the same time too).....too funny but one time I actually awakened from my sound sleep because my whole arm was asleep only to find myself picking it up and flopping it down like I didn't know what it was in my sleep (my arm felt like a log)
It will be interesting to hear what you doctor says....B6 is interesting too Craig, thanks!
Posted 18 November 2008 - 03:55 PM
I have lots of problem with my arms at night. They go numb at night and sometimes I cannot move one arm unless I can use the other arm to move it. They also hurt at night. It really hurts in my elbow area. My elbows are so stuff when I first get up, and they hurt until I have been moving around a while. I notice it is worse when I have been doing a lot with my arms during the day. I mentioned it to the doctor but she never really gives me an answers on way it happens.
Posted 18 November 2008 - 05:17 PM
Sorry you are having problems with your hands. Mine fall asleep during the night too plus driving or computer use will make them fall asleep. I was told I had carpel tunnel and use wrists wraps at night. I've also had tendonitis in my wrists. The doctor had me place both of the tops of my hands together and press for about 30 seconds, not hard, and if the first 3 fingers, thumb, pointing finger and middle were numb after, it was carpel tunnel. Has anyone else been tested that way? The doctor suggested surgery but sclero and surgery do not mix well and have been trying to get things settled down. Don't want to to aggravate everything else again right now. The doctor told me to use wraps/ace at night. I have had it for a long time and the wraps work ok for me. Hope that helps alittle.
With gentle thoughts,
Posted 18 November 2008 - 05:19 PM
I also suffer from this problem, I have had it for such a long time. I wake up in the night and my hands sometimes feel dead or I have pins and needles. I have mentioned it to my rheumatologist, she doesn't seem to concerned though.
Posted 19 November 2008 - 02:47 AM
Canon - I was diagnosed with carpal tunnel and my rheumatologist did a similar test and then sent me for nerve conduction tests, following these I saw an orthopedic surgeon and have had both hands operated on. First one in July 08, the only problem I had was they put ordinary stitches in and they struggled to get them out! I still have part of one in my hand and will have that removed 10th December by my general practitioner. The second hand was done in September but thankfully used dissolving stitches which was much better. But after both operations I was told to massage in oil to help break down and soften the scar; this has really helped and needs to be continued for about 6 months after. Since the operations my hands have been much much better ( but not fully recovered) so glad that I had it done. I was told that the longer it goes on the more damage is done to the nerve so you may not get all proper sensation back.
Hope you get get sorted out Sam when you see your doctor next.
Posted 19 November 2008 - 03:31 AM
Posted 20 November 2008 - 05:46 AM
Posted 20 November 2008 - 12:03 PM
The neurologist is taking me off of my current anti-depressant and switching me to cymbalta. She says it should help take care of the pain and also any depression. Sunday I'll stop taking the anti-depressant completely for about 4 weeks. Sure hope I don't have any trouble. This isn't the time for it!!!
Ah, the ongoing adventures of scleroderma!
Take care all,
Posted 21 November 2008 - 03:25 AM
Posted 21 November 2008 - 05:10 AM
Posted 23 November 2008 - 09:16 PM
I had this same problem for 2 years and researched it online because my doctors always said it was either the Fibromyalgia or the Scleroderma and always said there was nothing they could do. When I did the research fro the elbow pain the first thing that came up was tendonitis. Tendonitis is associated with Scleroderma. I told my doctor and he did an xray and found it. Normally an xray will not show tendonitis, you have to get an MRI, but I guess it was bad enough that it showed. Anyway I started therapy and just got a cortisone shot last week and my elbow feels 90% better. I hope this helps you.
Posted 24 November 2008 - 03:20 AM
Thank you from the information. I am going to look it up and talk to my doctor about it. It does make sense.
Posted 31 March 2009 - 07:12 AM
Just had another few days of doctor visits - first with my primary physician, a wonderful and caring doctor - to investigate years' symptoms of carpal tunnel-like numbness - mostly on awakening, one hand or the other will be half numb, on the right it's always the thumb and first 2 or 3 fingers, but on the left it's just as often on the pinky side of my hand into the pinky. Over the years, the right hand especially is progressively having more daytime episodes as well, falls asleep during writing, driving, holding a cup, etc. The last month I've lost a lot of sensitivity in my fingertips and I'm frequently dropping things. I've gotten numbness in my feet often for the past few months too. I'm also having new symptoms of Raynaud's over the past couple of months.
My doctor sent me for nerve conduction tests and an EMG on the forearms, told me it could be carpal tunnel or neuropathy from the sclero, he suspects it is a combination of both. He said we'd talk after the tests, as surgery may only partially solve the problem, and we'd need to discuss the options with the rheumatologist.
Had the tests done yesterday and are abnormal, the doctor who ran the tests said I definitely had carpal tunnel, right much more than left. When I asked if any of the symptoms or test abnormalities could be due to the sclero, he sarcastically asked who told me I had scleroderma, he didn't see any sign of it! (This after having to soak my hands in warm water for 15 minutes before the testing because he told me my hands were too cold to do the tests!) When I gave him the name of my rheumatologist (a well known expert locally) he backed off on the sarcasm, but repeated that I have carpal tunnel syndrome.
Am trying to wait patiently for my primary to call, but you know how that is!
My questions - do the tests reveal whether it's purely carpal tunnel, I.e, can it distinguish between that and of neuropathy? For those of you with scleroderma who've had carpal tunnel surgery, did you get complete or only partial relief from the numbness? I'd hate to have another surgery only to have disappointing results!
Will let you know what my primary says,
Posted 01 April 2009 - 04:16 AM
I always get a kick out of doctors that say "you have no signs of scleroderma!" Except for my beautiful mouth area, I have no signs of sclero, but I definitely have it. You did good in giving him the name of your rheumatologist. Way to stand up to the guy!
The symptoms that you described were the same I had when I was diagnosed with carpal. Fortunately, I tried wearing the wrist braces before consenting to surgery. I wore the braces religiously for several months and they did the trick. My right hands falls asleep every once in a while during the night, but that's it. Nothing I can't live with. If you haven't tried the wrist braces, I would give that a try before surgery.
As far as the EMG being able to diagnosis for neuropathy as well, I have no idea. I did find the following abstract on our vasculitis page. Raynaud's is a type of peripheral vasculitis, so this could be relevant to your condition (but I am no doctor, so that is just a guess).
Diagnosis and therapy of vasculitic neuropathy. Consensus statement of the German Centers for Neuromuscular Disease.
Let us know what you decide! I hope you get some relief soon.
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Posted 01 April 2009 - 06:17 AM
I hope this is of some help.
Posted 01 April 2009 - 06:45 AM
My experience mirrors Janey's. Not much visible from the outside, but my rheumatologist has no doubt about what I've got either. When another doctor made a similar comment to what you heard, my rheumatologist said she should stick to her specialty and leave his alone.
I get the numbness in both hands. The doctor who ran my tests suggested trying the braces, knowing I was unlikely to agree to surgery. No improvement. No surgery, either!
The National Institutes of Health's National Institute of Neurological Disorders and Stroke have a good Carpal Tunnel Syndrome Fact Sheet that might be helpful to you. It details the steps necessary to achieve a diagnosis, types of surgery performed along with risks and outcomes, and alternatives to surgery, etc.
Good luck and best wishes,
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