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Pain in Jaw


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#1 berrydahl

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Posted 21 November 2008 - 04:42 PM

Hi All,

I am still learning about scleroderma and the things that can be affected. I have had my feet hurt and swell to the point that I could only wear slippers. Then the joint pain moved its way up to knees and elbows. It seems to have settled in my hands mostly however. How long does it last, the pain and swelling?

I was wondering if anyone has experienced a deep, aching pain in their jaws just below the temples? I feel like someone has socked me in the jaw and dislocated it. Is this related to the rest of my aches, or have I been talking too much? :unsure:

I wouldn't have associated most of my symptoms to scleroderma if it weren't for you all and your wealth of knowledge. My doctor doesn't tell me much I think for fear of scaring me.

Thanks
Connie

#2 gigi08

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Posted 21 November 2008 - 06:33 PM

Hi Connie,
I am also still learning about scleroderma and I have learned from this forum that I'm not the only one suffering from some of the things that I suffer from. I'm like you, my Doctor hasn't told me a whole lot of what to expect except the basics. I was diagnosed in May but the doctor. didn't tell me what kind I had, just that I had scleroderma.
I do have swelling in the feet but doesn't sound as bad as yours. I have joint pain in the knees but I have the pain worse in my hands and wrist. My fingers are really swollen and the first joint is getting uglier and uglier. I am on 1600 - 2400 mgs. of ibruprophen for the pain and also plaquenil.
I don't have jaw pain but have noticed pain to touch areas on my face and mouth starting to hurt more.
I'm like you, I don't know if everything is related to the scleroderma or something else.
Will be anxious to hear what everyone else has to say.
Gigi
Gigi08

#3 canon

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Posted 21 November 2008 - 06:56 PM

Hi Connie,

Welcome to the group. Sorry you are feeling pain. Scleroderma can present itself in different ways although you'll usually find someone here who has gone through something similar to what you are experiencing.

My feet hurt from skin tightening, swelling, and Raynaud's's plus non sclero things. Painful joints were one of the first symptoms I had and still have but not everyday but alot. My hands are filled with Raynaud's's, swelling, skin tihgtening, itchiness, sometimes calcific ulcers and pain. This year has been the worst. My face doesn't hurt yet but there is skin tightening around my eyes and the eyes hurt. Keep talking to exercise your mouth. You do have the sclero exercises?? If not let me know. You can PM me and I'll let you know where to find them. Actually just type in the internet search box for scleroderma exercises and the site should come up.

Hope this does not scare you. I found not knowing can be more frightening than knowing. Take care and glad you found us.

With gentle thoughts,

Judy
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#4 Purr

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Posted 22 November 2008 - 01:49 AM

Hi Berrydahl,

You might try looking up TMJ on one the medical sites. It's has to do with the jaw and can be caused (or worsened) by scleroderma. I have it and where a 'retainer' (?) to ease the clenching and pain.

Christy
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#5 Peggy

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Posted 22 November 2008 - 05:35 AM

Before I was diagnosed with sclero I had horrific jaw pain that was then diagnosed as shingles. You may want to keep an eye on it and see if that is what it may be. Shingles is another autoimmune and can hit 4 different areas or quadrants of the body. Mine was in the cranial/head part so it affected my jaw and it was really painful. It's just a thought.............

Warm hugs,

Peggy

#6 shennen0820

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Posted 22 November 2008 - 06:24 AM

I also have TMJ...remember that our jaws also have joints and just like elbows/knees are affected so are the joints of our jaws...Try to stick to a soft diet...like mashed pototoes, macaroni...stuff that is easy to chew...until it settles down. It seems to come and go for me and when it flares I try to stay on the soft diet until it settles and it usually seems to help...good luck
Shennen

#7 Purr

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Posted 22 November 2008 - 08:35 AM

Oops! I wear a retainer, not where a retainer. Going to be one of those days............ :lol:

Christy
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#8 berrydahl

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Posted 22 November 2008 - 11:18 AM

Wow,
Thanks to everyone for their input! Soft foods, funny that never occured to me... lol

Judy- I had no idea that there were exercises for scleroderma. I will go find that site. With the loss of movement I have been experiencing in my hands, I was wondering if there might be something I could do to improve that. Thank you!

Gigi- Your stituation sounds almost parallel to what I have been experiencing. I'm taking naproxen and vicodine for the pain and swelling. Also prednisone which I am seeing here might not be so good to do. Are you having a lot of Raynaud's's too? Hope you feel better soon. :)

Hope you all have a warm and happy weekend

Connie

#9 gigi08

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Posted 22 November 2008 - 04:44 PM

Hi Connie,
I do have Raynaud's and it is getting worse every year. I can't stand the cold. My fingers and toes turn blue (used to turn just white) and takes forever for them to go back to normal. I sleep everynight with my heated blanket on warm and I have a warming throw which I love. I can't stand to wear gloves but am learning that I have no choice.
Since I was diagnosed with sclero (May) I have been on Methotrexate 2.5 mg 5 tablets one time a week, prednisone 10 mg once a day, mobic 15 mg. once a day, and pain medication. None of these seemed to work for me so that is why I'm on the ibruprophen right now and the plaquenil. The doctor. was trying to get the swelling in my hands down and to help with pain. If I could get rid of the pain in the hands and the ugly hands, I could deal with this right now.
I haven't felt like doing any exercise regiment and I used to do a lot of walking. Yesterday I saw my endocrinologist and he told me that I eat healthy, I just need to get exercise in and to shoot for 30 minutes a day. I know I need to get moving, so today I did for 15 minutes. A step in the right direction.
My doctor. did say that using the squeeze balls for the hands was good, but it seems to make mine worse.

Stay warm!
Gigi
Gigi08

#10 mlp

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Posted 12 December 2008 - 02:00 PM

My wife has had sclero for fifteen years and recently has experienced alot of difficulty with her lungs and decreased lung capacity. Reading everyone's comments the best thing I can say is to make sure you have a doctor who specializes in scleroderma. You do not need anyone else treating this serious disease and monitoring your issues. The best thing I ever did for my wife was making her an appointment with a scleroderma professional and she tells me thanks all the time as she absolutely loves him and so do I.

#11 Sheryl

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Posted 12 December 2008 - 02:24 PM

Welcome mlp to ISN forums. Sorry to hear that your wife has had scleroderma for 15 years. I am sure she is very happy you found her a doctor with great knowledge of scleroderma. Tell us more about your wife's illness and how you cope or help her deal with all the issues that arrise. What has her doctor been doing to help with the lung issues at present?
Strength and Warmth,
Sheryl

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