Jump to content

Hang onto your hat: Sclero Forums Upgrade May 14-21, 2017!! The Forums will be offline for up to 4 days, and then will return with an entirely new look and feel.


New Feeding Tube

  • Please log in to reply
29 replies to this topic

#21 Margaret


    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,014 posts
  • Location:Pennsylvania

Posted 06 December 2008 - 01:15 PM

Hi Barb ,

So glad to hear that you are doing OK. I am glad they sedated you.

Take care, Everyone.

#22 Peggy


    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 633 posts
  • Location:Minnesota

Posted 06 December 2008 - 02:19 PM

I am so glad you are done with this and I so hope it works for you! I know what you went through to find your veins. Mine are the same way and that's why I'm so glad I had a port put in. It got to the point where they had to call in the anesthesiologist to put it in.

I so hope that this works for you!

Warm hugs,


#23 lonetalisman



  • Members
  • Pip
  • 3 posts

Posted 06 December 2008 - 02:39 PM


Of Course Happy times ahead!! Everyday is a challenge, but! it's a day of wonder, family, friends, and the beauty of nature!!!

#24 lonetalisman



  • Members
  • Pip
  • 3 posts

Posted 06 December 2008 - 03:53 PM

Courage, Courage, Courage always.............be glad it's over and now on to a brand new day!

#25 Buttons


    Senior Silver Member

  • Members
  • PipPipPipPipPipPip
  • 606 posts
  • Location:UK

Posted 07 December 2008 - 04:18 AM

I'm so glad that they've managed too get the tube changed under sedation. I had a colonoscopy a month ago and they sedated me, I felt awake while they did it but no pain then after I slept for a few hours and don't really remember what they did.

Take Care


#26 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,624 posts
  • Location:(United States)

Posted 07 December 2008 - 05:07 PM

I'm so, so sorry to read o the problems you had with getting your veins "invaded" Can't they put a "deal" in so they don't have to do this continuously? What I mean is, if they need to get into a vein, can't they put a "port" or something in so they don't have to trouble your veins?

Just hope they can make it easier for you, my friend.

Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#27 canon


    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 312 posts

Posted 07 December 2008 - 07:02 PM


So glad you are back from the ordeal you had to endure and back to your old self.

With gentle thoughts,

A happy heart is good medicine.

#28 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,283 posts
  • Location:Minnesota

Posted 10 December 2008 - 07:31 AM

Hi Barbs,

I'm glad you have your new feeding tube and are back home recovering now. How often, in general, do feeding tubes need to be replaced?
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#29 barefut


    Platinum Member

  • Bloggers
  • PipPipPipPipPipPipPipPipPipPip
  • 1,158 posts
  • Location:NW Washington

Posted 10 December 2008 - 09:29 PM

Hey there Barbs,

Well I am glad you were sedated after all! But sorry it was such an ordeal getting you to that point. Don't you just love that wonderful deep sleep? After my laporoscopy for endometriosis, I was so mad that they woke me up and made me go home! :lol:

Stay warm!
Love and hugs to you,

#30 CFMBabs


    Silver Member

  • Topic Starter
  • Bloggers
  • PipPipPipPip
  • 178 posts
  • Location:England

Posted 11 December 2008 - 04:30 AM

I'm much better now! Thanks for all your posts.

Feeding tubes last roughly 12-- 18 months -- mine was almost 2 years old. I guess it's my fault for not complaining that it was getting more difficult to use and since they hate my veins, they try and leave it as long as possible!

I may inquire at my next rheumatology appointment (19th December) about a port. If my tube needs to be changed more regularly then this may be an answer! Although by what the doctor said, it's only a last resort and unnecessary if I'm not on regular medication, so I don't know what to think actually?

Sometimes I think the probing for veins bit is worse than the actual procedure. It took over an hour, several different people and finally a sonographer to get my cannula in, surely the expense of a port would be far cheaper than the services of many staff for little old me!

Best wishes as always.

Barbs xxx