Jump to content


Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!


Photo

What a week!


  • Please log in to reply
34 replies to this topic

#1 LisaBulman

LisaBulman

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,135 posts
  • Location:Massachusetts

Posted 03 December 2008 - 01:32 PM

On Monday I was back at the ENT for another visit. You see about a month ago I had a blocked saliva duct under my tongue on the right side. Well I let it go because it was draining on it's own for a few weeks. Well the time came where it was so big, it was painful and I could barely put my tongue down. I called for an appointment but couldn't get in for over a week. I took drastic measures (do not try this at home) and popped it myself with a pin. It drained and I had relief for a day then it filled back up again. I went to the ENT and she removed a HUGE piece of tissue from under my tongue. There was a hole the size of a grape! I was pretty fascinated with it until the novacaine wore off and I was in extreme pain! This worked great. For two weeks my saliva ducts worked great and the saliva floooowed. Last Wednesday it was back!!! Are you kidding me?! On Monday I went to the ENT. She again cut out a piece (not as big) and stitched the area open with four stitches. Have you ever had stitches under your tongue? Very uncomfortable. I go back on Monday for a recheck.

At 12:45 today I get a call from the school nurse. She proceeded to tell me Grace hurt herself in gym. She slipped and her leg went under the bleachers and she had a bad gash on her leg that really needed to be looked at. I went to the school, called the doctors and was told to come right in. I pay my $20 copay and they take us back to a "surgical room". We had never visited this room before. She takes off the bandage from the nurse and oh boy.... She had a wound about 1/2 inch wide and long. The skin was gone and you could see the tissue inside her leg!!! UUUGGHHH..It was gross!!! Mind you it was on her shin. 5 stitches later we were on our way home. She was so brave. Now I am exhausted and ready for bed.

This stuff just drains me!

Hugs,
Lisa
Lisa Bulman
(Retired) ISN/SCTC List Coordinator
(Retired) ISN Sclero Forums Assistant Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Fundraiser
International Scleroderma Network (ISN)

#2 Margaret

Margaret

    Senior Gold Member

  • Members
  • PipPipPipPipPipPipPipPip
  • 996 posts
  • Location:Pennsylvania

Posted 03 December 2008 - 02:48 PM

Hi Lisa ,

Your mouth issues sound sooooooooooooo painful!!! Is that sclero related.......blocked saliva ducts? I will keep you in my thoughts.

Take care, Everyone.
Margaret

#3 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,261 posts
  • Location:Minnesota

Posted 03 December 2008 - 02:53 PM

Hi Lisa,

Oh my goodness!! I'm so sorry that you have so much to cope with. I sure hope your saliva duct is under control now; I've had horrible problems with parotid glands and it is extremely painful. Not good stuff. I really hope it is done now!

Please give Grace an extra warm hug from me. You both need some real TLC now...do I see you all plopped in a heap, watching some good movies? I sure hope so...you need a rest!!
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#4 Snowbird

Snowbird

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,008 posts
  • Location:Canada

Posted 03 December 2008 - 03:18 PM

Hi Lisa

Sorry to hear you've had such a painful go of it!! I hope you both recover quickly! :)
Sending good wishes your way!

#5 canon

canon

    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 312 posts

Posted 03 December 2008 - 03:29 PM

Lisa,

So sorry you and your daughter have gone through some painful times. Hope you are on the road to recovery. Stay away from home surgical treatments. It reminds me of a Nurse I know. Take care.

With gentle thoughts,

Judy
A happy heart is good medicine.

#6 janey

janey

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 2,118 posts
  • Location:New Mexico

Posted 03 December 2008 - 04:03 PM

Lisa, Lisa, Lisa!
You did not need this! It must have been painful to take a pin to it yourself. Bravery or desperation? Please take some time for yourself. You've had a very rough year and you deserve some me time on a warm beach with someone else at your beckon call.

Once again, Grace just shows how much of her mother she has in her.

Big, big hugs to you both,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)

#7 susie54

susie54

    Silver Member

  • Members
  • PipPipPipPip
  • 259 posts

Posted 03 December 2008 - 04:28 PM

Lisa,

This is the last thing you needed. What awful pain you went under for your tongue.And I am so glad your daughter came out ok. SO REST NOW!! And tell everyone around to take it easy and stay well for the holidays. They are enough to handle without anything else. Take care. Susie54

#8 barefut

barefut

    Platinum Member

  • Bloggers
  • PipPipPipPipPipPipPipPipPipPip
  • 1,159 posts
  • Location:NW Washington

Posted 03 December 2008 - 08:11 PM

Oh man Lisa, I can only imagine.....!!! How do you eat? What do you eat?

I am so sorry about Grace! OUCH! Sounds like she is a trooper though. I had my oldest into ER lastnight. He unjured his neck at basketball practice. All is ok - just a sprain. Kids! AGH!

Hang in there!

#9 nan

nan

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 649 posts

Posted 04 December 2008 - 02:43 AM

Lisa,
You must have Sjogren's too! I can't imagine the pain you are in.. I hate when anything is wrong with my mouth. Your poor child!!!!!!!!!!!! It is exhausting to have a day like that. I don't think people understand what days like this do to our bodies. Please take care of yourself and your precious child.
Hugs to you!
Nan

#10 Sam

Sam

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 640 posts
  • Location:Delta, Ohio

Posted 04 December 2008 - 04:25 AM

Lisa, wow that had to be awful, I hope it doesn't come back again. I have never heard of such a thing. I am glad your daughter wasn't hurt more than she was. I remember doing that too when I was in school. That hurt.. Well take care and keep us updated. sam
Sam

#11 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,638 posts
  • Location:(United States)

Posted 04 December 2008 - 05:26 AM

Hey Lisa~,

Wow...Ouch...wow :blink: !!!

Why stop at Chicago on your way to New York?! You poor things!

I hope that all you've been through is now going to heal and work without any more need to visit the doctor on this, Lis.

OUCH...the shinbone...ouch! And stitiches too...ouch! :o

Take care of yourselves and each other, K?

Loving Hugs,
Susie
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#12 Sweet

Sweet

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,890 posts

Posted 04 December 2008 - 11:19 AM

Oh Lisa, goodness.

I'm exhausted just thinking about it. I don't know how you do all the things you do. You are a terrific inspiration!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#13 LisaBulman

LisaBulman

    Platinum Member

  • Topic Starter
  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,135 posts
  • Location:Massachusetts

Posted 05 December 2008 - 04:54 AM

Was starting to recover or feel somewhat normal when....

My brother called to say my sis in law was having contractions (only 30 weeks right now) and they were off to the hospital. He asked if I could get my niece for them. She is 2 and a doll. So needless to say I had an extra for a sleepover last night. Good news, no labor. Bad news, bed rest. So I have this little one most of the day. :) Good thing she keeps herself occupied.

I need a vacation!

Hugs,
Lisa

PS Janey...pure desperation!!
Lisa Bulman
(Retired) ISN/SCTC List Coordinator
(Retired) ISN Sclero Forums Assistant Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Fundraiser
International Scleroderma Network (ISN)

#14 jefa

jefa

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,325 posts
  • Location:Scotland

Posted 05 December 2008 - 07:05 AM

It sounds like absolute misery, but I am glad things are working out. I hope Grace is feeling better, too. As for spending the night with an extra family member, it all sounds very exciting (if not exhausting). I love the way your extended family rallies round for one another in times of need. You are very lucky and so are they to have you.
Warm wishes,
Jefa

Carrie Maddoux
(Retired)ISN Sclero Forums Support Specialist
(Retired)ISN Sclero Forums UK Chat Host

International Scleroderma Network (ISN)

#15 Peggy

Peggy

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 635 posts
  • Location:Minnesota

Posted 06 December 2008 - 08:09 AM

I just wanted to send a short note and say that I hope your stitches aren't as bothersome anymore and that you are on your way to healing. Your experience sounds terrible and I can't imagine going through that.

I hope your life calms down for you and that you are able to get some rest. I'm thinking of you.

Warm hugs,

Peggy

#16 LisaBulman

LisaBulman

    Platinum Member

  • Topic Starter
  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,135 posts
  • Location:Massachusetts

Posted 09 December 2008 - 08:12 AM

I went back to the ENT first thing yesterday morning and she said everything looked great. It felt great and the stitches were already gone. Things were fabulous!

I had a dream last night, well we'll call it a nightmare. I dreamt that it came back and it was huge! I remember jumping up and feeling if it was there. It wasn't, I was relieved so back to sleep I went.

This morning, I did my usual, get the kids to school, laundry, clean up etc... I decided to go out to do a bit more shopping. As I was driving in the car I got a really weird feeling. I felt under my tongue and there was a hard little ball. OH NO!!! It really is coming back!! I went ahead with shopping all the while I could feel it growing. I put a call into my doctor and I am waiting for a call back. It is growing by the minute and it hurts because she removed so much tissue from underneath it can't stretch. BOO HOO!!!

Hugs,
Lisa

PS Has this ever happened to anyone??
Lisa Bulman
(Retired) ISN/SCTC List Coordinator
(Retired) ISN Sclero Forums Assistant Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Fundraiser
International Scleroderma Network (ISN)

#17 Purr

Purr

    Silver Member

  • Members
  • PipPipPipPip
  • 264 posts
  • Location:Kokomo IN

Posted 09 December 2008 - 08:29 AM

Oh Lisa! I can't even imagine what that must be like! I'm so sorry you are having so much trouble. :( Isn't there something else the doctor can do besides just cut it out when it happens??? :huh:

Hugs,
Christy
Love makes the world go around!

#18 Margaret

Margaret

    Senior Gold Member

  • Members
  • PipPipPipPipPipPipPipPip
  • 996 posts
  • Location:Pennsylvania

Posted 09 December 2008 - 08:47 AM

Oh, Lisa.....that sounds so painful. Maybe it's just filled in with infection or blood. I don't know but I will keep you in my thoughts.

Take care, Everyone.
Margaret

#19 nan

nan

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 649 posts

Posted 09 December 2008 - 08:55 AM

Lisa,
I am so sorry for what is happening with you. I have Sjogren's, but I have never had the problem you are having. That is the pits!!!!!!!!!!!!!!!!!!!!!!!
My thoughts are with you.
Nan

#20 JJ-Knitter

JJ-Knitter

    Silver Member

  • Members
  • PipPipPipPip
  • 105 posts

Posted 09 December 2008 - 10:37 AM

Oh my! I'm not sure whether your trauma or Grace's made me wince more!! Deary me~ Brave, brave ladies, the pair of you. Hope everything heals up properly for you both.

Hugs and a virtual cup of hot chocolate (would that help? You can have marshmallows and/or whipped cream on top...),
JJ