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What a week!


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34 replies to this topic

#21 janey

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Posted 09 December 2008 - 11:02 AM

Lisa,
I'm surprised you actually get any sleep, especially REM! :) So is this mind over matter working the wrong way. You suppose to have good dreams for this to work, not nightmares!

How freaky! I can't imagine something growing that fast inside my body. I hope your doctor can get to you right away!

UGH!
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#22 Peggy

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Posted 09 December 2008 - 12:19 PM

This has to be terrible. There has to be a reason that this keeps happening and something should be able to be done to prevent it from keeping on happening. I hope you get to where it quits and you are free of this going on and on. I hate that you are having to go through this!

Warm hugs,

Peggy

#23 LisaBulman

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Posted 09 December 2008 - 01:22 PM

Thanks everyone, especially for the hot chocolate JJ! YUMMY!! It is definitely not an infection because it was biopsied and sent to the lab. There is no blood either...just saliva.

I called my doctor and she has ordered a CAT scan for me. I will be going Thursday evening. She is going to be checking the glands to try to figure this out. My last visit with her she mentioned taking out the gland all together. I am a bit nervous about that. We'll have to see what the results of the scan will be. As the day went on it got bigger and bigger and really started to hurt. About 5:30 I was talking to a friend and it popped! I now have a little relief until it fills back up tomorrow. :(

I really don't have any time for this nonsense!! Nothing will be done before the holiday's because I have two little one's and I would like to enjoy the season. In January I am scheduled to go to Disney with Emma (my 10 yr old) with her dance company. She'll be dancing there. So now I am into the third week in January. UUGGHH!!

I'll keep you posted!

Hugs,
Lisa
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#24 Shelley Ensz

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Posted 09 December 2008 - 04:35 PM

Hi Lisa,

Oh yeowch! Well hopefully the CT scan will show something that can be treated without removing the gland. If it's treatable you might want to consider doing it immediately as you might be back on your feet, and enjoying the holidays and upcoming trip, in no time flat.

I can tell you from firsthand experience that you do not want to let salivary gland issues linger any longer than you have to! Once they get infected, then you can have truly major issues on your hands especially if it is an antibiotic resistant infection. But who knows, with any luck it might go away completely before you have the CT!

See, I know how to dream, don't I?
Warm Hugs,

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#25 LisaBulman

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Posted 10 December 2008 - 03:46 AM

Well for now it is gone or should I say "deflated". I was in the middle of a conversation last night and "POP"! It burst open and all of the backed up saliva came pouring into my mouth. I guess I did a pretty good job of covering it up because no one said a thing. In a day or two it will be filled again.... hopefully the ct scan will show some easy fix it.

Hugs,
Lisa
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#26 LisaBulman

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Posted 15 December 2008 - 12:11 PM

Had my ct scan and just spoke to my ent. She is just as baffled as I am as to why it keeps coming back. CT scan showed no abnormalities..good... but I still have this thing in my mouth!

I am going back in the office on Thursday for her to cut it out and stitch it open (again) to hopefully get me through the holiday's. She said "I don't think it is going to work because your mouth heals very quickly, but we'll give it a shot before we take you in for surgery." UUGGHHHH She wants to remove the gland so I don't have to deal with this anymore. She said they will cut me under my chin and go in that way... ouch! I'll get more details on Thursday. :(

Hugs,
Lisa
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#27 Shelley Ensz

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Posted 15 December 2008 - 12:39 PM

Hi Lisa,

Obviously, the problem is that your saliva gland failed to read the textbook on how it is supposed to appear on the CT scan in order to properly display the problem it is having. So, what we should do is educate your saliva gland! Perhaps you could try showing it pictures of proper and improper saliva glands before its next test, so it can get a more accurate reading?

Maybe they will figure out more when they go in to drain it. But yipes, ouch, owie...my thoughts are with you on Thursday.
Warm Hugs,

Shelley Ensz
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The most important thing in the world to know about scleroderma is sclero.org.

#28 jefa

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Posted 15 December 2008 - 01:11 PM

Body parts are like kids -- they never do what they are supposed to at the doctor's.
Warm wishes,
Jefa

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#29 Margaret

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Posted 15 December 2008 - 01:31 PM

Shelley ,

Thanks for the giggles tonight!!! Lisa, sorry it's at your expense!!! I sure hope they can find the problem and get it resolved.

Take care, Everyone.
Margaret

#30 LisaBulman

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Posted 16 December 2008 - 12:55 PM

Shelley...too funny and thanks for the laugh!

Jefa.. you are absolutely correct!!!

I am having a cram session right now with my gland instructing it on what to do at the visit on Thursday. Hopefully it is listening...and it doesn't have those "mommy deaf ears" on. You know the one's... the ears that only hear the tv and NOTHING else around it! "Huh, what did you say?"

Hugs,
Lisa
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#31 canon

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Posted 16 December 2008 - 05:57 PM

Lisa,

Good luck on Thursday and will keep you in my thoughts. You poor thing. This sclero really baffles everybody and always presents very strange symptoms which end up being very painful but what do they say, it's treatable. Hope it does not come back after Thurday. Take care Lisa.

With gentle thoughts,

Judy
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#32 LisaBulman

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Posted 19 December 2008 - 03:28 AM

It wasn't so bad. Four more stitches under my tongue. The good news is I think this might actually take care of the issue. She found the end of the duct and cut along the tube of it and stitched it open with4 stitches. She was able to open the duct and hopefully clear it out. Fingers crossed!!! I really don't want surgery.

On another note, I seem to have attracted some kind of bug and I feel miserable! I am going to buckle down for the foot of snow we are going to receive today!

Hugs,
Lisa
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#33 gigi08

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Posted 19 December 2008 - 04:17 AM

Lisa,

That sounds very painful to me. It makes my mouth hurt. Are you able to eat? Hopefully it will heal fast and all will be well.

Gigi
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#34 Margaret

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Posted 19 December 2008 - 04:34 AM

Hi Lisa ,

So glad to hear that the surgery went OK. I take it you were asleep for this or did she just numb the area? We have the sleet, freezing rain, snow combo today. We're not going anywhere, either!!!

Take care, Everyone.
Margaret

#35 LisaBulman

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Posted 19 December 2008 - 09:03 AM

Hi,
I feel better but it is difficult to eat. right now it is just soft things...

Margaret, she just numbed the area. I leave immediately after my appointment and by the time I get home, 25 min later, it starts to wear off. I take a pain pill and swish my mouth with liquid viscous lidocaine for relief.

The snow has started....

Hugs,
Lisa
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