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Are There Stages Of Raynaud's?


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#1 Sarahp

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Posted 05 January 2007 - 03:58 AM

I have read case studies where the progression of Raynaud's is rated in stages from 1-4. One being the least involvement and 4 being gangrene which could lead to amputation.

Does anyone know who established these 4 criteria and exactly what each stage characterizes? Do doctors use these stages to rate the progression of your disease? My doctors never have.

Sarah

#2 janey

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Posted 05 January 2007 - 04:56 AM

Sarah,
I found the Stockholm Workshop Classification (also known as the Tayler-Pelmear Scale) through one of ISN's partner (SD World). This Canadian Centre for Occupational Health and Safety (CCOHS) site rates Raynaud's on a scale from 0 to 4.


Stage Grade Description
0 -- No attacks
1 Mild Occasional attacks affecting the tips of one or more fingers
2 Moderate Occasional attacks affecting the tips and middle sections of the fingers (rarely the base of the fingers) on one or more fingers
3 Severe Frequent attacks affecting the entire length of most fingers
4 Very Severe As in stage 3, with damaged skin and possible gangrene in the finger tips

My doctor has never referred to it. He just keeps track on how I'm handling it and if it's getting worse or better. This winter it's been a lot better - no attacks thus far even with the temperatures in the single digits this week! Of course I'm taking Bosentan for my PH and it has also been proven to help with Raynaud's. Well it does!
Janey Willis
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#3 Sarahp

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Posted 05 January 2007 - 03:21 PM

Janey

Thanks for finding this. This is exactly what I was looking for. I have never heard of a rheumatologist using this scale. Mine always wrote down my symptoms.

Glad to hear the Bosentan helps. Yes, this mild winter weather has been great.

Hugs,
Sarah