Eosinophilic Fasciitis - White Blotches
Posted 10 December 2008 - 11:55 AM
Afterwards I began Physical Therapy and focused on regaining some of the loss in range of motion. I declined the use of medications my Rheumatologist offered since my Eosinophil Count had since returned to normal and my condition was stable at the time. In time, the pain subsided and my range of motion greatly improved in my legs. I felt as though I was well on my was to full recovery. However, a few months ago my right hand began throbbing. Shortly after, I began noticing white blotches appearing on my right arm. The blotches go from the back of my right hand up to my right shoulder and travel in a straight line. The pain in my hand is constant and I can barely squeeze my hand. A few months ago I began taking Methotrexate 25mg 1 time a week. My condition has not improved and the white blotches are beginning to take on the "orange peel" appearance. I would appreciate any advice anyone can offer who may have experienced these conditions.
Thanks for listening,
Posted 10 December 2008 - 01:23 PM
Firstly welcome to this forum! You will find support and understanding because even if someone is not familiar with your illness, I am not, we are all familiar with living with an illness that has fundamentally restructured the way we live our lives.
I have actually heard of faciitis as I was diagnosed with this but not EF so I googled it for some info and it sounds unpleasant and well painful. I found nothing about the white blotches so can't actually help with the crux of your query, sorry.
Needless to say there is info on this site about EF on the home page, under medical, under skin diseases where there are personal stories about others with your condition, it may be worth reading their experience if you haven't already.
No doubt someone will chime in with better info for you. Just remember you're one of us now so we expect updates etc!
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Posted 25 March 2009 - 03:19 PM
I too have Eosinophilic Fasciitis. It was just about 2 years ago that my symptoms started to appear. I never experienced the white blotches. My symptoms started out as tingling and numbness in my hands. Initially I thought I was looking at carpal tunnel syndrome.
I'm currently rather plateaued in my recovery. I'm much better than I was when I was at my worst, (15 months ago) but can't seem to make it go away.
Posted 25 March 2009 - 04:47 PM
The page on Eosinophilic Fasciitis that Amanda mentioned is here. In one of the articles on Eosinophilic Fasciitis, it states the vitiligo has been reported in EF. This would be the white patches you mention, I believe, but of course your doctor would be the person to confirm this.
Are you being closely followed by your rheumatologist, Aaron? This may sound like a 'duh' question , but have you told him the Methotrexate doesn't seem to be helping? Sometimes a medication will need to be tweaked or even replaced.
Wishing you both all the best,
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Posted 26 March 2009 - 01:02 AM
I'm sorry you are experiencing more symptoms to deal with. Everyone here is great though & if anyone has any ideas I know they'll chime in like ohboyoklahoma mentioned!
I do not have EF, but as far as I know, it does cause the orange peel skin & it also can cause the vitiligo (loss of pigment) & can cause claw-like hands (I don't know if your hands are doing that, but maybe that is part of the pain & stiffening?) or maybe carpel-tunnel syndrome (also part of Eosinophilic Fascitis). Anyway, and I also read that eosinophilia "resolves promptly" after treatment with prednisone.
I am not a doctor, but I am in school & I read a lot of medical journals. I looked to see if this information is on this website, it is. Once you get to the EF page, scroll down to the links under "Scleroderma & Eosinophilic Fascitis". It is the second link there says the same things. I hope this helps some, it sounds like you have a good primary care physician that cares, that's good!
Posted 02 December 2009 - 12:31 AM