Posted 12 December 2008 - 09:33 AM
I wanted to ask you all if my response to my physiotherapy session is normal. I have very little use of my left hand and my right hand /fingers are curling so bad I can neither straighten my fingers or make a fist so I went to a physiotherapist to try save my right hand from any more curling. He stretched my tendons, he pulled and pulled on my fingers. The pain was quite bad. He worked on the tendons right up to my elbow. Now today, the day after, my whole right arm/hand/fingers are wretched with pain and my fingers are so swollen like little fat sausages. They are so fat and throbbing and hot, I am having trouble moving them. Is this normal? Will this swelling go down? I don't know what to think here, as my fingers and fist are definitely worse than before I had this treatment. Should I continue with this treatment or is swelling and pain a normal response to tendon stretching? I look forward to reading about anyone else's experience with tendon stretching.
Posted 12 December 2008 - 09:52 AM
I am so sorry Love - it sounds miserable. I would think with all of that work on your hands and arm, that it would be normal to hurt that much. My thought however is that he may have worked it too hard. In upcoming appointments I would probably ask him to take it a bit easier. The saying of "no pain no gain" is silly.
Posted 12 December 2008 - 11:10 AM
I use a sports physio who is a personal friend and after she's done my calves they are bruised and if she does my shoulders they are tender for days so much so that I need pain relief BUT she warns me first. I know exactly when it's going to hurt during and after.
I think the after effects could be normal but your guy should have told you what to expect and should communicate with you whilst doing the physio. Having said that there's no way of getting around the fact that physio is painful during and after.
Hope this helps.
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Posted 12 December 2008 - 08:00 PM
Sorry you are going through so much. Can you call the person who treated you and ask him if what happened was a normal reaction? The tendons in my wrists get pretty tight and painful and I stretch them my self but I do stop when it gets too painful. The rheumatologist did a similar thing at one of my appointments. My feet were very swollen and she said it was from the scleroderma. She worked on my feet for awhile like she was kneading bread and it hurt so much I felt sick. She mentioned something about the tissue adhering to other parts of my foot. A little while later the pain subsided but the swelling did go down for awhile and then came back in a few days. Have not read anywhere about treatment options for many of the problems we have that crop up. It sounds like PT and doctors just wing it sometimes. Georgette I hope you feel better soon.
With gentle thoughts,
Posted 12 December 2008 - 11:51 PM
Posted 13 December 2008 - 05:12 AM
Hi Georgette, Both my hands were swollen, tight and curling in, the right hand was worse than the left and they were very painful when manipulated. I went to an occupational therapist who firstly did paraffin wax treatment on both hands, then she massaged my hands, then she did bending and straightening of all fingers and wrists. She told me to tell her if it was too painful so she could stop. I felt that was beneficial I also had night splints to wear which I confess I was not good about wearing. She also gave me some exercises and putty which I could work with at home. After having cyclophosphamide and stem cell treatment they are getting straighter and less swollen as the skin is less taught. I still will continue to work with the occupational therapist. I would tell your therapist that you cannot tolerate the same treatment he gave you which caused you problems, let him know exactly what you are feeling. Sincerest regards Sharon
Posted 13 December 2008 - 10:06 AM
Posted 14 December 2008 - 03:59 PM
Here is my situation, Both of my hands areswollen tight and curling in. My doctor is a sclero expert and she has me going twice a week to an occupational therapist (I also go to a Physio Therapist but he does the rest of my body). She has written my OT a note to be very aggressive who firstly does parrafin wax treatment on both hands to warm them up, then she bends closed and straightens all my fingers and wrists. I have tears it hurts so much but she does flatten them and close them. My doctor said that this needs to be done so when the Sclero stops being active my fingers will still be able to move - so the benefit is really not for now it is more for when the Sclero burns it's self out. I have been doing this for 2 years and I must say that my fingers only hurt for about an hour after I am finished.
First Sympton Nov/05
Posted 15 December 2008 - 12:29 AM
What you described is exactly what my physical therapist did to my hands but they are still swollen and very hard to use and its day four. I rang him today but he was not in, so I rang my doctor and told him and he said that it sounded as though the tendons have become inflamed and to splint the hand to rest it and take some naprosen, and if it was no better then I had to go see the doctor. So at the moment it is a waiting game to see how it all turns out by the end of the week .