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Acid Reflux Bad!

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#1 kelowna52


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Posted 07 January 2007 - 07:31 AM

Good morning everyone, I thought things were going okay for me but yesterday all of a sudden the burning and pain started in my stomach and esophagus and throat. I take two 40 mg. tabs of Protonix and one OTC Prilosec everyday plus another over the counter gas/heartburn medication when things are flaring up. Well, the problem was very bad all night and still bad today. I have an appointment with my Ear, Nose and throat doctor. Tues. He was the one that suggested I have the Nissen Fundoplication. If any of you have any suggestions please let me know.

Jackie S.

#2 janey


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Posted 07 January 2007 - 09:02 AM

I'm so sorry you are having such problems with the heartburn and reflux. That is no fun at all! Sounds like you are taking quite a bit of stuff, but maybe you just haven't found what works for you. I took Protonix for a couple of weeks and it did absolutely nothing for me. Ranitidine worked for a while, but it doesn't work anymore either. I keep going back to two Prilosec a day which works the best for me. I take one before breakfast and another before supper each day. As long as I stay with a low acidic diet, it works great. To suppress the nighttime reflux, I quit eating 3 hours before bedtime. That's worked pretty well.

Here's a previous thread on Heartburn Relief that you might want to take a look at. You'll find some idea in there. We also have a couple of articles and personal stories on Nissen Fundoplication. Maybe that will give you some incite into that procedure. I hope you find sometime that works for you. Please let us know if you go through with the fundoplication.

Big Hugs,

Janey Willis
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(Retired) ISN News Director
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International Scleroderma Network (ISN)

#3 Sweet


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Posted 07 January 2007 - 09:12 AM

Hi Jackie,

Oh I'm so sorry you are battling with this right now. When I am feeling good I always tell myself and my husband that I'm afraid to admit it because as soon as I do, some symptom hits me!

Janey gave you a great link. I was just going to suggest raising the head of your bed at night if you don't have it done already. We stacked ours up on blocks. It does help.
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#4 Heidi


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Posted 07 January 2007 - 09:13 AM

Hi Jackie,

I am sorry you are struggling with acid reflux so badly. Isee that Janey gave you the link to a previous discussion about it. One thing that she said that I have found really true, is that what works for one person may not work for another. I did not have any luck with Nexium, Prevacid, or Prilosec BUT have had wonderful results from aciphex. However, I do have to really watch I what I eat (fried foods, spicy foods, anything with tomato sauce are all BIG no, nos) and what I have found recently is that it often doesn't start for 4-5 hours after dinner....which means I need to eat dinner fairly early if I don't want it interfering with my sleep.

I do hope you can find some relief. Please keep us posted.

Warm wishes,

#5 CFMBabs


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Posted 07 January 2007 - 10:33 PM

I read your thread about the Nissen fundoplication procedure a short while ago and I've tried not to add my penny worth about this but now feel as though I must. I had the procedure in 2004 and although it's a very successful procedure for most it certainly wasn't for me.
Before I go on, I'd like to stress that in my case it was the wrong decision at the wrong time and the misfortunate events which followed are very rare indeed.

I suffered with hearburn and acid reflux for years, in fact 14 years! I also had episodes of choking and food sticking along with the reflux of acid. The decision was made to carry out the procedure because my esophagus was becoming so badly damaged and my quality of life so bad that it was disrupting my normal life to one of total misery and sleepless nights -- I'm sure you know the feeling!
I had all the usual pre op checks but unfortunately my heart showed a defect and the procedure was cancelled. I went through loads of different tests including an angiogram which found no grounds for not undergoing surgery so after all the results were collated, the surgeon went ahead with the Nissen, that was Aug 2004.
Directly after the procedure I noticed a total blockage when trying to swallow. I was assured that this was perfectly normal after the surgery and although I suffered no pain and had very small incisions I knew something wasn't right. What followed was to be the worst episode of my life. I continued inability to swallow, even fluids. My weight plummeted, I was a well built lady but the pounds just fell away. I had a nasal tube inserted in the hope that my esophagus would improve but after more tests they carried out a second procedure to losen the original surgery. This made me extremely ill. I was very weak due to months of malnutrition and my esophagus was so badly damaged that I couldn't stop throwing up. Finally I had the whole thing reversed along with the removal of my gall bladder which also gave me problems at the time.
To cut a long boring story short. I now have a PEG tube ( Percutaneous Endoscopic Gastromy tube) I take my nutrition through this via a portable pump.
This is my experience and not common with the procedure, What I will say is, Please ask questions about your swallowing beforehand. If your swallowing is weak, ask how this will affect the procedure. I do know that as a direct result of my experience, the hospital changed it's policy on the procedure and evaluated the qualifying criteria. They now wrap the esohagus less tightly to avoid blocking the stomach entirely.
I hope I haven't frightened you but highlighted the need to ask questions before you agree to surgery. I know people who have had the procedure carried out and they say it's changed their life for the good and it is an amazing cure for reflux.
I'm back to square one with reflux worse than ever and heartburn to match. I wish it had worked for me, it sounded like the right thing to do at the time. I have CREST.

Ask questions sweetheart -- don't go through the same nightmare as me.

My very best wishes to you.
Barbs xxx