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Vitamin D


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#1 kellyA

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Posted 02 January 2009 - 10:13 AM

I need some help here, my recent blood work came back very low on Vitamin D, so my doctor sent out a prescription for one pill once a week. Lately I cannot pickup my 4 year old she is 34 pounds, something like weak muscles, I feel so bad but I'm so afraid of dropping her if she wants me to pick her up I tell her I need to sit on a chair. I know my hands are getting worse, Raynaud's at least 5 times a day and the skin is very thick. I asked my doctor is there is something she can run to see if this is progressing and she said no.

I just joined a gym, I know I need to exercise but with working full time not to sure where I will find the time, I'm thinking of cutting back at work, I'm extremely stressed with 2 small kids and working full time, my husband owns a small business that requires him to work 6 days a week with over an hour commute -UGH!!

Sorry, just need some answers, could lack of vitamin D be doing this to me, or something else, all else looks good, red, white cells are all fine..my SED rate did go from 5 to 10 in one month does that mean anything, every joint aches even my fingers....Could it be living on the east coast with this severe cold weather..

KellyA

#2 smac0719

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Posted 02 January 2009 - 11:24 AM

kellyA,

I am sorry you are having such trouble and have such a young child to care for while dealing with your illness. I have had a couple of bouts with low Vitamin D where I too was prescribed a weekly dose that I took for several weeks. I also have problems with muscle weakness, but have not had the two occur simultaneously. My rheumatologist ordered blood work to look at my muscle functions. I think it was called a muscle enzyme test.

I had Raynaud's, but since starting Norvasc have not had as much problem. I hope you begin to feel better soon.
I may have Scleroderma, but Scleroderma doesn't have me!

#3 Looking4answers

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Posted 02 January 2009 - 12:17 PM

Hi Kelly;

Sorry to hear that you are having a difficult time.....I feel your pain...literally. I too have low vitamin D and was also perscribed the vitamin D with instruction to take once a week. At the same time I started taking vitamin C because I have absolutely none in my system. I truly believe the vitamin C is helping a lot....not so sure about the D. Today, I had an EMG done. An Emg test to see if there is nerve damage...and my goodness, did it hurt. I checked with the folks here and they said it is not to bad....but it was not pleasant. The right leg was uncomfortable but not too painful...but then he did left and hit a nerve directly that hurt! The doctor said it is a good test to do because it differentiates between nerve and muscle damage. Was not unbearable but it did hurt. However, if you gives you answers you may want to ask the doctor if that is something you should have done.'

I also live on the East Coast in NJ and I think the cold weather aggravates my legs and arms. Stay Warm!

Good Luck

#4 kellyA

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Posted 02 January 2009 - 03:13 PM

My doctor called me back after I posted this, she said that my vitamin D is most likely making me feel this way, I didn't mention that I lost my aunt to scleroderma last week and I also may have a little depression in me, my doctor told me to call her if things don't get better. She also ordered a echo of the heart just to be on the safe side.

Thanks to everyone who replied to my postings.

KellyA

#5 janey

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Posted 02 January 2009 - 03:55 PM

Kelly,
I'm so sorry to hear about your aunt. I'm certainly no doctor, but I would think that depression could cause fatigue which could cause a feeling of muscle weakness. If the weakness continues or continues to get worse, you might have those muscle enzymes checked as smac suggested. It's a simple blood test to check CPK (or CK) levels.

Again, I'm so sorry about your aunt and your fatigue. Please take care of yourself. Let us know how you are doing.

Big Hugs,
Janey Willis
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International Scleroderma Network (ISN)

#6 Snowbird

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Posted 02 January 2009 - 04:32 PM

Hi KellyA

I have no input on the vitamin D...but do send my heart felt condolences to you on the loss of your aunt. No doubt, that will compound all you are feeling with additional stress upon you. I hope your symptoms settle down and start to improve quickly for you. Take care and keep us posted.
Sending good wishes your way!

#7 Shelley Ensz

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Posted 05 January 2009 - 03:44 PM

Kelly,

I'm very sorry your aunt passed away from scleroderma recently. I send extra warm hugs to you and your whole family.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#8 kellyA

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Posted 06 January 2009 - 06:28 AM

Thanks to all for your postings, I'm starting to feel better, the vitamin D pills are kicking in. I do think maybe I was depressed who wouldn't be after losing my aunt to sclero - it made me re-evaluate my own life.

The past few days I've had more energy--the cold weather here in New Jersey does not help. I really want to go to an island and sit in the sun all day.

KellyA

#9 lynne09

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Posted 11 January 2009 - 05:41 PM

I've had crippling fatigue for the last 4 years due to combination of CREST, Sjogren's, fibromyalgia, and hyperparathyroidism. I started daily Vitamin D supplements of 2000 IU and have had helpful results. I am still very tired but at least feel better about it and have a little more energy.

#10 Shelley Ensz

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Posted 12 January 2009 - 04:15 AM

Lynne,

I noticed that this is your first post. Welcome to Sclero Forums!
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.