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Has anyone experienced this?

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7 replies to this topic

#1 gigi08


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Posted 10 January 2009 - 05:08 PM

For the past couple of days I have been having pain in my lower right side and when I stand up I feel like my insides are going to drop out. For the women, I feel like I did when it was about time for me to get my period. I was just wondering if anyone has experienced this and if it could have anything to do with the scleroderma. I have had my appendix, gallbladder and uterus removed so I know it's not any of those.

Thanks for any info you can give.

#2 Jeannie McClelland

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Posted 11 January 2009 - 05:26 AM

Hi Gigi,

Could you possibly have a prolapse or hernia? Not a doctor, but that's what I'd ask my doctor when I saw him/her. :rolleyes:

Jeannie McClelland
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International Scleroderma Network

#3 Little Red

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Posted 11 January 2009 - 07:34 AM

:) Hi Gigi
So sorry you are having these pains, but you are in the right place. Everyone here is caring and very knowledgeable
I have experienced the same symptoms, just figured it was more bone/hip pain. I still have everything except my appendix.
I have a doctor appt Tues will let you know what he says.:rolleyes:
Little Red

#4 Shelley Ensz

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Posted 12 January 2009 - 04:54 AM

Hi Gigi,

Has this gone away, or have you been to the doctor about it yet? I hope you are feeling better by now.
Warm Hugs,

Shelley Ensz
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Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#5 gigi08


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Posted 12 January 2009 - 08:19 AM

Thanks Shelley for caring. I went to the doctor this morning and she has no idea what it is. I'm having a CT scan and blood work done tomorrow and an appointment on Friday. It 's not any better, but not any worse. Will let you know.

Thanks Jeannie and Little Red for your response.

Little Red, let us know what you find out.


#6 ozzy69


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Posted 12 January 2009 - 09:46 AM

Hi gigi08,

I get those pains sometimes, but I know it is from my bladder. I used to think it was from my ovaries, but they removed them 2 years ago and pain never went away. I too have had everything else removed. I have Interstitial cystitis of the bladder and when it is acting up I feel like I did before my period also. It took them years of removing all kinds of things before the doctors figured out it was my bladder. My bladder doctor says it may be related to sclero, but the rheumatologist does not say much about it. Drinking lots of water helps my bladder from flaring.

Hope you find out what it is.
Nina Lynn

#7 Snowbird


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Posted 12 January 2009 - 12:50 PM

Hi Gigi

Sorry to hear you are having such pain!! I sure hope your doctor figures it out soon...perhaps those tests will tell all. Glad it's not any worse at least....let us know what you discover. Take care! :)
Sending good wishes your way!

#8 KarenL


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Posted 12 January 2009 - 02:52 PM

Ouch! I know that pain!

It sounds like adhesions. Abdominal surgery causes them and they can show up months and even many years later. I had a total colectomy 14 years ago and have horrible labor like pains shooting all around my hip, back and groin area. It especially acts up when I am standing for long periods, even housework brings it on.

It CAN be treated. It's called myofascial release. Once you read about see if you think that's what's up. I bet it is. Good luck. I have mine treated bi-weekly by a chiropractor but there are other practitioners who also do it. Sometimes physical therapists know how. E-mail me if you have a lot of questions, I'm not on here too often as I'm busy with nursing school...