Jump to content


Congrats to Margaret, Platinum Member with 1,000 posts and 10 Years of Forums Membership!


Photo

Miralax


  • Please log in to reply
20 replies to this topic

#1 Sweet

Sweet

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,892 posts

Posted 15 January 2009 - 09:06 AM

Hi Everyone -

I'm one of the many that can't poo by myself these days. I have Miralax to take, but I don't like taking it at bedtime because drinking that much liquid even within 3-4 hours of bedtime will keep me up peeing the entire night... I was wondering if any of you take it during the day, and if so, does it keep you up pooing all night? :)

Such a lovely subject...
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#2 kellyA

kellyA

    Senior Bronze Member

  • Members
  • PipPipPip
  • 73 posts

Posted 15 January 2009 - 09:57 AM

I just bought a large bottle, however, I started eating Fiber One bar every day with a cup of coffee, now I do not need to take the miralax...

#3 Sweet

Sweet

    Platinum Member

  • Topic Starter
  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,892 posts

Posted 15 January 2009 - 10:09 AM

Does the Fiber one bar make you bloated or give you gas?
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#4 Stef

Stef

    Bronze Member

  • Members
  • PipPip
  • 20 posts

Posted 15 January 2009 - 10:14 AM

Sweet,

I love the humor!

I've taken Miralax before, both in large amounts (as a prep for a Colonoscopy), and as a gentle laxative.

For general purposes, you usually mix a small measured amount in with 4 to 8 ounces of a beverage. Taking it in the morning should be ok, as it seems to work more naturally with the water in your system to help keep you regular. You may, however, want to try taking it the first time when you don't have plans to be out anywhere, just in case your results are more immediate?

Hope this helps! I found there are very few liquids I can drink prior to bed, as I run to the restroom the rest of the night!

- Stef

#5 Margaret

Margaret

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,002 posts
  • Location:Pennsylvania

Posted 15 January 2009 - 12:19 PM

Hi Sweet ,

I love the pool side photo!!! Gareth takes his Miralax in the morning with his breakfast. He always has a BM at night and in the morning.

Take care, Everyone.
Margaret

#6 Sweet

Sweet

    Platinum Member

  • Topic Starter
  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,892 posts

Posted 15 January 2009 - 12:29 PM

Thanks you guys, this is helpful!

Thanks Margaret, just got back from Mexico..... back to 3 feet of snow...hmmm something wrong with that :)
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#7 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,927 posts
  • Location:U.K.

Posted 15 January 2009 - 02:04 PM

I haven't used the laxative in question but did take a particular one once in the morning instead of night and found as a result it worked much more quickly. About 5 hours as opposed to overhight. Why I don't know, maybe activity plays a part?

Amanda
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#8 Judy Devlin

Judy Devlin

    Silver Member

  • Members
  • PipPipPipPip
  • 214 posts

Posted 16 January 2009 - 11:25 PM

Hi all,

Oh, pooh is one of my favorite topics..LOL because it has been such a major issue for me for years with my CREST (now upgraded to MCTD).

My GI and I are discussing a Colectomy- complete removal of bowels. This is an extreme measure but the idea came up because it seems nothing moves my bowels. We got to talking about how obese people and stomach reducing surgery helps some so I asked what about shortening the colon, getting rid of some of the nooks and crannies, and twists and turns so the 'fecal matter' could just come out quicker. After some research I think I'll hold off, as constant diarrhea seems to be the result (although that kind of sounds better than more years of constant constipation). I haven't been able to find any info of patients who have had a colectomy. Anyone here had that procedure? My concern would be the quality of life after that surgery.

Right now I take 3oz of milk of magnesium followed by 12 oz of water mixed with a capful of miralax as a chaser every four days, and am having some relief/results.
There are over 1,000 patient and caregiver stories on the main Sclero.org site.
Warm regards,

Judy Devlin
ISN Archive Committee Chair
International Scleroderma Network

#9 Sweet

Sweet

    Platinum Member

  • Topic Starter
  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,892 posts

Posted 17 January 2009 - 06:21 AM

Hi Judy,

Wow, actually I have thought about that too, but I don't think I'd go to that extreme unless absolutely warranted. I'm not sure which is worse though, constipation or diarrhea. I have either one or the other, hardly anything in between.

Oh lovely, I just looked out the window and it's snowing ice....just what we need around here, I'm freezing!

Oh anyway, sorry for that blond moment. I took the Miralax yesterday morning in O.J. and nothing yet!! I'll try it again every morning until something happens. I've actually never stayed on it daily, so maybe I need to try that. I normally take it when I get desperate and then continue a few days until I feel I'm "normal" and then go off of it. I'll try another plan this time and see what happens if I just stay on it. I'm really anti-drug, so it's hard for me to take something, I feel like I'm abusing my body. :)

So, that's the "poo" report for today, :P
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#10 Judy Devlin

Judy Devlin

    Silver Member

  • Members
  • PipPipPipPip
  • 214 posts

Posted 17 January 2009 - 07:02 AM

Hi Pam,
I'm anti-drugs too unless they do what they're suppose to do with minimum side affects-
Anyways I finally did a better google search and found a forum of people who have had colectomies and many have to take imodium to control the diareaah= so that stinks. Many also talked of major weight gain (?) which sounded odd, but someone mentioned a doctor said that maybe after years of poor food absorption, after a colectomy the body starts to absorb the food (fat).. So I think I'll stick with constipation as the surgery is very drastic and I didn't read anything that suggested one's quality of life was any better after the surgery..and I'd rather be thin.

I was taking the miralax daily but because of the warnings regarding kidney issues my GI and I came up with the 'cocktail' I mentioned above.

Stay warm,
Judy
There are over 1,000 patient and caregiver stories on the main Sclero.org site.
Warm regards,

Judy Devlin
ISN Archive Committee Chair
International Scleroderma Network

#11 Sweet

Sweet

    Platinum Member

  • Topic Starter
  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,892 posts

Posted 17 January 2009 - 07:09 AM

Thanks Judy,

I might give your cocktail a try first. I didn't realize the side effects that you mentioned came with Miralax.
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#12 Margaret

Margaret

    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,002 posts
  • Location:Pennsylvania

Posted 17 January 2009 - 07:09 AM

Hi Pamela ,

I have found for Gareth, that if he is regular, then he only needs less than 1 tsp (not the capful) every M,W, & F. Too much Miralax causes just as many issues as none.

Take care, Everyone.
Margaret

#13 Sweet

Sweet

    Platinum Member

  • Topic Starter
  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,892 posts

Posted 17 January 2009 - 07:10 AM

Oh thanks Margaret, I'll write that down...we'll see how all this "goes". I just hope I "go!"
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#14 nan

nan

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 649 posts

Posted 19 January 2009 - 01:20 PM

Sweet,
I am impressed that you can drink orange juice. It doesn't bother your GERD. I just started Miralax and like it a lot better than 6 citrucel caplets and 2 stool softeners daily and ducolax as needed. I have found that I definitely don't need the whole cap. I did a little less than 1/2 cap last night and was quite successful today. I didn't realize the side effects. I think I might try what Gareth's mom does with Gareth.
Good Luck!
Nan

#15 Sweet

Sweet

    Platinum Member

  • Topic Starter
  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,892 posts

Posted 19 January 2009 - 04:36 PM

Hey Nan,

Well, I took it with OJ one day and had problems with GERD, so I'm taking it with water now. I finally had results, but this time instead of quitting, I'm going to keep with it but perhaps not with the full dose.

Love you guys!
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#16 nan

nan

    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 649 posts

Posted 20 January 2009 - 08:25 AM

Sweet,
Glad you got results!!!!!!!!!!!!! Isn't it a wonderful feeling?
Nan

#17 Sweet

Sweet

    Platinum Member

  • Topic Starter
  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,892 posts

Posted 20 January 2009 - 08:59 AM

Nan, yes it is a good feeling and isn't it sad we get so excited over something like this?! :lol:
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#18 smac0719

smac0719

    Senior Silver Member

  • Members
  • PipPipPipPipPip
  • 377 posts
  • Location:Tampa, FL

Posted 20 January 2009 - 12:06 PM

Never thought "poo" could create such a lively conversation. Only in Sclerodermia! I too have used Miralax with moderate success. However, I find taking Benefiber twice a day keeps me more regular and it doesn't have a "fast acting" approach. It's tasteless and also comes in a powder form that you can add to any liquid. I've even added it to soup.

Good luck Sweet!
I may have Scleroderma, but Scleroderma doesn't have me!

#19 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,276 posts
  • Location:Minnesota

Posted 20 January 2009 - 01:24 PM

Just the usual warning for any newbies...scleroderma bowel involvement should always be treated by a physician.

Sometimes more fiber is helpful, but sometimes it can cause a potentially fatal intestinal blockage due to the manner in which scleroderma can slow down the bowels. So, please consult your scleroderma expert or gastroenterologist and then follow their treatment plan.

See our lively page, Scleroderma Bowel Involvement for more information.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#20 Purr

Purr

    Silver Member

  • Members
  • PipPipPipPip
  • 264 posts
  • Location:Kokomo IN

Posted 23 January 2009 - 06:09 AM

Hi Pam!
Your "pooh" post has come at very good time for me!! :lol: I'll put this on my list of questions for the doctor when I have my endoscopy!

Christy
Love makes the world go around!