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Losing Your Voice


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#1 Margaret

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Posted 09 January 2007 - 06:00 AM

Hi, Everyone....Does anyone else lose their voice...on and off throught the day...and have to whisper to be heard? Does anyone wake up and have absolutely no voice....not even a whisper? This is another problem my son has had for a couple of months and I haven't found any info on it. If I ask him 'does it hurt' he will shake his head 'no'. At times during school, his aide will have to struggle to hear him or he writes down on paper what he said. He will be going through the day and then, all of a sudden, he will say "it's back"...meaning his voice. Is there a Scleroderma reason for this and is it painful?
Take care, Everyone.
Margaret

#2 Shelley Ensz

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Posted 09 January 2007 - 06:44 AM

Hi Margaret,

This would be something to report to your son's doctor. There are different causes of voice loss. Since it is intermittent, it might be related to heartburn. But it could be due to an infection or something else.

Scleroderma can affect the voice, called dysphonia, but it is my impression that relates more to a consistent diminishment of vocal ability (like chronic hoarseness) than an intermittent one like you describe. See Dysphonia (Loss of Voice) on our Esophageal Involvement page.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 Margaret

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Posted 09 January 2007 - 08:44 AM

Thanks Shelley. I am amazed how any one of you can pull up a website for someone asking for info!!! This is the most organized forum I have been to. We have an appt with his primary care physician on Thurs. to go over 'stuff' from the past 3 months.
Take care, Everyone.
Margaret

#4 kathygirl

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Posted 09 January 2007 - 11:27 AM

hi margret.
this is my first post. when I saw that your son sometimrs loses his voice and has to whisper I thought I would respond. I also have had this happen. It only happens tp me if Im tired then I can barely whisper. After Ive had a sleep or a rest my voice comes back just as strong as ever. Hope this helps.

#5 Shelley Ensz

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Posted 09 January 2007 - 11:33 AM

Thank you, Margaret. Our main website is over 1200 pages (in 22 languages, no less). So we have accumulated scads of information and we are still building it every day. All of the news items you see posted in this forum also end up somewhere in our main site.

Just click on any of the blue buttons, in the far left hand column of each Sclero Forums page, to go to our main site. Click on the main MEDICAL button to see hundreds of pages of listings -- such as the main SYMPTOMS page, which is a bit daunting, in itself.

You can also use the internal site search to cull some goodies. There is a search function both for Sclero Forums and for the main Sclero.org, which also helps.

This is all operated by the nonprofit International Scleroderma Network through dozens of worldwide virtual volunteers. We have to be very careful about posting links in the forum, to avoid malicious codes which are so rife on the internet these days, so nearly all the links we post are directly to our main site. We are very fortunate to have it all -- the stellar medical information, hundreds of fascinating patient stories intertwined with the medical content, and this terrific support forum.

Anyway, that's part of why and how our team is able to be so johnny-on-the-spot with answers to many of the questions posted here. But nothing beats a good old fashioned discussion of things, on top of it all!
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#6 Elehos

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Posted 09 January 2007 - 02:27 PM

Hi Margaret, you wonderful Mom!

I've had my voice change (a bit deeper and raspier, sometimes weak) and go out at times over the past few years, and it seems like my vocal chords fatigue, just like the rest of my body. Trying to raise my voice to call to someone can cause a sudden spasm, and that can hurt, but losing the volume alone doesn't. It's a good idea to ask the doctor since your son has problems with his esophagus to begin with and you want to make sure it's not damage causing it.

Hugs to both of you as always!

Elehos

#7 Margaret

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Posted 09 January 2007 - 03:34 PM

Elehos and Kathy ,

Thank you for telling me how you feel...whether it is painful, etc. Knowing that fatigue plays a part will help me in keeping an eye on it. I told his 1:1 aide about your responces. She's been with my son for 3 1/2 years and is like a second Mom to him at school.

Take care, Everyone.
Margaret

#8 Vee

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Posted 10 January 2007 - 02:51 AM

Hi Margaret,

My voice comes and goes! It has for about a year now. I went to the ears, throat, and nose specialist and she said that due to the excessive sclero cough that I've had in the past, and also from my allergies, that I clear my throat without realizing that I even do it, and both of these actions make my vocal chords bang together and thus, has formed nodules on my vocal chords. My voice cracks alot, and to sing..........forget it! If I try to raise my voice up past a certain level, it just cuts out. I did go to a voice therapist and she helped me to practice certain phrases and how to breath properly when I talk, and it has helped alot, but alas.............my singing career is over!!!!!! It's a good thing too, according to my kids! LOL!

She also said that it isn't dangerous to have them, just aggrevating! But I would have it checked out, to be sure that it isn't something more serious.

Good Luck to you! warm and happy xo Vee
Happy people don't have the best of everything, they just make the best of everything they have!

Warm and Happy to you! Vee