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Diabetic vs Scleroderma

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#1 ksunshine4u



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Posted 22 January 2009 - 04:42 PM


I don't know if anyone with scleroderma has had an experience where their blood sugar escalates in the afternoon into the night. Dad and I give mom her insulin and monitor her intake of foods, but her sugar has gotten out of control. She went to the primary doctor and will follow up next week.

#2 Shelley Ensz

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Posted 22 January 2009 - 04:47 PM

Hello Ksunshine,

I don't have any direct experience with this myself, but I can give you the link to our Diabetes and Scleroderma page.

I'm sorry your mom has both diabetes and scleroderma. I look forward to hearing what others have to say about this.
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#3 Sweet


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Posted 22 January 2009 - 04:49 PM

Hi Ksunshine,

And welcome to the Sclero Forums. So sorry to hear about your mom. I don't have diabetes, so I don't have any experience with it. Looks like Shelley gave you a link to some very good information. I hope you find it helpful.

Again, a very warm welcome to you, and your family.
Warm and gentle hugs,

ISN Support Specialist
International Scleroderma Network (ISN)

#4 MaryFanPhilly


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Posted 23 January 2009 - 02:44 AM

Hello Ksunshine,

I also am diabetic with diffuse sclero, and am wondering if your mother is on steroids. Apparently they will skew the blood sugar no matter what you eat. I was not diabetic before the steroids.

Have the endocrinologist check the A1C blood test, that is much more of an accurate picture than the daily blood stick, and the gold standard for care. Plus, if your office offers nutritional counseling, try to sign up for it. I found it extremely helpful with planning meals and learning which foods affect the blood sugar levels the most. My eating habits have changed drastically. I try to eat protein with every meal.

Some people react differently to different foods, so try taking her blood sugar levels before a meal, then a half hour after a meal, to see exactly how the meal has affected her glucose. Your endocrinologist may recommend doing this for a day or two.

This is not an easy situation. I find that I am on a knife-edge trying to balance between the two. Good luck and keep us up to date.

Mary in Philly
Diffuse sclero; diabetes; hypertension; GERD with Barrett's

#5 debonair susie

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Posted 27 January 2009 - 09:13 AM

Hi ksunshine,

Mary is right on with the information she posted... Thanks, Mary!

Just as Mary said, I hope you are able to get this under control...
it certainly isn't easy sometimes, is it?

Please keep us posted on how you are doing?
Special Hugs,

Susie Kraft
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International Scleroderma Network (ISN)