Posted 25 January 2009 - 04:18 AM
Many thanks again for letting me pick your brain-pans! -TJ
Posted 25 January 2009 - 06:09 AM
Janey's is the brain-pan you want, but I'm not sure she'll see your posting before your appointment on Tuesday. Hopefully somebody who has had experience (I haven't) will reply. Our members are just great!
If you use the "search forum" button up in the left-hand end of the purple bar, and search on "IVIg", it will bring up the subject wherever it occured in Forum postings.
In the meantime we have a page on IVIg (Intravenous Immunoglobulin).
Hope this all helps.
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Posted 25 January 2009 - 07:50 AM
Posted 25 January 2009 - 02:11 PM
I hope this helps some.
Posted 25 January 2009 - 06:52 PM
My daughter has recieved I.VI.G when she was very sick. This drug is given as an adjuvant to immunocompromised patient. This is an immune booster which is given intravenously in a monthly schedule for 2-3 doses depending on doctor.
m/o of ashu
Posted 29 January 2009 - 11:30 AM
Sorry I'm late in getting to your request for information, but it looks like you've already received quite a bit of good stuff. I was started on IVIg infusions 3 years ago. The main reason for me was to treat my polymyositis. It has helped in that regard tremendously, but I think it has also helped with the scleroderma since I haven't been getting worse, only better. I started with a 5 day infusion, about 3 hours per day each month for 3 months, then went to 6 weeks. My current treatment is 3 days (6-7 hours/day) every 8 weeks. I'm actually beginning to wonder if I even need it anymore. Something to discuss with the rheumatologist next month.
For me - IVIg has been a blessing. It doesn't work for everyone because of what it is and what may be causing each person's particular disease. IVIg is a solution of IgG antibodies with a few IgM antibodies mixed in (proportions differ depending on manufacturer and your requirements). These antibodies are extracted from the blood donations of thousands of donors. The main antibody is IgG which is the most common antibody in our body (see Margaret's link). From my understanding, it is important in helping the immune system work properly.
If administered properly, IVIg infusions have little to no side effects. The main criteria are to start off slow and ramp up to maximum flow rate. I've had to teach a couple of infusion nurses this.
Hope this helps. How did your appointment goes? Any decisions made?
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Posted 29 January 2009 - 03:51 PM
Posted 30 January 2009 - 03:35 AM
Thanks for the info. on IVig. I feel much better about receiving it. Will have to fight for it I am sure, and now after fightin my insurance company for 18months to participate in the SCOT trial, I shall have to cancel the hearing at the state level, makes no sense to fight and lose for something that I cannot receive anyway.
What are the possible side-effects of IVig? Also, any new information on Gleevec or Revimmune?
Now that I'm back home in Florida, I do not envy those who suffer with this disease who also live up north. Must admit tho' I found the bracing cold air - refreshing!!! Made me miss my home in PA.
Lots of warm hugs coming to everyone!!!
Posted 20 February 2009 - 08:11 PM