Posted 29 January 2009 - 03:32 PM
I started getting really sick early 90's. Was diagnosed a few years later in 94 with FM....my specialist/rheumatologist at the time told me that my constant joint pains and fevers were not consistent with fibromyalgia (FM) and that he was confident that I had something else going on (it sounds like a lot of us had/have 'things' going on as well, not just me). Anyway, he told me I had FM and undifferentiated connective tissue disease (UCTD)....still in that category only added difference now is that my blood work is showing high ANA.
Posted 29 January 2009 - 05:39 PM
I always thought I was a 'toughie' until the tender point exam - she hit one that dropped me to my knees in tears! I couldn't believe just pressing on a point that wasn't over a nerve bundle could possibly hurt so much.
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network
Posted 30 January 2009 - 06:55 AM
I was diagnosed with fibromyalgia in 2006 and scleroderma in 2007. The problem have with the fibro is that once one doctor said "Fibro" , all the others would tell me that is the reason for all my problems. My ANA was negative at the time so my primary doctor would not send me to a rheumatologist. After much frustration I made an appointment myself and made my primary refer me. I had to drive over an hour because that was the only rheumatologist I could find that would take me for fibro. Needless to say that rheumatologist sent me to another because he thought I had sclero. By the time I went to the new rheumatologist my ANA was off the charts. Because I was diagnosed with fibromyalgia first, I had to struggle with doctors to find out what else is wrong with me. It is sad we have to fight so hard.
Posted 30 January 2009 - 09:39 AM
Posted 30 January 2009 - 02:49 PM
What makes me nuts is that every time I have to change my doctor due to insurance or moving, they just have to put me through the exam again to prove it to themselves, what agony! Makes me want to scream!
Posted 18 February 2009 - 02:29 PM
Posted 19 February 2009 - 08:42 AM
I really liked her and have gone to her for a few years. Unfortunately due to that I may seek another if I ever need the services of a neuro again.
Posted 21 February 2009 - 09:50 AM
Posted 22 February 2009 - 04:05 PM
Thanks for asking.
Posted 25 February 2009 - 12:26 PM
I hear exactly what you are saying! It has got to be so difficult to realize this all was likely a problem for you since your childhood!
If you were able to get a good nights' sleep, you might just feel like you've slept on a cloud, I would imagine.
Fibromyalgia certainly doesn't allow for a decent sleep pattern. I was diagnosed in the 1980s with Fibro, so I have great empathy for you. It is amazing how we tend to adapt to the hands we are dealt, isn't it?
Your second to the last sentence, I can relate very well with:
"...I ache all over, I have fever and chills and am exhausted more so than normal".
There are pain medications that are available, one of which has given me the opportunity to be able to sleep at night.
I'm sure you have been using one for years, but I know the memory foam really helps to relieve me of painful pressure points while working on sleeping.
I haven't done so yet, but would also like to take this opportunity to welcome you to this wonderful family of ours! This "family" is loving, caring and supportive. When folks have like experiences, they share.
I so appreciate everyone here and I am so glad that you have found your way here and are posting!
Posted 25 February 2009 - 12:30 PM
I am so pleased you have found us and are posting! I welcome you with open arms and hope you find the wonderful support here as comforting as I do!
Please let us know how you are doing?