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Thanks to James Wallace for Voices of Scleroderma book order!


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#1 LisaBulman

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Posted 28 January 2009 - 04:25 AM

Thanks to James Wallace for purchasing Voices of Scleroderma Volume 1 from the nonprofit International Scleroderma Network. This book features over 100 patient, caregiver and survivor stories from this sclero.org website, from 16 countries, and in 5 languages!

Professional contributors include Dr. Joseph Korn, Gary Barg, Dr. Magdalena Dziadzio, Dr. Asim Iqbal Qureshi, and Dr. Thomas Lehman. Story topics include Caregivers and Survivors, Difficult Diagnosis, Diffuse Scleroderma, CREST, Limited Scleroderma, Linear/Localized, Morphea, Overlap and MCTD, Lupus, UCTD, Pulmonary Fibrosis, Fibromyalgia, Polymyositis, and Juvenile Scleroderma (just to name a few!)

Volume 1 offers 104 stories altogether; in English (91 stories), Greek (1), Italian (10), Polish (1) and Romanian (1) along with an English translation for each story. Story authors are from 16 countries: Australia, Canada, Greece, England, India, Italy, Iran, Jordan, New Zealand, Norway, Pakistan, Peru, Poland, Puerto Rico, Romania, and 32 states in the United States. Dr. Joseph Korn, who passed away shortly after this book was published, was Chief of the Rheumatology Section of the Boston University Arthritis Center. He was a highly renowned scleroderma expert with many research studies and professional publications to his credit. His lead-in article for Volume 1, entitled "Introduction to Scleroderma", clearly explains this complex disease.

The Voices of Scleroderma books are on sale now (for a limited time only) when ordered directly from ISN's ScleroShop, for only $14.99 each. Posted 01-27-09.


This item was posted in the ISN Newsroom. Please check the newsroom daily for updates on scleroderma and other related articles.
Lisa Bulman
(Retired) ISN/SCTC List Coordinator
(Retired) ISN Sclero Forums Assistant Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Fundraiser
International Scleroderma Network (ISN)