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Skin Fibrosis


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#1 dfh

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Posted 28 January 2009 - 08:01 AM

Hi,

I'm new here and grateful to have found this forum. My husband just yesterday received the diagnosis of the itchy, blotchy skin problems he's been having on his arms, legs and chest. It's Fibrosis.

He goes to VA and just got the biopsy results from their Dermatology Clinic over the phone.

I put "skin fibrosis" in a Google search and everything said Scleroderma.

Does anyone know if there is a chance he might have something else not so serious or is Fibrosis of the skin always Scleroderma?

VA Dermatology didn't tell him anything and he doesn't see his Primary Care until the middle of February and I'm quite worried.

Thanks for any help,
Denise

#2 Jeannie McClelland

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Posted 28 January 2009 - 08:56 AM

Hi Denise,

Welcome to the Forum. I'm so sorry your husband is having problems.

It's always scary (and annoying) to be left with half a diagnosis. Or worse yet, a description of a problem without any diagnosis. Could your husband call his primary care physician in advance of his appointment and speak to him about the biopsy results, or perhaps the dermatologist who ordered the biopsy?

In the meantime, as it happens, we do have a page on Skin Diseases Similar to Scleroderma. I'm sure some of our members will also suggest some things.

The important thing to remember, though, is for both of you to try and not worry too much until you do have a definitive diagnosis. (Easier said than done, I know!) With scleroderma (and many other diseases), it tends to take more than one symptom to get a diagnosis.

Best wishes,
Jeannie McClelland
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#3 Amanda Thorpe

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Posted 28 January 2009 - 09:47 AM

Hello Denise

How annoying! :angry:

If you can't get more info over the phone and have to wait until February it's going to be difficult for you both. There's little worse than not knowing and only having half the info because our mind love to fill in the blanks.

Beware of too much internet searching as 1) you are not yet certain what you are dealing with and 2) a lot, particularly relating to scleroderma, can be inflammatory and lots of us here have scared ourselves witless reading it.

I hope you can get more info prior to Feb, if not try not to worry because it has no effect over the outcome. If it does turn out to be sclero be assured that it's not the end of the road and you will get terrific support here.

Take care.

Amanda
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#4 janey

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Posted 01 February 2009 - 10:52 AM

Denise,

Welcome to the ISN forums! We all can empathize with you and your hubby right now because we've all been there at one time or another. Jeannie and Amanda have both given you great advice as to not get too worried right because too much stress can make any condition worse. Try to get as much information as possible and see a doctor about the diagnosis of "skin fibrosis" as soon as possible. I did find a list of 20 possible causes of skin fibrosis on wrongdiagnosis.com. Along with this link and the one that Jeannie provided, you should be able to identify several other causes other than scleroderma.

Please let us know what you find out and any further developments. We are all here to support and provided information whenever possible.

Big Hugs,
Janey Willis
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#5 Snowbird

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Posted 01 February 2009 - 12:46 PM

Hi Denise

I can't offer any better help than what the others have already supplied you with. I ditto, don't read the internet, it's the worst thing to do, especially when you don't have enough information about the problem from the doctor. And try to get back in touch with the doctors if you can for at least a telephone conversation to discuss the results as soon as possible. It's always bad when our imaginations run away with us. Been there, did that -- not a nice place to go. Hope you keep us updated on what you find. Take care of both of you in the meantime! :)
Sending good wishes your way!