Jump to content

Hang onto your hat: Sclero Forums Upgrade May 14-21, 2017!! The Forums will be offline for up to 4 days, and then will return with an entirely new look and feel.


Optimal number of cytoxan sessions

  • Please log in to reply
1 reply to this topic

#1 tmgilbertpt


    Bronze Member

  • Members
  • PipPip
  • 23 posts

Posted 30 January 2009 - 09:44 AM

Hello. I am currently undergoing IV cytoxan for the second time. In 2005/2006 I was treated with 6 IV cytoxan chemo sessions. I started again on IV cytoxan last year and just finished my 6th chemo session. I was wondering if anyone had any insight to an optimal number of sessions. I know some of the research recommends 12 months. I was diagnosed with systemic scleroderma in 2002 and since have had lung, liver and heart involvement. I have yet to be in remission and recently had to stop working and apply for disability due to the gradual decline in my health. Thanks so much. Tammy

#2 Jeannie McClelland

Jeannie McClelland

    Senior Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,696 posts
  • Location:in the Rocky Mountains of the USA

Posted 30 January 2009 - 11:19 AM

Hi Tammy,

I'm sorry you are having so many complications and haven't achieved remission - yet. Hopefully you will!

It's my understanding that cytoxan is rarely given longer than 12 months because the risk of bladder cancer increases exponentially after that point. But, of course, that's a decision between you and your doctor.

Have you looked at the page on Cytoxan? That might give you some insight into the various schools of thought.

I'm sure many members will chime in with their experiences and what they've been told.

Best wishes
Jeannie McClelland
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network