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#1 PAULINE

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Posted 10 January 2007 - 11:25 AM

Hi Everyone,


Well today was the day to see if I was going to get help with my swallowing problem. Needless to say it didn't go as well as I'd hoped it would have.Last time I wrote in I told all of you that my esphogeas wasn't fuctioning anymore from the top of the esphogeas to the tail end of the middle. Well he wants to take more biops while he runs the tube all the way down my esphogeas to strech it to see if this will help. He said I will have to do this twice a year until it dosen't work anymore. Then comes the feeding tube, this leads to my question to you all.
How long do these strechings last? I've had strechings befor but not this type.
How soon do you the feeding tube will be needed?
Please can you tell me so I will kinda have a idea about it? You sure don't have to worry about sugar coating because I like a straight forward answer. Or a guess even. thank you all so much.
ps. just a little down today sorry.

HUGGS,

Pauline Huggins

#2 Sweet

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Posted 10 January 2007 - 01:29 PM

Hi Pauline,

I'm sorry for your news that for how upset it has you. I don't have any experience with this topic so I can't give you much advice, but did want to tell you how sorry I am.

I know there are many hear that have gone through this, so I'm sure you will get some posts soon.
Warm and gentle hugs,

Pamela
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International Scleroderma Network (ISN)

#3 LisaBulman

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Posted 10 January 2007 - 02:07 PM

Hi Pauline,
Well I have had my esophogus stretched three times so far. I should probably have had it done a few times more but I always have other things to do. I have had esophogus problems for about 12 years and I don't have a feeding tube yet. Mine works at about 50% with Barrett's at the bottom. Hopefully you won't need a feeding tube any time soon. Every one progresses differently so I don't think anyone will be able to give you a definate time frame or answer.

Hugs,
Lisa
Lisa Bulman
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#4 PAULINE

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Posted 10 January 2007 - 06:09 PM

Dear Sweet and Lisa,


Thank you for your quick replies I really do need some feed back on this.

Lisa do you have Diffuse Scleroderma? have you had Sclero for 12 years? That is along time and I want to make it for along time to. I hope they soon find a cure for this ugly monster we carry around with us .

Sweet,
I hope you are doing well and feeling good.

Thanks again to you both.


HUGGS,

Pauline Huggins

#5 nan

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Posted 11 January 2007 - 04:37 PM

Pauline,
I am so sorry that you are going through this. I don't have those issues yet. I do have horrible relux and some trouble swallowing. I have had 2 esophageal yeast infections. I hope that you can find the answers you need. Sorry I can't help any. Take care!
Nan

#6 PAULINE

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Posted 12 January 2007 - 09:46 AM

Dear Nan,


I am so glad that you don't have this problem and I hope you never get it.
the Yeast issue how do they treat that in your esophogus and does it effect you when you eat? That just doesn't sound fun at all.

How long have you had Scleroderma? I've only had it since August of 2006 it's the Diffuse kind that I carry(WHAT A UGLY MONSTER SCLERO IS!)

Thanks Nan for writting me I love hearing from people .


HUGGS,

Pauline Huggins