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Gareth update


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#1 Margaret

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Posted 06 February 2009 - 11:25 AM

Hi Everyone,

Good news, I think!!! The endoscopy report showed no watermelon stomach but he does have 'chronic inflammation' in his stomach and parts of the esophagus biopsies. He still has esophageal dysmotility but no Barrette's esophagus. He must be used to the dysmotility because when I ask him if his food is still getting stuck, he says 'no.' He saw the ENT today about those 'nodules' on his epiglottis. The ENT doctor called them 'leukoplakia' and said it was something he sees in smokers. Well, obviously, Gareth doesn't smoke!!! He 'figures' they are from the severe reflux and not too concerned about them.

Question: I was under the impression that if the reflux is 'under control' from medication, then, there is no 'reflux'. How can one show signs of reflux if it is under control? Does that make sense? Do you still have reflux (food) come up only without acid? I guess I always assumed that the meds stopped everything from coming up. I don't know!!!

Take care, Everyone.
Margaret

#2 Snowbird

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Posted 06 February 2009 - 01:11 PM

Margaret, I have no idea about the reflux questions, but am sooo glad to hear that at you and Gareth have some good news (at least we hope!) for a change. I'm happy for you both!! :)
Sending good wishes your way!

#3 Sweet

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Posted 06 February 2009 - 01:44 PM

Hey Margaret, what good news, I'm so happy for the both of you.

On the other question, I'm think they may still see something such as inflammation, or spasms but not to the point that it's causing him problem, therefore "it's under control".
Warm and gentle hugs,

Pamela
ISN Support Specialist
International Scleroderma Network (ISN)

#4 janey

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Posted 07 February 2009 - 05:21 AM

Margaret,
Thanks for the update on Gareth. It's always good to hear good news! I'm sure his ability to swallow better is a relief as well.

In reference to your question about reflux, I believe the medication is to "help" to control it, but like all meds, there is no guarantee that it stops it completely. I take 2 Prevacid a day and my heartburn has been eliminated, but I still get reflux. When I do get reflux there is no burning sensation, so the Prevacid is doing it's job there. In fact, in my last doctor's visit we talk about my reflux. My rheumatologist asked if it burned. He said that since it doesn't burn that the medication is doing it's job, now I just have to be more aware of what I eat and how I sleep to keep the reflux down. Hope this helps.

Big Hugs,
Janey Willis
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#5 Margaret

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Posted 07 February 2009 - 07:02 AM

<<I take 2 Prevacid a day and my heartburn has been eliminated, but I still get reflux.>>

Hi Janey ,

Thank you, that is what I wanted to know. I assumed the meds took care of everything. I see they only take care of the acid, which is good. That may explain the changes on the epiglottis and, possibly, any aspiration pneumonia. Gareth takes a Prilosec in the am/pm and a Zantac before bed if he's 'still got heartburn.'

Take care, Everyone.
Margaret