Jump to content


Congrats to Margaret, Platinum Member with 1,000 posts and 10 Years of Forums Membership!


Photo

Lupus or Scleroderma, I am confused!

lupus or scleroderma difficult diagnosis connective tissue disease

  • Please log in to reply
23 replies to this topic

#21 Aashima

Aashima

    Newbie

  • Members
  • Pip
  • 5 posts
  • Location:Dubai

Posted 29 September 2012 - 10:00 PM

Hi I am new to this forum and I am glad that I came to know about this network. Actually I am suffering from the problem of scleroderma; from the last one year, stiffness on my hands especially on my right hand, skin thickening, tightening, swelling on my foot and hands. Many problems are coming one by one; don't know what to do or how to cope with this problem? Any suggestions or anybody who is suffering from this same problem please share.

Hello, TOB. You have received a wealth of good advice already and there is nothing I can add at the moment, but I do want to extend a warm welcome to the ISN Sclero Forums. I look forward to getting to know you better.



#22 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,276 posts
  • Location:Minnesota

Posted 01 October 2012 - 10:34 AM

Hello Aashima,

Welcome to Sclero Forums! I'm sorry you have scleroderma. I'm sure we'll all have many ideas for you on how to cope with it, but the best advice of all is to find a scleroderma expert to oversee your care, if it is possible. The experts are few and far between (even in the U.S., not to mention other countries.)

Here are some warm, welcoming hugs for you.

:emoticons-group-hug:
Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.

#23 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,927 posts
  • Location:U.K.

Posted 01 October 2012 - 01:14 PM

Hello Aashima

Welcome to the forums although I am sorry you have scleroderma. Are you getting good medical attention and support from family/friends?

Take care and keep posting.
Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#24 Shelley Ensz

Shelley Ensz

    Root Administrator

  • ISN Root Admin
  • PipPipPipPipPipPipPipPipPipPipPipPip
  • 3,276 posts
  • Location:Minnesota

Posted 20 May 2013 - 11:22 AM

For anyone who has posted in this thread, we'd love to hear from you with a follow-up (at any time).  Many people are stuck for years without a firm diagnosis.

 

Has anything been figured out in your particular case?  If so, we'd like to know how that came about.  And if you are still in diagnostic limbo, we'd like to hear about that, as well.

 

:emoticons-group-hug:


Warm Hugs,

Shelley Ensz
Founder and President
International Scleroderma Network (ISN)
Hotline and Donations: 1-800-564-7099

The most important thing in the world to know about scleroderma is sclero.org.





Also tagged with one or more of these keywords: lupus or scleroderma, difficult diagnosis, connective tissue disease