Super dry lips, also starting to get ulcers
Posted 20 February 2009 - 04:34 PM
Posted 20 February 2009 - 10:49 PM
Drink plenty of water
I think petroleum jelly works best for mositurising - I apply thick layer at night and carry a small tin of it in my bag and reapply during the day when I remember.
I never use 'ordinary' lipstick- find it very drying- now use moisturising lip glosses.
I try not to lick my lips! - it makes the dryness worse.
I don't have ulcers though. It might be a good idea to ask your primary care provider or rheumatologist for advice re these.
Posted 21 February 2009 - 07:33 AM
I suffer from extreme dry lips as well. I have tried many lip balms including petroleum jelly and one of the new lip moisterizers on the market. Nothing seems to work very well, but the petroleum jelly works the best. I still wear lip gloss (for the color) because the sclero has darkened my lips and I'm still a little self conscious about it.
Lizzie made a good point about not licking your lips, but out of habit I do it many times a day. Hopefully something will come out with something that will relieve it.
Posted 21 February 2009 - 08:10 PM
I do not have any ulcers on my skin, but I have seen some posts discussing manuka honey as a treatment (topical, not ingested). Your best bet is to see your Dr first to make sure that it is Sclero related first, it is always better to be safe than sorry.
As for the dry lips, I definitely have that issue, with cracking, splitting and bleeding as a result and like the others will recommend using petroleum jelly at night and during the day as well. Most lipsticks (especially the long wear varieties) are very drying, so a lip gloss or tint is best. Just remember to replace them every three months to prevent bacterial growth in them.
Dry lips can be a sign of dry mouth and Sjogrens can sometimes like to come along for the autoimmune ride... have you been evaluated for this?
One thing that many do not realize is that toothpastes and mouthwashes can also dry your lips and mouth, so it is always a good idea to moisturize your lips before and after brushing your teeth and gargling, before to protect your lips and after to make sure that no residue from the toothpaste of mouthwash remains.
And... like the others have said... no lip licking! Your saliva dries relatively quickly and can actually aggravate the dryness.
Good luck and I hope this helps.
Posted 22 February 2009 - 02:16 AM
Posted 22 February 2009 - 08:04 AM
The others have made good suggestions for caring for the dry lips, especially Penny's recommendation on replacing whatever you use every three months in order to prevent bacterial contamination.
Have you looked at our info on SjÃ¶grens? There's a thing called sicca syndrome which manifests as dryness - just about everywhere.
I just went through a bad patch with the mouth/lips/gums and one thing that did help almost immediately was making sure I was drinking plenty of water. I thought I was, but then realized I must be pretty badly dehydrated because my urine had turned quite dark.
There are some good products on the market for dental hygiene for those with dry mouths. I'll send you the names. They seem to be readily available here in the USA and not expensive.
The ulcers sound worrying. The literature on scleroderma mostly mentions ulcers on the fingers and toes. Could yours maybe be pressure sores? Is there a local doctor or clinic that is open outside normal working hours? I don't think I'd wait till June to get the ulcers looked at. They are harder to treat the longer you have them and if they get infected, you could be in real trouble.
Best wishes and warm but gentle hugs,
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International Scleroderma Network
Posted 22 February 2009 - 01:38 PM