Might have CREST
Posted 04 March 2009 - 05:59 AM
I had a call from my dermatologist, today, asking me to call in. He believes I have CREST. There were 4 student doctors, asking all sorts of questions. I have had more blood tests done, scl-70 and ABA plus some others.
I was invited to the Medical teaching unit, next week, to be questioned and prodded, by 70 GPs. It will take about 2 hours. I will be taken and brought back, by taxi!
I feel so privilege to be part of this, to enlighten others, of this disease, and what to look out for, when their patient comes to them, with a whole host of illnesses.
I am 70 years young.
I will keep you posted.
A trouble shared is halved, a joy shared is doubled
Posted 04 March 2009 - 08:08 AM
What a great opportunity, not only to help others but to make sure you get excellent care.
The more the medical community know, understand and realise, about sclero the better off all of us will be and those coming after us!
Have a blast!
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Posted 04 March 2009 - 03:16 PM
It's a good thing you're doing just as Amanda says. And I hope you do keep us posted on what they ask, etc. Good luck.
Posted 04 March 2009 - 03:56 PM
I too have CREST. You have come to a great place for support!
Posted 04 March 2009 - 04:27 PM
What great news! You are going to be a wonderful ambassador for us. When I was diagnosed, my specialist told me that my new job was to help teach all the other doctors and medical professionals I would encounter about scleroderma. You go, girl!
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Posted 06 March 2009 - 08:18 AM
You have a wonderful attitude to help the medical community to better learn about CREST. It is also great that your doctor has the foresight, realizing the need. What better way than to ask those who are afflicted?!
Prior to my husband and my move back to caregive my mother...my primary care physician had many students come through her private practice to learn about the vast array of illnesses that plagued her patients. I also was one they found interest in, due to my many chronic illnesses.
As you mentioned, Lynne...it really IS a privilege to do what you have been asked!