Jump to content

Hang onto your hat: Sclero Forums Upgrade May 14-21, 2017!! The Forums will be offline for up to 4 days, and then will return with an entirely new look and feel.


Might have CREST

  • Please log in to reply
5 replies to this topic

#1 thisisme


    Senior Bronze Member

  • Members
  • PipPipPip
  • 32 posts
  • Location:London uk

Posted 04 March 2009 - 05:59 AM

Hello, I have been on the board, but didn`t sign in here. :D

I had a call from my dermatologist, today, asking me to call in. He believes I have CREST. There were 4 student doctors, asking all sorts of questions. I have had more blood tests done, scl-70 and ABA plus some others.

I was invited to the Medical teaching unit, next week, to be questioned and prodded, by 70 GPs. It will take about 2 hours. I will be taken and brought back, by taxi!

I feel so privilege to be part of this, to enlighten others, of this disease, and what to look out for, when their patient comes to them, with a whole host of illnesses.

I am 70 years young. :lol:

I will keep you posted.

Take care.

A trouble shared is halved, a joy shared is doubled

#2 Amanda Thorpe

Amanda Thorpe

    Platinum Plus Member

  • ISN Senior Support Specialist
  • PipPipPipPipPipPipPipPipPipPipPip
  • 2,925 posts
  • Location:U.K.

Posted 04 March 2009 - 08:08 AM

Hello Lynne,

What a great opportunity, not only to help others but to make sure you get excellent care.

The more the medical community know, understand and realise, about sclero the better off all of us will be and those coming after us!

Have a blast!

Amanda Thorpe
ISN Sclero Forums Senior Support Specialist
ISN Video Presentations Manager
ISN Blogger

(Retired) ISN Sclero Forums Assistant Manager

(Retired) ISN Email Support Specialist
International Scleroderma Network (ISN)

#3 Snowbird


    Platinum Member

  • Members
  • PipPipPipPipPipPipPipPipPipPip
  • 1,007 posts
  • Location:Canada

Posted 04 March 2009 - 03:16 PM

Hi Lynne,

It's a good thing you're doing just as Amanda says. And I hope you do keep us posted on what they ask, etc. Good luck.
Sending good wishes your way!

#4 nan


    Gold Member

  • Members
  • PipPipPipPipPipPip
  • 649 posts

Posted 04 March 2009 - 03:56 PM

Hi Lynne,

I too have CREST. You have come to a great place for support!


#5 Jeannie McClelland

Jeannie McClelland

    Senior Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,696 posts
  • Location:in the Rocky Mountains of the USA

Posted 04 March 2009 - 04:27 PM

Hi Lynne!

What great news! You are going to be a wonderful ambassador for us. When I was diagnosed, my specialist told me that my new job was to help teach all the other doctors and medical professionals I would encounter about scleroderma. You go, girl!

Best wishes,
Jeannie McClelland
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network

#6 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,624 posts
  • Location:(United States)

Posted 06 March 2009 - 08:18 AM

Hi Lynne!

You have a wonderful attitude to help the medical community to better learn about CREST. It is also great that your doctor has the foresight, realizing the need. What better way than to ask those who are afflicted?!

Prior to my husband and my move back to caregive my mother...my primary care physician had many students come through her private practice to learn about the vast array of illnesses that plagued her patients. I also was one they found interest in, due to my many chronic illnesses.

As you mentioned, Lynne...it really IS a privilege to do what you have been asked!

Thank you!
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)