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Ooops I made a boo boo...time to laugh out loud!


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14 replies to this topic

#1 Amanda Thorpe

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Posted 04 March 2009 - 10:12 AM

Hello All

You may remember that recently I posted about having had my lft/echo tests the indications of which were that the results would be good. My assumption was that I had yet again scraped by being initiated into internal organ involvement.

Well today I got the results on paper, the lft results are a bunch of numbers that mean nothing to me, the word "normal" scrawled at the bottom I do understand. So far so good.

Well today I got the results on paper, the echo results are a bunch or words in doctor speak but even I was able to discern the meaning of the words "blockage" and "dysfunction". In an attempt to understand the rest of it I googled the results and had my sister (midwife) speak to a doctor friend in order to get a general consensus of the results now. You see my rheumatologist doesn't even know I have had the tests done, he thinks I am still lingering in an NHS queue, good thing I am not. Of course for the definitive answer I will fax the results to him tomorrow and speak to him on the phone.

In the meantime I have "left bundle branch blockage" (apparently worse on the left side) which interferes with the electric impulses in the heart and causes the right and left side to be out of sync. A causal factor is "sclerodegenerative diseases" and I am guessing this is my cause as it surely ain't any of the others!

I also have left ventricle (apparently worse on the left side!) "diastolic dysfunction" which means that when the heart is relaxing (not contracting) the blood in it that has come from the lungs regurges (if there is such a word) eventually back into the lungs and can cause pulmonary edema, elevated pressure in the LV. DD can demonstrate an increase in interstitial collagen deposits and again I am assuming this is why I have DD as none of the other causes applies.

I do not have and have never had high blood pressure or high cholesterol, don't smoke, used to exercise regulalry and have no previous heart issues so it has to be my friend and yours Scler O Derma that's caused the BBB and DD. How ironic my plan was to NEVER have heart issue like dear ole Ma (2 heart attacks) hence the healthy lifestyle! :( She does have high blood pressure, cholesterol, smoked for years and never exercised.

What is concerning is that my last echo in October 2007 showed no issues and now 16 months later there are issues despite having been on cellcept. To me this is a clear indication that my disease is still progressing and has gone internal, interestingly externally it's all gone quiet. Now I know why, it's been busy elsewhere! :angry:

Oh yes, anybody know what "E prime is low at 5cms/sec" means? No, me either! I've no idea whether low is a good or bad thing.

I will let you know what my rheumatologist says in due course meantime laugh it up...if you remember in my first post when I predicted good results I said about laughing if the real results said otherwise! :lol:

Amanda
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#2 Shelley Ensz

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Posted 04 March 2009 - 11:32 AM

Dear Amanda,

I am not certain of much, however I am absolutely positive that "E prime is low at 5cms/sec" is Greek, or perhaps Hindu, for "Amanda could sure use a nice big group hug now."

So here goes {{{{{{{{{{{{Hugs!}}}}}}}}}}}}
Warm Hugs,

Shelley Ensz
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#3 Amanda Thorpe

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Posted 04 March 2009 - 11:44 AM

Me speke no englasie!! Greek or Hindu sounds good to me and I love the translation! :lol:

Amanda
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#4 Margaret

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Posted 04 March 2009 - 01:26 PM

<<E prime is low at 5cms/sec>>

Amanda ,

I Googled that phrase and got science, physics, or wavelength information!!!

Take care, Everyone.
Margaret

#5 Snowbird

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Posted 04 March 2009 - 02:57 PM

Amanda

I echo Shelley....

So here goes from me too {{{{{{{{{{{{Hugs!}}}}}}}}}}}}
Sending good wishes your way!

#6 Jeannie McClelland

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Posted 04 March 2009 - 04:52 PM

E prime? Mortgage classification? Nah, surely not. "Early diastolic tissue velocity (E prime) is used as a marker of diastolic dysfunction." Whew, got lucky finding that one. Now does anybody know where I put my glasses? And keys?? Mobile phone??

[{{{{{{{{{{{{Hugs!}}}}}}}}}}}}] That's me on the end, standing up straight like my mum told me to!

You know my motto, don't you? Find it, treat it!

All together now: "Always look on the bright side of life, ta da da". And was that queue the line on the left or the line on the right?

Best wishes (you've had your hugs for the day, Miss!),
Jeannie McClelland
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#7 debonair susie

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Posted 04 March 2009 - 05:57 PM

Hey You...Keeping you in my thoughts, Amanda!

{{{{{Hugs}}}}}
Special Hugs,

Susie Kraft
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#8 Buttons

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Posted 04 March 2009 - 11:02 PM

Amanda,

Like Susie says keeping you in our thoughts.

Sending you hugs also.

Best wishes,

Jensue

#9 Amanda Thorpe

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Posted 05 March 2009 - 04:11 AM

Thanks for the replies!

Jeannie, well found! I don't suppose it gave any indication of what the normal range was? I don't know if my low number is good, bad or ugly.

By the way I have yet to tell Ma because I know she'll go coastal, hysterical not angry. She lives next door and I just know she'll be coming over all the time to a) see if I am still alive B) try to do everything for me. When first diagnosed she used to come over and look in on me when I was sleeping during the day to make sure I hadn't snuffed it! :) I am 40 Ma!

Amanda
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#10 debonair susie

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Posted 05 March 2009 - 04:40 AM

But really...

How great to have such a ma ;) ...It's really very special!

When you DO let her know, give her an extra hug for me,
okay, Amanda?
Special Hugs,

Susie Kraft
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#11 Jeannie McClelland

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Posted 05 March 2009 - 05:11 AM

Amanda, bearing in mind I don't have a clue what I'm talking about and am usually only quoting something I read, here goes.

The E prime is one half of a ratio (E/e) that reflects a dual deflection of a wave form observed in the echocardiography. E/e<8 is normal and E/e>15 isn't. So if I am understanding this correctly (don't count on it), your low reading is good. When you get a chance to ask someone about this who actually knows what they are talking about, would you let us know? :huh:

My mum would do exactly what yours does if she were close enough to do it in person. As it is, we keep a phone company in business all by ourselves! She'll be 88 in May, 2 weeks after I hit 62. :lol: She's a retired nurse and believe me, do I ever get a good going over if she thinks I'm not behaving.

Warm hugs!
Jeannie McClelland
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#12 Peggy

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Posted 05 March 2009 - 07:01 AM

I'm so sorry about your results. Now what do they do or what is the course of action for something like this? Do they treat it somehow or just keep a real close eye on you or are there meds they prescribe?

I'm sure you are scared to death, as I would be. The good thing is that you now know what is going on and you can deal with it head on. It's better than being in the dark and having it go about doing its job of trying to destroy you from the inside / out.

I have come to the conclusion that if you have systemic sclero, like I do, that if we don't have the involvement right now we eventually will some day. Just because you get a pass in year 1, 2, or 3 doesn't mean that at year 6, 7, or 8 something serious will pop up just because that's how the disease works.

We are all here for you. Please let us know how you are doing.

Warm hugs,

Peggy

#13 aka79

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Posted 05 March 2009 - 07:26 AM

Hi Amanda,
Sending you big hugs and please let us know what the Dr says, it might be nothing serious after all... Let's not get ahead of ourselves...
Love
Ana

#14 razz

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Posted 05 March 2009 - 07:51 AM

Amanda,

What an emotional roller coaster! To go from happy to concerned to worried and back to happy. Sounds like mischieveous Scler O Derma is at it again. I also wish those test results were easy to translate so we can figure out if a celebration is in order. I hope your doctor makes sense out of it and your results are within the normal range!! Keep us posted.

My mom used to drop in when I was first diagnosed and check in on me too. Thank goodness for moms. Ready to nurse us at a moment's notice, armed with a cup of hot tea, chicken soup and vapor rub. Now that I'm better, she doesn't worry as much but still keeps an eye on me. I hope your mom doesn't have to worry after you see your rheumatologist.

Bunches of Hugs,
Razz
Live well, Laugh often, Love much

#15 ozzy69

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Posted 05 March 2009 - 09:14 AM

Hi Amanda,

I hope you get answers from the doctor about your results soon! Big hugs and you are in my thoughts! You are lucky to have your mom so close. I live 6 hours away from my mom and I miss her a lot.

Hugs,
Nina Lynn