Finding A Surgeon For The Nissen Fundoplication
Posted 11 January 2007 - 01:58 PM
Posted 11 January 2007 - 06:27 PM
I sent you a private message with some information. Please let me know if you don't get it.
Big Hugs, Janey
Posted 11 January 2007 - 08:05 PM
when I first developed gerd (before I was diagnosed with sclero) I was researching and talking to various specialists about the procedure.
my reflux and resulting esophageal erosions were very bad. I was desperate to do anything to help the pain, nausea, etc. I could barely eat because swallowing was so painful. on my recheck endoscopy, my gi guy couldn't finish the procedure because I had chinese food in my stomach from the day before totally undigested.
that's when the gi guy said no to the fundiplication procedure. even though he didn't think sclero, he knew something weird was going on with the entire gi tract. lack of forward motion. even at that early stage he said the surgery could be dangerous if the smooth muscles in the esophagous became sluggish . then food would have an even more difficult time passing into the stomach through the narrower lower esophageal sphincter. I thought he was just making light of my condition, but after my sclero diagnosis, I have been told the same thing by other specialists. makes sense. since then, the reflux has gotten much better with meds, change in diet, etc. other problems have taken up the slack though. hope this helps .
Posted 13 January 2007 - 05:05 AM
Posted 13 January 2007 - 05:25 AM
P.S. That test was the one where you drink all of this Barium off and on and they keep putting you on this xray table and they put this big paddle on your stomach or which ever area there looking at.
Posted 13 January 2007 - 05:47 AM
I think I like your rheumatologist already! For them to put themselves in your place and say, "I would" or even "I wouldn't" "send my wife" to a certain doctor, I think helps a person make the decision to see the specialist.
Keep us posted.
Posted 13 January 2007 - 09:46 AM
I am glad I didn't rush into surgery (that is a complicated one even for a good surgeon) because so many of our symptoms can improve with time .
my esophagus is much healthier now than 3 years ago. I think it is due to taking prevacid, cutting out alcohol, trying to exercise as much as I can(to keep the gi tract moving) and eating more fiber. I include more sweet potatos, oatmeal, avocados, olive oil, whole grain breads,lima beans, fish(sort of like a mediterranean diet). I try to avoid spagetti sauce, junk foods, etc. I have a weakness for sweets but I pay the price if I'm not careful. I have also started eating smaller , more frequent meals. stress and lack of sleep throw my gi tract into chaos though. I try to eat lots of fruits like apples, pears, pomagranite juice (careful with the more acidic ones until the ulcers have healed) but I think getting a balanced diet is very important. I think a lot of us can easily become malnourished because of gi pain, fear of eating certain things. I also take a good multivitamin and calcium supplement at night. it is harder to follow this regime because I have to cook more . but it is worth it. hang in there and don't get discouraged. hope this helps
Posted 14 January 2007 - 09:58 AM
Posted 14 January 2007 - 02:45 PM
I'm with Janet: I wouldn't rush into surgery, no matter how much I liked the doctor who recommended it!
I have CREST and I don't heal well. I also have had bad problems with swallowing, but all that is working fine now, thanks to the right medicines.
I am pretty serious about good nutrition and I try to eat several small meals a day. At the moment, I don't actually have to avoid any particular foods. I can even eat chocolate! One thing that can sometimes bother me and stir up acid is spaghetti sauce! When I have that, I try to make sure it's not a late-in-the-day meal. I sometimes have to take a chewable antacid tablet, in addition to my usual medicines, when I have spaghetti sauce.
Did you mention what medicines you are on for the problem? There are a good many of them and the interesting thing is what a variety of them some of us are taking! What is just helping me so much has utterly failed to help some others who are, however, getting relief from other drugs -- that didn't help some other people! You may have already tried everything under the sun with no relief. I just scanned through the posts and didn't see whether you'd been on meds for this.
If not, I'd certainly ask to try every last thing available before I'd let anyone cut so much as one of my fingernails! They may be excellent surgeons, but not really understand or know much about scleroderma! I had several of those doctors wanting to remove one of my finger tips several years ago. Thank goodness, I had one doctor who was experienced in treating scleroderma and he put a stop to that! Thank goodness, I still have my finger!
Mary in Texas