How did it go Penny?
Posted 09 March 2009 - 11:05 AM
How was your appointment today? Did you like the doctor? You were in my thoughts today. I hope you got some answers.
Posted 09 March 2009 - 01:11 PM
The appointment was mixed, she was nice and listened to me blather away... I am not quite sure how I feel about the results of the appointment yet.
In her exact words "you are freaky".
They drew about 12 vials of blood and took x-rays of my hands and chest and in two weeks I go back for the results, but something she said gave me that old 'brush off' feeling that has me feeling a bit lost.
Because every female in my family on both sides has SLE she says that my ANA will probably come back positive even if I don't have Lupus and that could cloud the issue, so she is doing a full panel of antibody testing.
As far as the Sjogrens goes, she is testing for that as well but she said that she does not think I have it... even with the severe dry eye proven by the Schrimer test... she did not even peek into my mouth or check my parotid gland.
What she was most concerned about was the lymph nodes, she became very angry when she found out that my regular Dr did not do an x-ray or any investigation of it, which is why she did the chest x-rays.
All in all, I don't really know how I feel about the appointment today... it could have been worse and it could have been better.
Personally, I am feeling worn out emotionally but I know that I will be able to handle anything that is thrown at me thanks to the wonderful support that I have received from my family here in the forums.
Hugs to all,
Posted 09 March 2009 - 04:50 PM
Thanks for the update on your doctor's appointment. Sounds like nothing definitive yet, but it does looks like your rheumatologist is sure running a battery of tests to see what is going on. That's a good thing. A brush off is being told to go home and sleep it off, but it doesn't sound like that's what you're doctor is saying. I sure hope you get some answers. In the meantime, take care of yourself and do something fun. Please don't sit around and worry because it won't change anything. Have some fun while you wait.
Big Hugs to you Darlin',
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
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International Scleroderma Network (ISN)
Posted 10 March 2009 - 08:38 AM
I actually hit a store on the way home yesterday to look for some voice recognition stuff and picked up a few craft things to give me distractions. I got a 'handi sewer' hand held sewing thing to crank out shells for those 'warm-mitt' things and something called a 'krafty knitter' that I am sure will frustrate me and give me hours of distraction.
Sorry if my posts are a bit slow at times, I check the posts on my phone thingy but can't post replies on it, so I store them all up until I drag out my lap-top and come in and post away.
Posted 10 March 2009 - 08:49 AM
Well, you got that initial appointment over with...WHEW!!!
Now, let's see what this dr can do for you...Now, while waiting for the results to come in, c'mon, let's see a little smile... Thatta way...good job!
I'm glad you stopped off and treated yourself to some crafting things. Will you let us know how the handy sewer works, okay?
Please let us know (and I have no doubt you will!) when you hear about the lab results, etc?
Posted 10 March 2009 - 02:23 PM
Like Janey, my take was that your appointment was good too. Sounds like she was fairly thorough; if she only took 1 vial of blood, I'd be wondering but 12 means significant testing, which I personally wouldn't take as a 'brush off' either because she's running extra tests that she feels are necessary. Sounds like she didn't want to miss anything and is perhaps ruling other things out as well (which is also good).
The trademark of autoimmunity is weird and whacky things, as least I think it is anyway, so I'm guessing her remark about 'you are freaky' likely meant only that you are a puzzle (as we all are it seems).
The first appointment always seems to leave us with uncertainty too. We're unnerved and scared to begin with so we always seem to come away feeling like we didn't remember to ask what we wanted etc. I'm sure your next visit will be better because you will also be better prepared once you've had time to absorb today's visit and as you chat more with all of us.
I hope you feel better once you get a little rest and shake some of that emotional exhaustion off from your busy day.
Hope you keep us updated on your results.
Posted 11 March 2009 - 01:28 AM
Just sending some good, good, positive, hopeful, encouraging thoughts your way! I hope you can find your answers.
Super big hugs to you.