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EGD and manometry

EGD manometry difficulty swallowing scleroderma esophagus

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10 replies to this topic

#1 fortson

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Posted 10 March 2009 - 06:50 AM

Hey,
Well Friday I had an EGD and today I had a manometry. Well I don't remember anything after the EGD because they knocked me out but the Dr talked to my husband and my husband reported that everything was fine. So today before the manometry started the GI doctor came in and said so I talked to your husband and told him that I thought the results of the EGD is sclero related and this test will just confirm that. I guess I can't be mad at my husband, this is the same man whose father was in the hospital for weeks and he would tell me that he was getting better untill I talked to the Dr two days before his father died and the Dr told me he was in heart and resp failure.

Any way the GI said that the opening at the bottom of my esophagus was enlarged? and the results of the manometry should tell us more. How long does it take to get results usually? And I'm not sure how to handle having all these different doctors-do they communicate with each other or is it my responsibility to relay the test results? If anyone has any advise to give me I would appreciate it.
Thanks

#2 Jeannie McClelland

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Posted 10 March 2009 - 07:07 AM

Hi Fortson,

If your GI is present while the manometry is going on, you could get the results immediately. It was my experience that it took a couple of days for the doctor to go through all the print-outs. I'd expected that because he had me make a follow-up appointment for 1 week after the manometry.

The various doctors are supposed to communicate, but since I'm an impatient patient :lol: I always carry my own copies of tests to the next appointment. I've found that if a doctor has to hunt through a chart to find test results, he'll have less time to answer questions, discuss options for treatment, etc.

Asking my husband what the doctor said is an exercise in futility! Much as I love the man, he doesn't understand 'medispeak' and won't ask questions. B) All he wants to know is 1: is she ready to come home and 2: is there anything she shouldn't do or eat or drink~

Warm hugs,
Jeannie McClelland
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#3 Margaret

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Posted 10 March 2009 - 07:15 AM

<<And I'm not sure how to handle having all these different doctors-do they communicate with each other or is it my responsibility to relay the test results?>>

Hi Fortson ,

I know that Gareth's doctors DO NOT communicate with each other. I have made it my responsibility to update the ones I *think* should know about certain tests that the others are doing. Also, he has doctors that are in two separate networks/insurance plans so there is no way they can access the other's files/data.

Take care, Everyone.
Margaret

#4 debonair susie

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Posted 10 March 2009 - 08:19 AM

Hi fortson,

Your hubby sounds like my hubby. They seem to translate differently than we do!

As far as the the results and who gets what? I usually let each doctor know the other doctors are to also get reports of the results.
However, I suspect that your doctors' offices are the same as mine, provided they work within the same clinic?
They each can bring the report information right up on the computer.
Otherwise, as Jeannie mentioned, carrying the report results along to your doctor appointments eliminates wondering!
Special Hugs,

Susie Kraft
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#5 fortson

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Posted 10 March 2009 - 09:20 AM

Ha Ha, Ya'll made me laugh!

I just switched to a new rheumatologist so he is not in the same hosp as the GI specialist that the last rheumatologist referred me to and my primary care physician is in a different city so I have doctors spread throughout Arkansas! It's so confusing to me, I mean don't they all go to med school so why do I have to go to so many different doctors? Well, I know why its just frustrating, and expensive!

Cindy

#6 MaryFanPhilly

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Posted 15 March 2009 - 01:58 PM

Hello Fortsun,
I am glad you found us, as you will find a lot of information and support among these bits and bytes. It is particularly confusing and frustrating at the beginning of this information gathering process, not to mention the tests. The manometry test is especially unpleasant I remember.
The good thing is, you really only need to have it once, so far as I know. The bad news is that damage is not reversed, and it is very important to follow the GI advice very closely. I too have a floppy valve, the lower esophageal sphincter is what it is called. I must be very careful what and how I eat, as most of us do. You'll learn through trial and error what you can get away with.
The advice here is sound, and the only way you can be sure that information gets from point A to point B, is to carry it yourself. All my doctors are in the same hospital system and I STILL have to ferry reports from doctor to doctor.
My only addition would be, use your rheumatologist as the quarterback. I don't generally have any tests or start new meds unless he is on board with it, because he is the one who best understands sclero and its manifestations. What might seem ok to another doctor, might raise alarm bells with your rheumatologist.
Should you ever have to navigate the disability process, you will be very glad that you have all of your test results and reports on hand. But I hope it won't come to that.
Good luck to you!
Mary in Philly
Diffuse sclero; diabetes; hypertension; GERD with Barrett's

#7 mando621

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Posted 16 March 2009 - 03:08 AM

I hope you figure out your esophageal issues. I'm still waiting to see a specialist to find out what they think is causing my troubles swallowing.

My daughter's math teacher had these tests and it didn't go too well for him. He is going to be out of school a month because they tore his esophagus during the endoscopy and it had to be repaired. I don't know why he was in for the tests, but I'm sure glad that things went well for me and all of you.

We forget that medical procedures, even those we think are fairly routine have some risks.

Best wishes to all who have these tests coming up. I'm glad I went through it because it finally showed that my issues aren't all in my head!

Mando.

#8 Purr

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Posted 16 March 2009 - 10:38 AM

Hi Fortson,

I'm going to see a GI Specialist tomorrow afternoon. I had the manometry and it shows that some muscles aren't functioning the way they should. I can swallow OK, but the food is slow in emptying into my stomach. My general practitioner told me that there are acouple things the specialist could recommend. One was widening the esophagus where it meets the stomach. She said as far as prep, it's an outpatient procedure just like an EGD, but a specialist has to do it because it's more involved than the EGD. Hmmmm?

It took about 2 weeks to get the results because the specialist isn't from Kokomo and wasn't there for the test. I'll let you know what I find out tomorrow.

Christyh
Love makes the world go around!

#9 mando621

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Posted 16 March 2009 - 03:19 PM

Hi Christyh,

I used to live in Kokomo years ago. It sure must be a different place with the auto industry problems. I used to work for Delco.

Small world definitely.

I also have problems with the muscles in the esophagus working properly. I had my esophagus stretched already and it didn't really help much at all. I have to wait two more weeks to see the specialist. I'm trying to be patient. It is hard. Tonight we had spaghetti, and I really have trouble swallowing those noodles. They go part way down and get stuck. Then I can't clear my throat.

Best of luck. Aren't you glad they don't do manometry too often!!!!! Yuck, my gag reflex almost killed the test.

Mando.

#10 Cheryle

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Posted 17 March 2009 - 10:54 AM

Mando,
Sorry, you have problems with the gag reflex. That must have been most unpleasant. I expected to, but I didn't gag once with the Manometry.
Cheryle

#11 Jalee85

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Posted 16 September 2011 - 02:04 PM

I can see that this was posted quite some time ago but if anyone did get their tests back could you please share with me the findings of the manometry? I just had one done yesterday morning I had some abnormal swallows that were classic scleroderma however not every swallow was. I am just trying to see if it always every swallow or if it is kind of intermittent.

Jalee





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