Lung CT scan results
Posted 11 March 2009 - 03:45 PM
I got the CT results back and it is normal. I never thought I would be happy to just have asthma. So one more hurdle done. I have a rheumatology appointment in 2 weeks and hopefully can get a clearer picture of next steps. I have really been focusing on keeping my hands, feet and ears warm. I tried to get out and do some rock climbing on Sunday and immediately collapsed into a burning, incapacitated state. Didn't even get one route done. Had to quickly retreat to the car to try and warm up ears and hands. Teach me to climb when the wind is blowing!
I have a question. This problem with swallowing, what do most of you do about it??
Posted 11 March 2009 - 04:42 PM
With scleroderma a lot of us have problems with GERD (gastric reflux) or a slowing of peristalsis (muscles used in esophagus to move food down) and some doctors prescribe reglan to reduce gastric acid and proton pump inhibitors like drugs protonix, prevacid, or nexium. Depending on symptoms seek doctor's advice and they will do a barium swallow (x-ray while drinking dye) or endocopy (tube with camera down esophagus to check for ulcers. Hope that helps. But nexium and prevacid are over-the-counter (OTC) drugs available at pharmacy. Check with your doctor and I assume you have Raynaud's, so never expose yourself to dangerous outdoor activities with this (like rock climbing) or may find yourself stuck with no way down.
Posted 12 March 2009 - 02:52 AM
Great news about the CT scan! Just make sure you get repeat ones every year or so. Mark gave you some good info about the difficulty swallowing. Make sure you speak with your dr and ask questions about treatment. They may want to do a few tests which are very helpful in finding out where the problem is an how to treat it. As far as the raynauds goes... it is very difficult to live with and do outdoor activities in the cold!! Everytime you expose your hands you can cause damage to them. Discuss this with your dr!
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Posted 12 March 2009 - 06:00 AM
That's great news about the CT. Congratulations!
Don't forget about keeping your nose warm! Noses get Raynaud's too. There are loads of treatments for Raynaud's and also a fair number of work-arounds. It's been years since I did any rock-climbing (I'm soon to be 62), but I still like cross-country skiing and snow-shoeing (even wearing an O2 tank). Some of the things I do wouldn't be practical for rock-climbing, but I think you might be able to fit the small single use warming pads into your climbing gloves, for instance. Of course, summer is coming!
Swallowing~ Dysphagia. I have one tip which was given to me by both the speech therapist and GI I saw - tip your head forward, tucking your chin in, when you initiate a swallow. It does seem to help. I've also been re-learning all the things we tell children: little bites, chew thoroughly, don't rush, don't talk with your mouth full!
Warm hugs and wishes,
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Posted 12 March 2009 - 08:44 AM
I have been pretty good about keeping my hands, ears and feet warm, but the wind was howling on Sunday and it just got the better of me - tells me I need to pay more attention. I need to get this figured out before I head to the high sierra's for climbing this summer.
I have been able to get out and ski and have not had a problem. I am still having a problem with riding my motorcyle on cold mornings. Despite all kinds of glove configurations I just can't keep them warm enough. So I will keep trying different things and do the warm weather dance to hasten spring and warmer temps. In the mean time I am grounded from riding the beast to work.
Posted 15 March 2009 - 02:14 AM
For the swallowing, I've been on Prevacid, Prilosec, and now Protonix, trying to see if any of these medications work before I go to a GI. It seems that they work off and on; I will have 3 or 4 weeks with no problems swallowing or dry coughing, then 2 or 3 weeks with lots of problems.
To see if I'm going to have a rough, painful swallow, I now take mini test swallows first, whether it's a liquid or a solid, to see how it is going to go down. It is much less painful when it's a small swallow.
I hope you can find some relief.
Best wishes to you.