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RHC, CT Scan and PH doctor appointment on tap


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#1 debonair susie

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Posted 22 March 2009 - 06:20 AM

Hi, my Scleroderma Family!

I have been kept busy with appointments and such for the last several days. I'm hoping to have some "quiet time", once I get through Monday and Tuesday.

Wednesday, I saw my new dermatologist (about the Guttate Psoriasis), as a result of the Strep Throat triggering it. She prescribed a Z-pak in an attempt to eradicate the outbreak....(last pill today).
A follow-up visit with her in 2 1/2 weeks to talk over results.

Same day, I took my mother to an appointment with her pulmonologist after her PFT.

Thursday was also busy, but a good kind of busy!

Friday, was pre-admission day. Hubby accompanied me. I was given paperwork to fill out, which I did. The nurse came out and asked me if I could go home and get "the packet". Calmly, I told her I didn't know where it was, which didn't go over well with her! She was obviously upset, saying that everything they need for my admission is in that packet. Hubby knew I felt bad, so he was going to speak to her, but I let him know it was okay (chivalry is NOT dead :rolleyes: ). As it turned out, she didn't explain what she felt I hadn't brought with me, or I could have given her the information she was looking for! She came back and let me know she had called the doctors) and found out that they had visited on the phone with each OTHER, but didn't follow through on what is normally done thereafter! The doctor performing the right heart cath was to have seen me (last week), but for some reason, the doctors by-passed that! They spoke about the ECHO and PFT I had in December and chose to proceed, due to the results of each test.

So! She gave me and hubby packet to look at as we waited for information to be sent over (from the doctors' offices) that she had thought I had!

Hubby is very concerned about my having the right heart cath and he doesn't seem to understand why I am NOT concerned. I'm not looking at this through rose-colored glasses, but after all, I don't anticipate any problems, as the doctor who performs these procedures has done many of them!

The only thing is, I have to get up at ("O Dark Thirty") 4 a m, in order to be there at 6 a m. (I've given thought to camping out in the hospital parking lot so I can sleep longer)!

On Tuesday, I'm scheduled for a CT Scan, followed by an appointment with the PH doctor, who will likely go over the results of their findings.

I will let you know how this all went, once I know!
Special Hugs,

Susie Kraft
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#2 Jeannie McClelland

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Posted 22 March 2009 - 07:45 AM

Hey Susie, want my tent and sleeping bag?? They're nice and warm, honest. I even have a nice pad to protect you from the hard/cold asphalt in the parking lot. :lol:

When I had my right heart catheterization I was kind of bent out of shape that the pulmonary hypertension specialist wouldn't be doing it. She explained that the cardiologists do hundreds of these - the ones at the University Hospital who work in the 'cath lab' do several every day. It turned out there were 3 of them in the room, a couple of nurses, and a technician or two. Deary me! If I'd have known, I'd have charged admission. :lol:

We'll be waiting to hear the results and wishing you all the best. Special hugs, dear Friend.
Jeannie McClelland
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#3 debonair susie

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Posted 22 March 2009 - 10:16 AM

Ya know I just might take you up on that, Jeannie...the stars have been beautiful, the last severeal nights!lol

Had I been you, I also would have charged admission, Girlfriend :D !

Thanks a bunch, Jeannie!
Special Hugs,

Susie Kraft
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International Scleroderma Network (ISN)

#4 ozzy69

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Posted 22 March 2009 - 11:22 AM

Susie,

It sounds like you have been busy! I have always had to get up early for hospital procedures and it is a pain. I am glad when they knock me out that early because I get to go back to sleep! LOL

You are in my thoughts and I hope everything turns out well!

Hugs,
Nina Lynn

#5 gigi08

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Posted 22 March 2009 - 01:08 PM

Susie,
I can tow our camping trailer out for you so you can stay a little warmer. Then I could meet you and spend the day with you. I hope that all goes well and will be waiting to hear the results. You have had a busy week. Sometimes we do feel better when we're busy but it can make us very tired.
You're special!
Gigi08

#6 debonair susie

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Posted 24 March 2009 - 11:06 AM

~Jefa, Shelley, Janey, Jeannie, Nina Lynn, gigi and All~

As soon as he was able, the cardiologist came over, patted me and said, "Congratulations!I am happy to tell you that your heart, etc looks good"!

Twenty minutes after the CT Scan, my pulmo came into the exam room, shook my hand and said, "I don't get this opportunity often, but I am really happy to be able to tell you that your CT Scan showed normal... Congratulations"! He then said, "I hope I never see you again"!
He gave me both reports (re:the RHC and the CT Scan). Plus, I will receive my CT Scan on CD, so I'll have it, too!

All of the above was music to my ears, as it was my husband's.

I was in very capable hands throughout everything. As a matter of fact, the nurse who pre-admitted me on Friday, was the nurse who took (excellent) care of me, yesterday...pre and post procedure! She couldn't have been more attentive!

Re: the RHC: They were able to go into a vein, rather than an artery to do the RHC, which made it much easier for me!
Amazingly, the sedative they gave me before the RHC didn't keep me from remembering anything, as it always has in the past! One thing it did do, that I don't feel bad about... I was able to sleep 3 hours after hubby and I got home and when I went to bed, I went right to sleep... and STAYED asleep, for a change!


Hi Nina Lynn and thank you for your nice thoughts and wishes! As you mentioned in your post, sleep is ALWAYS good :rolleyes: !

Oh gigi,
You are SO thoughtful... thank you so much:-) I would have LOVED that!
Special Hugs,

Susie Kraft
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International Scleroderma Network (ISN)

#7 Jeannie McClelland

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Posted 24 March 2009 - 12:07 PM

Woohoo!! Happy dance! If you want, I'll try and do that vertical split you showed me OR since you are so special to us all and I'm really that relieved that everything is OK, I'll do my famous back-flip followed by a frontwards somersault! Just for you, mind.

Enormously big hugs,
Jeannie McClelland
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#8 barefut

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Posted 25 March 2009 - 12:09 AM

Susie ~

I am doing the Happy Dance for you! What relief you must feel. I love hearing good news stories.

I want to thank you for sharing your RHC experience as I am a bit nervous about mine next month - not so much about the outcome because my RHC is for a study, but the proceedure itself concerns me.

You have provided me with a new question to ask at my screening appointment regarding going in through a vein. Can you tell me more about that? Sounds like the recovery is less of a pain.

Thanks!

#9 LisaBulman

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Posted 25 March 2009 - 01:03 AM

Susie,
GREAT news! We like to hear that around here! What a releif it is all over and to have passed with flying colors must feel great. Don't you just love when doctors say they don't want to see you again? It's usually, "come back in 6 to 8 weeks."

I'm thrilled for you and really glad you got to catch some extra zzz's. :)

Hugs,
Lisa
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#10 Margaret

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Posted 25 March 2009 - 01:40 AM

Hi Susie ,

Thanks for the smiles this morning. I love *happy news* !!!

Take care, Everyone.
Margaret

#11 Sweet

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Posted 25 March 2009 - 04:46 AM

Oh Susie, this is certainly good news!!! I too hope you never have to see that doctor again.

Smiling for you.
Warm and gentle hugs,

Pamela
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