Will this "flare" ever go away?
Posted 30 March 2009 - 05:01 AM
I have had sclero for 7 years and have had flares that have lasted a week or two, but this one is going into its sixth week. I am so frustrated and feel useless!
Has anyone had a flare that lasts awhile and goes away? Or is this just the next phase of the disease that I need to learn to live with? I am on a prescription pain medication and that helps temporarily, but I don't want to become addicted to it. Any other meds you have tried or other forms of therapy?
Thanks for your help!
Posted 30 March 2009 - 06:28 AM
Welcome to the Forum! I'm sorry you are having such a prolonged flare. That definitely falls into the category of 'Not Having Fun.'
I can only speak from my own experiences and I'm only at the 2-1/2 year point. My flares usually last about a week and then go away. If they last longer, we've been able to identify a cause like change in medication or recently, having had the 'bug' that was going around.
Have you checked with your doctor about your current flare? Since it seems to be significantly different from your previous ones, it would probably be a good idea. You may need to adjust medications or start something like immunosuppressants, if you aren't already on one, but that's definitely a call for your doctor to make.
As far as treating for pain, there are many different types of pain management. You might check out the articles on our Pain Management and Scleroderma page. I can't take most 'traditional' prescription pain medications, but my doctors and I worked together to find a way to adequately manage my pain: a combination of anti-inflammatory medications, Plaquenil, a muscle relaxant, and an exercise program designed by a physiotherapist. I also have a TENS unit.
I hope somewhere in all that, you'll find some helpful information. I hope now that you've posted, you'll have scared the flare away - sort of like making an appointment to take your car to the mechanic and having the mysterious noise completely disappear! Welcome again, and let us know how you get on, OK?
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Posted 30 March 2009 - 09:23 AM
Welcome to the forum! This is the best place to be for support and information about scleroderma.
I have only had one flare and it lasted for about 4 weeks during which joints got stiffer, skin got tighter then as suddenly as it came it went. At the time I had no idea what it was and consulted a sclero nurse who explained it to me. I'm into year two and had the flares tail off end of year one.
As you no doubt know already everyone is so different with sclero but if you're experiencing something different you should speak to your doctor as already suggested.
Do let us know how you get on and keep posting.
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Posted 02 April 2009 - 04:30 AM
I am so glad I read this post! Helps to know I'm not the only one. I have been having flares for almost 6 weeks. They are starting to ease off now. Stress is probably the cause of part of it. I was experiencing side effects from yet another drug. They weren't very noticeable until the neurologist upped the dose. Then, my aunt died last week. She was 81. I am in year 2 (July, '07) of Mixed Connective Tissue Disease. My rheumatologist said what I'm going through (the flares) will ease up or stop. I just need to have patience.
Posted 02 April 2009 - 09:04 AM
I am so glad to see you posting! There are awesome folks in our "Family" and I hope you find it as comfortable as we do, as a placed to come and ask questions, look for support, offer support and make special friends!
I've had flares last for quite some time, but I feel that the Sclero, and also the Psoriasis, like to "have battles of the wills", every so often.
Hopefully, your flares will be shorter in duration -- mine seem to be further apart, as time goes by. I was diagnosed in 1995 and haven't had a flare for quite awhile now.