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John Hopkins Hospital


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3 replies to this topic

#1 Alice02

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Posted 31 March 2009 - 05:00 AM

Hello everyone, I haven't been here for a while due to many ups and down with my health as most of you living with this terrible disease are familiar with.

I am in process in arranging a visit to John Hopkins Hospital to see a surgeon who specializes in calcinosis cutis. Lately I have been experiencing serious symptoms of fibromyalgia and wondering if it is possible that I can develop fibromyalgia in addition to Scleroderma? I would I appreciate any information or experience any of you may have.

Thank you in advance for your input on the subject, I appreciate it.

Warm regards,

Alice

#2 Sweet

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Posted 31 March 2009 - 05:03 AM

Hi Alice,

I'm glad you are seeing someone at JH. I hope they can help you.

I have Fibromyalgia and Sclero. I think there are many of us here that have multiple diagnoses. So, talk with your doctor about it. There are meds that seem to help some.
Warm and gentle hugs,

Pamela
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International Scleroderma Network (ISN)

#3 nan

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Posted 31 March 2009 - 05:47 AM

Alice,
I too have fibromyalgia and scleroderma. I hope that you have a great visit to Hopkins. I go there to see a rheumatologist.
Nan

#4 Sherry McD

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Posted 31 March 2009 - 06:42 AM

Hi Alice,
Although I am not a doctor, I do believe you can have both scleroderma and fibromyalgia; at least both are listed in my charts. I have been experiencing extreme fatigue for the last several weeks and my rheumatologist is treating me with cymbalta which has shown to improve fibromyalgia. Sadly, I have found no relief yet.
I wish you the best!
Sherry