Jump to content


Do you want up to date information about Scleroderma? Check out our Medical pages at www.sclero.org for all your Scleroderma questions!


Photo

barium swallow study


  • Please log in to reply
8 replies to this topic

#1 fortson

fortson

    Newbie

  • Members
  • Pip
  • 9 posts

Posted 02 April 2009 - 09:19 AM

Okay, I think I'm just being obsessive but I would like to bounce this off of the been there done that group. I had the EGD (Esophagogastroduodenoscopy) and manometry test and will go back to the GI on the 8th to discuss the results and then I got a call today that the GI has already scheduled me for a barium swallow test, so I'm worried that maybe they saw something and want more tests or does that mean everything was good and they want to confirm? Someone slap me around and tell me to snap out of it! :unsure:
Cindy

#2 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,638 posts
  • Location:(United States)

Posted 02 April 2009 - 09:43 AM

Hi Cindy,

No slapping for you :D

When I went in for my manometry, they did the barium swallow at the same time!
I never gave this any thought until you brought it up and the two have been mentioned on the forum before.

So, I'm going to let someone who is better able to field this than I try to answer!

In the meantime, I'll be "hovering" around this thread for some great information!
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#3 Jeannie McClelland

Jeannie McClelland

    Senior Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,706 posts
  • Location:in the Rocky Mountains of the USA

Posted 03 April 2009 - 05:29 AM

Hi Cindy,

It may just be that that they want a 'picture' of the data the manometry produced. If I've got this right, with the swallow they can see an image of various densities of food (liquid, semi-solid, and dry) as they progress down the esophagus which gives them something to correlate the raw data (numbers, wave forms) to.

They may also have had some trouble visualizing an area when doing the EGD and rather than go through that again, want the barium study.

OR, the GI may have just forgot to schedule the barium swallow in the first place! :lol: Is it scheduled for before or after your follow-up appointment?

Since I'm such a great self-panicking type , I could probably come up with some negative scenarios if you real want one. :D

We'll be waiting to hear what you hear!

Best wishes and warm hugs,
Jeannie McClelland
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network

#4 Purr

Purr

    Silver Member

  • Members
  • PipPipPipPip
  • 264 posts
  • Location:Kokomo IN

Posted 03 April 2009 - 06:18 AM

Hi Cindy,

I recently had the all 3 of those tests. 1st the EGD, then the barium swallow, and then the manometry. The barium swallow is to see how you swallow your food and drink. They watch as it goes down so they can see if the muscles are working. It shows them the top part of the esophagus. The manometry shows the lower. My swallowing is good, but the lower muscles aren't working. Hope this helps.

Chris
Love makes the world go around!

#5 jillatk

jillatk

    Senior Bronze Member

  • Members
  • PipPipPip
  • 78 posts
  • Location:Colorado

Posted 03 April 2009 - 06:51 AM

If it is any consolation to you, they scheduled my barium swallowing test first. Who knows the method to the madness. I figure it all just needs to be done and the order is less relevant. Also, worrying about it won't change the outcome. I know it is hard to stop, but remind yourself that it is what it is and you can only control what you can control. Spend you energy on what you can control. You could also call your doctor and ask if there is something to be concerned about.

In the mean time, do something that is good for yourself.

Jill

#6 fortson

fortson

    Newbie

  • Topic Starter
  • Members
  • Pip
  • 9 posts

Posted 06 April 2009 - 04:11 AM

I have a follow up scheduled for the 8th and the barium study is scheduled for the 20th. I just wish he would have waited till I saw him on the 8th before scheduling it, I want to think that I have some control over what tests I want and don't want or at least give me a reason why.
And Jeannie I probably have already thought of every negative scenario possible! I'm so obsessive!!I'm glad my husband loves me!HA HA
Thanks, but the next two days are going to drive me crazy!
Cindy

#7 debonair susie

debonair susie

    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,638 posts
  • Location:(United States)

Posted 06 April 2009 - 11:48 AM

Hi Cindy,

If you have questions to ask your doctor, call his office. Ask if he could possibly call you back, but if you know that isn't possible, leave the questions for your doctor to answer on the answering machine.

Some doctors don't get a chance until after office hours and sometimes a day or two later.

I don't blame you for wanting to have "some control" over what tests you agree to... or not. If, once you've heard back from your doctor or he gives the message to the nurse to call you back, of course you should be told what the reasoning is for the test. That's your right, Cindy.

Hope you get your answers so you no longer need to wonder.
Special Hugs,

Susie Kraft
ISN Support Specialist
ISN Chat Host
International Scleroderma Network (ISN)

#8 Jeannie McClelland

Jeannie McClelland

    Senior Gold Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 1,706 posts
  • Location:in the Rocky Mountains of the USA

Posted 06 April 2009 - 12:45 PM

I actually had one specialist tell me not to agree to a test he thought another specialist was going to order, saying it was really was not necessary.

I'm an admitted control freak. I have to know why a test is ordered and what is involved before I'll agree.

So I'm with Susie, wise woman that she is. Know your rights and exercise them. At least you've got the follow-up before the 20th and the barium swallow, so you'll have some answers and can back out if you decide to.

We'll all be anxious to hear what your doctor says!

Warm hugs,
Jeannie McClelland
(Retired) ISN Director of Support Services
(Retired) ISN Sclero Forums Manager
(Retired) ISN Blog Manager
(Retired) ISN Assistant News Guide
(Retired) ISN Artist
International Scleroderma Network

#9 fortson

fortson

    Newbie

  • Topic Starter
  • Members
  • Pip
  • 9 posts

Posted 09 April 2009 - 08:19 AM

Hi everyone
Just wanted to give an update to the GI follow up I had yesterday, thankfully they said everything looked normal except for the lower part of my esophagus being enlarged, whew! They said that since I'm still getting breakthrough acid reflux even on Aciphex 2 times a day that I should up it to 40mg twice a day and they even offered to write a letter to the insurance company to make sure that they cover that high a dose.

The doctor said that he thought that the enlarged part of the esophagus was due to scleroderma and was hoping that the higher dose of Aciphex would help slow down the progression of any more damage. He also said that there wasn't a reason to go through with the barium swallow test because it won't tell us anything more that we don't already know. I have to say that I'm lucky to come across a Dr that is honest and seems to be understanding. Thank ya'll for listening and offering advise.
Cindy