Jump to content

Hang onto your hat: Sclero Forums Upgrade May 14-21, 2017!! The Forums will be offline for up to 4 days, and then will return with an entirely new look and feel.


Females Only

  • Please log in to reply
2 replies to this topic

#1 Kathy D

Kathy D

    Silver Member

  • Members
  • PipPipPipPip
  • 239 posts
  • Location:Rocky Mountains USA

Posted 03 April 2009 - 09:47 AM

I have struggled with this device since I got it in 2006, one infection after another on top of heavy painful periods.

Now that I have sclero, I don't have the energy to deal with cramps and bleeding every day (yes, almost every day of the month). I have more inflammation from sclero now so I was thinking any inflammation I can remove would be a good idea, what do you think?

Of course I have to add that I cannot tolerate hormone based birth control, sorry.

Thank you for any input or experiences,

Take Good Care!

Diffuse Scleroderma Diagnosed March 2009

#2 Penny


    Silver Member

  • Bloggers
  • PipPipPipPip
  • 160 posts
  • Location:Suffolk, Virginia, USA

Posted 03 April 2009 - 10:37 AM


I would recommend seeing your OBGYN and speaking with them about the difficulties you have been having with your IUD.

There are many kinds of IUD's on the market and you might be having issues with the copper so it would definitely be in your best interest to speak with your doctor about it.

I am not a doctor and have no medical training, so I can't really say if the IUD is the total cause of your troubles, only your doctor can say that.

There are other things that can cause breakthrough spotting, longer periods and heavy cramping such as low thyroid (hypothyroid), endometriosis and other hormonal imbalances.

I had a copper 7 IUD at one time, but had to have it removed when I developed PID (pelvic inflammatory disease) with a ruptured tube. Prior to that I never had any troubles with it, but did have troubles due to hypothyroid that sound a lot like what you are experiencing.

I want to make sure and state that getting PID with an IUD is a rare possibility and I have never personally met anyone else that has gotten one even though I know many who have IUDs.

I hope that you get to the bottom of this quickly so that you can be comfortable, you have so much to deal with already and should not have to go through this as well.

Warm hugs,


#3 janey


    Platinum Member

  • ISN Support Specialists
  • PipPipPipPipPipPipPipPipPipPip
  • 2,113 posts
  • Location:New Mexico

Posted 03 April 2009 - 12:01 PM


Ditto to Penny's comment - talk to your Obgyn! I would have talked to her a long time ago. This shouldn't be happening. There are many other types of birth control beside the IUD and pills. If you aren't planning on having kids, your partner could get involved.

Please talk to your doctor! Sclero or no sclero, your shouldn't have to deal with this. Good luck in finding an acceptable replacement.

Please take care of yourself.

Big Hugs,
Janey Willis
ISN Support Specialist
(Retired) ISN Assistant Webmaster
(Retired) ISN News Director
(Retired) ISN Technical Writer for Training Manuals
International Scleroderma Network (ISN)